EPILEPCY in later life? odd symptoms

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New Member

Date Joined Mar 2013
Total Posts : 6
   Posted 3/3/2013 6:58 PM (GMT -6)   
funny,but it is like reading exactly like myself...so these symptoms have a cause.
ive had MRI s and cystoscopy(never again and absolutely no more sex drive!)ive had epidurals
and am due another soon
i take codeine amytriptotine zopiclone fluoxetine tramadol and now gabapentin.
thats it it feels .like im about to drop dead anytime soon.
the last cou0ple of months,i developed a twitch in my left eyelid,and didnt think too much about it and,are happening during the day,and also
now im having these twich/tremors all over and just about when falling to sleep,these are quite violent,on a few occassions,enough to throw me out my bed.im afraid to go to sleep its quite scarry,to be honest.
but these tremors or whatever to call them,during the day and especiallly in my arms and hands,where it feels like(weve all touched something electrical with wet hands?¬)an electric shock and really powerful,
my doc says it is syatica,but there must be more to it than that:where does the extreme fatigue come from?the stabbing sensatioin my right side of my stomach,no balance,blurring vision,and sound like a tap being turned on,or a hi pitch drone...allso afriend says my left pupil is open very wide,compared to the other one.funny really that most of the aching/tremors/excruciating head and neck pain,are concentrated down my left side
some days i get stuck in weird positions open mouthed,and so tense in the muscles it feels like something is going to SNAP!i really feel like im dragging a corpse around.i am so detached on some days,no concentration,no memory and the only times i get out is to pay bills and food,and walk my dog
im on ESA and am waiting on a date for an appeal,as i 'scored' no points.
im on my own,have no real contacs anymore,and im fairly scared as to what is happening to me.can people develop epilepsy,i thought that people were only born with it?
im so exhausted trying to chill the pain and fighting the tension and long story short,its all getting worse by the day
and need some sort of answer to this.im 45 years old,done all the drugs n alchohol thing,and have had my fair share of knocks,and im not easily pained,but this,this is awesomely skilled at making me totally incapacitated,or passed out,for hours on end.
i dont drink now but smoke(only tobacco)fairly heavyly,but one thing i did want to mention was that these tremors started after using a TEMS machine,patches that vibrate with different intencities that you place on a pained area.
have i unwitingly switched something on in my nerves with this treatment?
well i hope someone can help me to understand why this is happeening,as im fast loosing the will to live with myself.
thanks for reading ok?

Post Edited (dandlion) : 3/4/2013 7:57:08 AM (GMT-7)

Veteran Member

Date Joined Mar 2011
Total Posts : 1276
   Posted 3/4/2013 3:22 PM (GMT -6)   
Hi dandelion and a gentle hug to you. I'm not a doctor, but this sounds very much like myoclonus.

Myoclonus - or myoclonic jerks - can cause anything from small muscle switches like an eyelid tic to full body muscle twitching and jerking. They occur most most commonly just as you are falling asleep, and tend to be far worse in people who are severely fatigued. I get these too and they can be scary, especially as with already painful limbs they can really hurt.

Have you got a different doctor you can see? It worries me that your doc is saying that something with your hands and upper body is sciatica... Sciatica is also something I deal with on a daily basis and at its most simple is nerve pain affecting the lower back and legs.

Hang in there

Moderator - Chronic Pain Forum

Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.

Oxycodone ER/IR, Topamax, Mobic, Somac, Cymbalta, Lorazepam, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump

New Member

Date Joined Mar 2013
Total Posts : 6
   Posted 3/5/2013 11:52 AM (GMT -6)   
Thanks Laura,I will follow some of your links and thsnks for the hug!

Regular Member

Date Joined Jul 2012
Total Posts : 335
   Posted 3/6/2013 5:48 PM (GMT -6)   
Hi dandelion, you didn't say what, if any, medical issues you have, but if you are having these kinds of symptoms you definitely need a consult with a Neurologist cause their the ones that deal with the brain and the nerves and spinal issues etc., etc. Just an FYI, you said your a heavy smoker with a history of drug and alcohol use and smoking cause a loss of oxygen to the brain every time you inhale, you can verify that with any doctor, also depending on how much, how long and what kind of drugs you used that could be an issue as well as they ALL effect the brain. I'm speaking from personal experience here I am always amazed I have any brain capacity at all after 20+ years of booze, pills, pot, OTC speed and the other kind, etc. You need to be totally honest your docs cause some of that stuff is very, very harmful and they can't help you if you don't know. Then again it may be totally unrelated, I have Fibromyalgia, spinal stenosis, mild scoliosis and carpal tunnel syndrome and i get the twitched and jolts and muscle contractions and new is Vertigo, dizziness, loss of balance and ringing in my ears. Yeah my Neuro is scratching his head and double testing me for stuff my pcp already had checked but i also had/have brain tumors/meningioma so who knows?? Hang in there, ask a lot of questions and Keep in Touch.
P.S. I hope I didn't sound preachy in there, definitely not what I was going for
Crainiotomy Lg. Meningioma Dec.02, Bi-Polar 2004, SMI 06, Gluten/Wheat/Dairy Intolerance, IBS 06, Migraines w/pseudo-seizures 07, Dev. Septum Sur. Sept.07, 2nd Men./Tumor Gamma Knife Rad. Dec.08, Radical Hysterectomy Sept.09 w/instant Menopause, Fibromyalgia 09, Disability since 09, EBV/CFS 11,Vomiting/Multiple Ulcers, Vertigo 12, Chronic Fatigue Moderator 2013.No meds list I ran out of space.

New Member

Date Joined Mar 2013
Total Posts : 6
   Posted 3/6/2013 6:46 PM (GMT -6)   
Thanks recoveryme2day
Yes you know,and I don't take anyone to be preachy who had the time to reply and voice a considered opinion.look how far we've come
With sharing info.its cool to find opinions like we've made it possible
I think the kind of drug use we've indulged in the past,must have some ill effect somewhere down the line(death is the other) .
Also it can't all be side effects of the medication,can it!?
Yea,doc knows all my booze/amphet/dope/acid etc bla bla..
And he too is sxratchin his head...makes me feel like I'm suffering 'phantom' symptoms.
I'm going to have another epidural in afew weeks.
Problem is symptoms come from nowhere,and somedays I'm crushed by them.hyper to totaly wasted,you know.
Oh and I've been told by the lady at the chemist to go urgently to docs as one pupil of my eye is wide and the other near closed,and I'm getting some serious headachs,and blurred vision
Yes I'll stay in touch so nice one
And yea hang in there everyone,ok
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