Possible CFS and i'm new to this forum!

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Kitty Lizzy
New Member

Date Joined Apr 2013
Total Posts : 9
   Posted 4/2/2013 4:49 PM (GMT -6)   
Hi :)
I am 21 (going on 22) and diagnosed with Undifferentiated connective tissue disease, fibromyalgia, hyperflexibility syndrome, ibs, and tachycardia (and that's just the physical stuff!). I'm thinking CFS may be making its way into the list. I'm constantly tired, even from the moment i wake up, i am confused easily (though that may be due to one of my psychiatric issues), and my memory is shot. Shopping today wore me out so much that i couldn't cook the meal i shopped for. i have random pains but that comes from the fibro i guess.... Should i ask my doctor about CFS? its not the UCTD because the most recent tests show that the ANA levels are normal.... and there's no swelling anywhere..... I was recently put on new medications but i was easily worn out before those.

Regular Member

Date Joined Jul 2012
Total Posts : 335
   Posted 4/4/2013 12:00 AM (GMT -6)   
Hi Kitty, Welcome to our litlle corner of the world. Wow, you have A Lot going on smhair And here I thought that was just me smilewinkgrin My advice would be not to worry about CFS just yet, you have several diagnosis that can account for tiredness, fibro, tachy and ibs jump out at me. I assume since you know what's going on you are being treated so I would give the treatments some time to work. If the tired, groggy feeling persists by all means go to your docs and tell them, it could be as simple as a medication that isn't working. Best Wishes and Please Keep in Touch.
Crainiotomy Lg. Meningioma Dec.02, Bi-Polar 2004, SMI 06, Gluten/Wheat/Dairy Intolerance, IBS 06, Migraines w/pseudo-seizures 07, Dev. Septum Sur. Sept.07, 2nd Men./Tumor Gamma Knife Rad. Dec.08, Radical Hysterectomy Sept.09 w/instant Menopause, Fibromyalgia 09, Disability since 09, EBV/CFS 11,Vomiting/Multiple Ulcers, Vertigo 12, Chronic Fatigue Moderator 2013.No meds list I ran out of space.

Kitty Lizzy
New Member

Date Joined Apr 2013
Total Posts : 9
   Posted 4/4/2013 12:06 PM (GMT -6)   
i was thinking it could be a few of my meds... like the klonopin but its a really low dose (.5 mg 2x daily) and it COULD be the zyprexa (15mg 1x daily) or the gabapentin (600mg 2x daily) but all of those are vital to my well-being

Veteran Member

Date Joined Jun 2008
Total Posts : 732
   Posted 4/9/2013 8:32 PM (GMT -6)   
Kitty Lizzy, Welcome to the forum, nice to meet you. My daughter has Mixed Connective Tissue Disease & Fibro. I have Fibro & CFS. Both of us are always very tired for different reasons. I, also, think it could be your pills. You need to find out if any of these are the problem before you try to add something else. It could be CFS but this is an illness that is found by excluding anything else so finding these things out will get you further along in the process. Once you have ruled these things out then look at CFS. It wouldn't hurt to have your Dr on board with what you are doing so he can rule out anything else. Have you had your iron or Vit D tested? These can cause fatigue. I hope you find out what the problem is but I also know it is hard to just believe that the illness you have is all there is. I searched & searched even after finding out I have the Fibro & CFS, as time went on, though, I came to terms with it. Keep us posted as to what you find out, I hope you don't have CFS because there is no help out there for it. Many gentle hugs, Denise
Fibromyalgia-dx'd: 2006, ME/CFS-dx'd: 2006, Holt-Oram Syndrome dx'd 1975, reduced lung capacity dx'd 2009, nasal allergies, food allergies, depression (lifetime problem) IBS, neuropathy in hips

I have 4 children & 7 grandchildren.

As apples of gold in silver carvings is a word spoken at the right time for it. Prov. 25:11

Kitty Lizzy
New Member

Date Joined Apr 2013
Total Posts : 9
   Posted 4/10/2013 2:43 PM (GMT -6)   
My vitamin D is finally up to exactly the minimum of the normal range... haven't had iron tested
Undifferentiated Connective Tissue Disease 2012, Fibromyalgia 2008, IBS 2011, Tachycardia 2011, Hyperflexibility 2012
Schizoaffective 2009, Borderline Personality 2009, ADHD combined type 1998, Aspergers 2007
AM: Concerta 54mg, B12 1,000mcg
2x: Inderal 10mg, Klonopin .5mg, Plaquenil 200mg, Zantac 150mg, Neurontin 600mg
PM: Sprintec, Zyprexa 15mg, Desyrel 150mg
Saturday: D3 1.25mg
New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, September 24, 2018 8:44 PM (GMT -6)
There are a total of 3,006,277 posts in 329,320 threads.
View Active Threads

Who's Online
This forum has 161825 registered members. Please welcome our newest member, TheRayf.
295 Guest(s), 10 Registered Member(s) are currently online.  Details
HeartsinPain, mattamx, cjgk, A Yooper, Girlie, Healing98, Saipan Paradise, Normal59, straydog, PDXtransplant