Have CFS - new to this forum

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peachgamom
New Member


Date Joined Mar 2013
Total Posts : 5
   Posted 3/24/2013 5:48 PM (GMT -7)   
I am 43 years old and started having cfs symptoms last year after recovering from pneumonia. In December my gp indicated she felt I had cfs after I had all sorts of testing to rule out other conditions including a pet scan to rule out lymphoma because of swollen glands, overwhelming fatigue and night sweats. I also have inflammation markers that show up with monthly testing and an abnormal kappa/lambda ratio which is part of a myeloma screen. All other tests relating to myeloma have come back normal.

I have taken a break from seeing doctors to pursue this the last couple of months so I can concentrate on learning what diet is best for inflammation, the most effective exercise and other lifestyle changes.

Has anyone heard of pneumonia triggering cfs?

Carenpolar
Veteran Member


Date Joined Mar 2007
Total Posts : 672
   Posted 3/27/2013 1:51 PM (GMT -7)   
Welcome to this site.  A lot of us take Magnesuim  Malate. It can be found at Hi-health ,it is online or in their stores.
I was having trouble with tiredness and being unable to remember words, etc. This medicine is amazing. just in 3 months I have improved.......any health  store may have it.
 
Jewlery lady takes it also.
 
 
hugs, Caren

peachgamom
New Member


Date Joined Mar 2013
Total Posts : 5
   Posted 3/28/2013 4:31 PM (GMT -7)   
Caren - thanks for the welcome! I will have to check out the Magnesium Malate. I think reality has set in over the last couple of weeks and the fact that each day is unpredictable as to whether it will be a good day or not is sobering. Question to you or anyone that wants to reply: Do you see an immunologist or an infectious disease Dr to follow up on CFS? My GP thinks the immunologist and the rheumatologist I had been seeing thinks an infectious disease Dr.

Recoveryme2day
Regular Member


Date Joined Jul 2012
Total Posts : 335
   Posted 4/2/2013 1:07 PM (GMT -7)   
Hi peachgamom, I would see any doctor that would agree to treat me, which right now is none, but for you i would see both of them, just be prepared for two completely different ideas of how, why, when and what do we do now. But you can choose which one works best for you and if it doesn't work you can go back and try the other one. :-) Keep in Touch.
Crainiotomy Lg. Meningioma Dec.02, Bi-Polar 2004, SMI 06, Gluten/Wheat/Dairy Intolerance, IBS 06, Migraines w/pseudo-seizures 07, Dev. Septum Sur. Sept.07, 2nd Men./Tumor Gamma Knife Rad. Dec.08, Radical Hysterectomy Sept.09 w/instant Menopause, Fibromyalgia 09, Disability since 09, EBV/CFS 11,Vomiting/Multiple Ulcers, Vertigo 12, Chronic Fatigue Moderator 2013.No meds list I ran out of space.

ladybugdreams
Veteran Member


Date Joined Jun 2008
Total Posts : 726
   Posted 4/9/2013 7:34 PM (GMT -7)   
peachgamom, welcome, sorry it has taken me so long to reply I have been under the weather with CFS. It takes me down a lot. I agree with Recoveryme2day, see any Dr who believes that it exists & will treat it. My regular GP takes care of mine. It is more of a trying to find what works for you for symptoms then anything else. There are no medications specifically made for CFS but some can help with our symptoms. Such a bummer!!!

I have never heard of anyone getting this illness from pneumonia but I can't say for sure because no on knows why we get it. Mine just came on out of the blue but they think it could be from a herpes virus. I have always gotten fever blisters on my lip & had for years before I came down with CFS. I was just working one day & started to feel dizzy & tired & it went down hill from there. I am now disabled with it & Fibro.

Before I was first dx'd I took a break from Dr's too. I had just had enough & needed a break. I had been through so many tests & specialists that I was done. The break helped me to recoup some & then I went back. Now I see my Dr about every 6 months for my illnesses & I am so fine with that.

Take care of yourself & I hope you will come & let us know how you are doing or join into our forum when you feel at all up to it. We go in spurts, each of us, due to our illnesses. Soft hugs, Denise
Fibromyalgia-dx'd: 2006, ME/CFS-dx'd: 2006, Holt-Oram Syndrome dx'd 1975, reduced lung capacity dx'd 2009, nasal allergies, food allergies, depression (lifetime problem) IBS, neuropathy in hips

I have 4 children & 7 grandchildren.

