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Chronic Fatigue Syndrome
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Posted 3/21/2013 11:15 AM (GMT -8)
My name is Megan and I'm 14 years old. I have had chronic fatigue syndrome since I was about 8, but only recently got diagnosed. 24 hours a a day I feel very sick, some days I feel so bad I can barley get up. I am also very tired, have joint/muscle pain and have 'foggy' stages. If anyone knows any NHS treatment that helps nausea it would be much appreciate, thankyou :)
Posted 3/21/2013 3:48 PM (GMT -8)
Hi Megan, welcome to our forum cool I am sooo sorry you have to be this sick so young, but I hope you have a Dr. who know CFS is real and will help you treat it. Yoga is one of the best treatments for fatigue, irritability, muscle aches and pains and gastro issues, constipation, diarrhea, nausea etc. its Good stuff, just remember not to overdo it. Other things you can try for stomach issues are bland diets or try the food allergy tests; First stop eating gluten, wheat, dairy and soy, these are the main ones that cause problems and it means A Lot of Label reading. Then after 30 days off of them, add them in 1 by 1, eat gluten for a week, if you don't have any reaction try wheat and so on. Oh yeah, medications, these can cause All kinds of intestinal problems, even the stuff we Have to take, I have 4-6 Dr.'s depending on the month and I take between 7-13 medications depending on the issue shocked so I know a thing or two about my intestinal tract sad Hopefully you never have to take that many meds but the other stuff I use; fiber capsules and fiber powder because I can't eat wheat or bran, senna tea, I eat an apple a day(seriously)antacids, sparingly, I have a prescription for Zofran, no fat, no grease, meat is great as long as its cooked well, go easy on the dairy even if you aren't intolerant it just hits that acid and starts roiling(yes, thats a word) Ginger Ale! and crackers, i can't have it anymore mad
Wow, I guess I've gone on long enough, again Welcome and Keep in Touch
Posted 3/23/2013 12:07 AM (GMT -8)
Hi Megan & welcome to the forum. I am really sorry you are so sick at such a young age. I know how debilitating CFS can be. I hope you will come back often & let us know how you are doing. I have a grandson your age, he is a cardiac patient so I know how hard it is to be young & ill. I am happy to see that Recoveryme2day had some good information about nausea. I don't get nausea too often so don't have to deal with it. Are you on any medications? Do they help you? How is your sleep? Keep us posted. Soft hugs, Denise
Posted 3/26/2013 11:49 AM (GMT -8)
Sorry for the late reply, internets been down :( thank you very much for the reply recoveryme2day, I will try the diet, hopefully will work :) sorry you have to take that many tablets, do any of them work? Jewelrylady thank you for your reply,I'm not on any meds at the moment but tried many, none working :( I don't sleep well, can't get off, I wake in the night and get nightmares :( I hope your grandson gets better, best wishes :) Megan
Posted 3/28/2013 6:15 AM (GMT -8)
Hi Megan, Sorry you're feeling so ill.My daughter has CFS and became ill at age 8. She has found taking Magnesium Citrate helps the nausea. She also takes Feverfew for her headaches. You could also try Lemon Balm(Mellissa) tea. She was prescribed Buccastem which is an anti sickness drug but only takes it when she is physically sick.Hope this helps. Take care Estelle x
Posted 3/28/2013 1:48 PM (GMT -8)
Thank you very much bunjong :) I will try those tablets, anything to help :D despite how bad the sickness is, it's nice to know someone else is going through the same thing as me, sorry bout your daughter though. How old is she now? Has she had any treatment that worked?
Posted 3/30/2013 4:57 AM (GMT -8)
Hi Megan Sorry to tell you that my daughter is now 34 years old. Unfortunately she was not diagnosed for about 6 years and was treated really badly by all the medical profession. She still has no support. She has tried many different treatments, some very expensive, but none of them helped. Don't despair, she's been one of the unlucky ones and I'm sure you will feel better in time and just remember that you're not alone. Take Care. Estelle XX
Posted 4/1/2013 3:31 AM (GMT -8)
I hope your daughter gets better treatment :) I have started to take those tablets that you recommend, not noticed a different but only just started taking them, fingers crossed :) I hope your daughter gets the support she needs, good luck x
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