Chronic EBV?

Hey everyone I'm new here. I think I have chronic EBV? Well I know I got EBV in November but now it is back. I feel terrible. As I know most others do on here. It hits me really bad neurologically. Is there a special doctor that I can see for this? Are there any treatments for it? I can't seem to find many answers on the internet. Thanks

Carson41, I don't have EBV but I still wanted to welcome you to the forum. I can relate because I know how hard it can be to deal with a chronic illness. Like CFS, EBV is an illness that you have to look at each of the symptoms & find some relief from it. Finding a Dr who believes in your illness can be hard, so when you find one, hang on to them, lol. My PCP does not have much knowledge about CFS but does treat my Fibromyalgia, I have to find what help I can from others on the forums who know about CFS. Take care of yourself & come back to let us know how you are doing. We love to share what we find to help. Gentle hugs, Denise

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Fibromyalgia-dx'd: 2006, ME/CFS-dx'd: 2006, Holt-Oram Syndrome dx'd 1975, reduced lung capacity dx'd 2009, nasal allergies, food allergies, depression (lifetime problem) IBS, neuropathy in hips

I have 4 children & 7 grandchildren.

As apples of gold in silver carvings is a word spoken at the right time for it. Prov. 25:11

Hi Carson
I think I have EBV also. In Aug. 2012 I was affected horribly by a virus. My digestive system shut down and I could barely walk due to the neurological symptoms. My MD thought it was from West Nile which I tested positive for. It could have been or it could be EBV which a naturopathic Dr. found to be positive (IGg) on a blood test. I was sick for 5 months straight and then started to improve. Over the first 4 months I found a naturopathic Dr. who did IVs of vit C. I also have internal tremors and every time I did the IV my tremors would go down and I would feel better. The IV also had magnesium and B vitamins. A Meyer's Cocktail is the same thing with less Vit. C but I was doing 50 g of C. When I felt well enough (fatigue was not so bad and the tremors were less and I could walk normal again) then I stopped the IV. I improved a ton but then got the flu 4 weeks ago and was down and out again. That is when I did the blood test for EBV. Now my Naturopathic Dr. said that I need continue to support my immune system. He gave me 3 different supplements (herbal) that will help my nervous system and I also take Calm magnesium which has helped my tremors and muscle twitching I started getting and I take 5000 mg of vit C (ascorbic acid) daily. This is the shortened version of what I have been through and tried because there were many herbs for my nervous system along the way but it seems that boosting the immune system is the best thing to do. I also quit eating gluten and too much sugar. I don't drink caffeine or alcohol either. Good luck.

[Hello did you find o ut if it was ebv xausing tremors? Have your trenors improved?

quote="Kimmy1"]Hi Carson
I think I have EBV also. In Aug. 2012 I was affected horribly by a virus. My digestive system shut down and I could barely walk due to the neurological symptoms. My MD thought it was from West Nile which I tested positive for. It could have been or it could be EBV which a naturopathic Dr. found to be positive (IGg) on a blood test. I was sick for 5 months straight and then started to improve. Over the first 4 months I found a naturopathic Dr. who did IVs of vit C. I also have internal tremors and every time I did the IV my tremors would go down and I would feel better. The IV also had magnesium and B vitamins. A Meyer's Cocktail is the same thing with less Vit. C but I was doing 50 g of C. When I felt well enough (fatigue was not so bad and the tremors were less and I could walk normal again) then I stopped the IV. I improved a ton but then got the flu 4 weeks ago and was down and out again. That is when I did the blood test for EBV. Now my Naturopathic Dr. said that I need continue to support my immune system. He gave me 3 different supplements (herbal) that will help my nervous system and I also take Calm magnesium which has helped my tremors and muscle twitching I started getting and I take 5000 mg of vit C (ascorbic acid) daily. This is the shortened version of what I have been through and tried because there were many herbs for my nervous system along the way but it seems that boosting the immune system is the best thing to do. I also quit eating gluten and too much sugar. I don't drink caffeine or alcohol either. Good luck.