As apples of gold in silver carvings is a word spoken at the right time for it. Prov. 25:11

LIVINGWELLCHURCH
New Member


Date Joined Apr 2013
Total Posts : 1
   Posted 4/12/2013 11:51 AM (GMT -7)   
I suggest reading the Virgin Diet book.  Even if you don't have any weight to lose, this diet can change your life when dealing with any kind of chronic pain or fatigue! cool

pocketfull
Regular Member


Date Joined Mar 2012
Total Posts : 350
   Posted 4/17/2013 9:29 AM (GMT -7)   
HI Peach and welcome to you. Has any doctor talked to you about fibromyalgia? That would be a good reason to see a rhumy doc. Actually you can test yourself and have your hubby or daughters be a second opinion. Do you have places on your body that is very sensitive to touch? Mine started in my feet 20 years ago. If a person came up behind me an just touched my shoulders I could not help it I would burst into tears it would hurt so much. My chest, under my collar bone was very sore to touch. Also, pressing on ribs hurt so much to touch. I suggest you visit the fibro forum and do more research too. Its not always easy to diagnose, but if you have fibro. then you nearly ALWAYS have CFS. For a long time it was hard to find a doctor who believed in fibromyalgia. That has changed. You can find tons of info. on line...I look forward to hear more from you....regards...Cathy
I am 62 years old. I was diagnosed with clinical depression 30 yrs. ago. Followed by: Fibromyalgia, spinal stenosis, arthritis, Neuropathy in both feet and lower legs for 8 years. Recently have neuropathy like burning in both hands and arms, possibly from damage to my neck.. I was diagnosed with diabetes about 4 months ago so my neuropathy is still diagnosed as idiopathic. Fibro and CFS.

ToddPaul
Veteran Member


Date Joined Nov 2012
Total Posts : 884
   Posted 4/17/2013 12:14 PM (GMT -7)   
Fatigue coupled with night sweats sounds like Lyme to me. If the sweats are drenching then almost definitely is Babesia which is a parasite that also comes from being bitten by a tick. Look into getting tested by a lab called IGenex in Palo Alto, Calif. They are the best for the Western Blot. I wouldn't trust other labs. Too many false negatives.

peachgamom
New Member


Date Joined Mar 2013
Total Posts : 5
   Posted 4/17/2013 3:35 PM (GMT -7)   
Thanks to all for the helpful information and replies.  I have started taking Magnesium Malate over the last two weeks and notice a difference which is really good.  Next I will check out the Virgin Diet.  I am avoiding pro-inflammatory foods and most gluten.  I see my GP in a few weeks for a check up and will ask about getting the lyme test IGenex.  I have also heard that the general lyme test is not reliable which is the only test that I have.  She usually does an EKG once a year as part of a follow up for my blood pressure.  I am interested to see if my EKG has changed as I read an article that the graphs looks different with CFS, not sure if this is correct, or not. 
 
I am crazy busy at work and trying to wear myself out by getting my sleep and eating well.  When my sinus symptoms are not acting up, it seems that the CFS is better although I find I still have to pace myself.  All for now, L.

littlemama33
Regular Member


Date Joined Oct 2011
Total Posts : 54
   Posted 6/2/2013 11:42 AM (GMT -7)   
I got my CFS after a bout with pneumonia too. It is the only thing we can come up with that started it. Just wanted you to know you arent alone.
Sherry

fibro, chronic fatigue, rls, ibs, depression, insomia

peachgamom
New Member


Date Joined Mar 2013
Total Posts : 5
   Posted 6/15/2013 4:30 AM (GMT -7)   
it is good to hear from you Sherry!  I am glad to hear that there are others that had pneumonia in which it triggered CFS.  I never had mono or any other viruses that usually trigger but then I read bacterial infections can also cause it.  I know it was the pneumonia because after I recovered from the pneumonia, the fatigue set in and I start having some new/unusual symptoms.  All started after having pneumonia in the beginning of 2012. 
 
