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migraine auras, exaustion, numbness,

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Chronic Fatigue Syndrome
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Posted 3/4/2013 11:55 AM (GMT -8)
It seems every year from mid January to mid may, I get hit with exhaustion, low BP, migraine auras, very slight headache, scalp sensitivity, slightly weakened legs when walking, vertigo, slight facial numbness, slight stomach upset, also I feel like each nerve on my skin is in a slight pressure cooker...Last year I went to the ER and had CT's and Ultra sound all coming up fine, saw a cardio Doc, said all was well. Dose seem to come around the same time of year...I know sounds crazy...???
Posted 3/6/2013 3:10 PM (GMT -8)
I'm sorry Godslyric I have never heard of a seasonal medical disorder. The symptoms you described could be CFS, Fibromyalgia or a brain tumor, which wouldn't show up on a CT scan until it was at lead the size of a lemon, I have personal experience with that. But, none of those things are seasonal, I wish cause i have all 3, that leaves an inner ear issue which covers everything except the facial numbness and the nerves. Hope this helps in some way, either way Keep in Touch.
Posted 3/13/2013 12:18 AM (GMT -8)
I have CFS/FM and several other chronic conditions. I start to feel extreme fatigue and an increase in the fibro pain right after the holidays. The changes in weather make me very ill at times.

I then have strong reactions to pollen during spring months and don't start to feel better until May, so I know exactly what you're talking about. The CFS in not a seasonal illness but the increase in active symptoms seems to be for some.

I had my first experience with ocular migraines last June. I've had four episodes and they really scared me. I had an MRI, CAT scan, and several other tests to rule out stroke and heart problems. Also had complete eye exam with an opthamologist.

I still don't understand these migraines. No pain with these kinds like I have with regular migraines, but some really weird zig-zag shapes and colors. I hope you feel better soon.

Post Edited (memaw12) : 3/13/2013 2:21:06 AM (GMT-6)

Posted 3/13/2013 5:30 PM (GMT -8)
I've been reading about the ocular migraines and they seem to be a different cause from the usual painful ones.  They are more like seizures.  They cause visual disturbance that lasts for 10 to 30 minutes.  Mine last about 15 min.   The images start small and in one eye, then enlarge to cover both eyes.  You see colored patterns and/or flashing lights and can't see well for a few minutes. 

I always lie down until it passes and keep my eyes closed but you can see it just as well because it's caused by electrical misfiring in the brain.  I had never heard of these till last summer when they started. Now, I've had four. I don't know why they call them migraines.

 I had all kinds of tests down to rule out other causes but it's still a scary experience. There's no real pain involved, thankfully, but it does leave me tired and weak with a mild headache for hours.  Then, it recurs a few days later and may not appear again for many months.  Very weird.  I looked this up online and they had pictures of how the images look. Very accurate.

Posted 3/13/2013 7:06 PM (GMT -8)
Hi & welcome to the forum. I have had ocular migraines for years. From about 11 on I had very bad migraines. Full blown headache with all of the bells & whistles. I had auras, fatigue, nausea, vomiting for about 48 hours. When I reached my early 20's I no longer got the headache but still had all of the rest of the symptoms. Now, I am 61, I get the aura but very little else. Sometimes I get really groggy & fatigued for about 24 hours but I have to say much better then what I used to have. When I was young I had big black spots in front of my eyes, spots that I could only see around the edges of. As the years went by the images have changed to electric zigzags that start small & then get slowly larger until they go out of my periphreal vision. I will get an ocular migraine about once every two months or so. Simetimes, I will get several in a row. No rhyme or reason.

Some people have food triggers so you might keep a food diary for awhile & see. I take dark chocolate for my CFS & it doesn't seem to bother me but occasionally milk chocolate will bring one on. Some people have problems with coffee, I don't but it is a trial & error thing.

Hope this helps, hugs, Denise
Posted 3/13/2013 7:29 PM (GMT -8)
Denise,  Thank sounds just like my experiences.  I used to have very bad migraines until a few years after menopause.  Now, it's the ocular migraines.  I also have CFS and FM, also multiple chemical sensitivities.

I wonder if there is a connection to the fibro?  Mine seem to be coming in clusters.  The first one was at the end of May, last year, and then another one two days later.  Then, no more until a month ago followed by another one about 4 days later.  I guess they're not harmful.  Mine have been triggered by lights. Three times I was watching tv or on the computer and the other was after looking at a light fixture that we were changing bulbs in.  I'm very photosensitive.

Post Edited (memaw12) : 3/13/2013 9:33:22 PM (GMT-6)

Posted 4/26/2013 6:18 AM (GMT -8)
Hi there. Have a read of my past posts, the ones i have actually strated. i suffer with chronic daily migrianes, cfs and daily visiual disturbance. What you say sounds a tad like me. I have visual disturbance all day everyday (not a tupical aura) allthoguh when i was 14 thats how my vision started.

All my vision problems started by lighting, and still to this day the light is a major triggure
It might help you with your story if you read mine
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