Lesley

Recoveryme2day
Regular Member


Date Joined Jul 2012
Total Posts : 335
   Posted 6/30/2013 8:02 AM (GMT -7)   
I forgot to add mine was triggered by Mono or the Epstein Barr Virus, even though I never had mono as a teenager, the Dr.s aid its a common and easy to get as a cold, so pneumonia's not that far off, neither is herpes, their all viruses that hang around even after we tried to antibiotic them to death. I also have sinusitus, I saw that you mentioned it, i take Sudafed(yes, its the bad meth one)But I its the only thing the shrinks my sinuses. mine get so bad my teeth start hurting, I've been to the dentist twice because I thought I had cavities and it was just nerves in my teeth. I also get ear infections and sinus infections on a regular basis if I don't take it. I also have to clean my out every 2 weeks. Hopefully your sinus are not that bad but Fibro and CFS both cause widespread swelling, I just wanted to share that because I know there's a widespread "shame" thing about it, but its just like every other we take, herbal or RX, its up to us to take it responsibly and tell somebody if we cant. Keep In Touch.
Craniotomy/Meningioma 12/02,Bi-P. 04,SMI 06, Glu./Wh./La. Int.,IBS 06, Mig. w/ps.-seiz. 07,Dev.Sep.Sur. 9/07, 2nd Men./Tu. Gam. Kn. Rad.12/08, Rad. Hyst. 09/09, w/Meno, Fibro. 09, Disab. 09, EBV/CFS? 11, Vom., D + C w/Vertigo 12, C-diff, spas. col., Chr. Fat. Mod. 13, Lots of Meds they ch. often + herbal meds + alternative when I can afford it.

m9ven
New Member


Date Joined Jul 2013
Total Posts : 2
   Posted 7/18/2013 6:26 AM (GMT -7)   
I'm not sure what's happening to me but I have a history of severe anxiety and OCD, but following hospitalisation for cellulitis in sept 2012 I can hand on heart say I have never felt as bad. The fatigue makes me upset, I have occasional chills, general aches,

Question I had was regard to swollen lymph glands and how common they are in this condition. I know the CDC says its a feature but just wanted to see what it's like in reality?

This condition has literally knocked me out I can relate to the hit by a truck feeling. I hope slowly i will get better. But feel I'll never 100% recover. Its had such a profound effect on me that I've changed as a person too much less stressed about silly arguments at home etc and don't like confrontation with people just so more chilled out now

ladybugdreams
Veteran Member


Date Joined Jun 2008
Total Posts : 726
   Posted 7/19/2013 12:36 AM (GMT -7)   
Hi M9ven & welcome. Swollen Lymph glades are very common with this illness. It varies with each person how much they are affected, some have alot of problems with this & others have none. For me, it is not a major problem, somedays I can tell they are swollen & burning but most days nothing. Are you having a problem? If you are & are worried about it have your Dr check it out. I always check with my Doctor just to be on the safe side. But just to reassure you, it is something seen all of the time with CFS.

Isn't it funny how a chronic illness can put things into perspctive? I have become less anxious about things. I used to think my house had to be spotless or I was not a good housekeeper, lol, how I have changed. People should see my house now, lived in is how I like to call my house now. The energy trade off for a clean house is just too much to give & I just don't physically have it to give.

I hope you are having a good day, be gentle with yourself, hugs, Denise
Fibromyalgia-dx'd: 2006, ME/CFS-dx'd: 2006, Holt-Oram Syndrome dx'd 1975, reduced lung capacity dx'd 2009, nasal allergies, food allergies, depression (lifetime problem) IBS, neuropathy in hips

I have 4 children & 7 grandchildren.

As apples of gold in silver carvings is a word spoken at the right time for it. Prov. 25:11

kayla33
Regular Member


Date Joined Jul 2013
Total Posts : 86
   Posted 7/23/2013 3:59 PM (GMT -7)   
Swollen lymph nodes, sweating, and fatigue along with CFS are symptoms of Lyme and Babesia. Many test positive for it after having these symptoms and a CFS or Fibro diagnosis for a while.

Chlamydia Penumoniae (CPN), is sometimes transmitted as well with Lyme.

Research these and follow the symptoms and info to see if its something you need to be tested for.
Newly registered contributer/member, but long time lurker/reader.
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