Do I really have CFS/ME?

Hi all, I'm a year 12 student at the moment who has been diagnosed with CFS/ME for six months now. The problem is I'm not really sure if I have it. When I was little I used to fake being sick to get off school and now i can't tell whether I'm just faking or if I really AM as bad as I say. I'm tired, a lot, sleeping about 18 hours a day when I don't HAVE to be anywhere else. I ache, I get headaches, my joints crack and seize up. I get fevers easily, used to get stomach aches a lot, and when I do any activity my heart starts POUNDING. This could just be because I've had (I think) CFS for five years and haven't done any physical activity in that time. Also, at school I can't concentrate and when I do work i can feel that my brain isn't 'working' the same, not as slick.

These are all pretty accurate with CFS, but when I need to I know I can get up, go out with friends, run around (literally), go camping, travel overseas, etc. I'll pay for it later with sleeping but I can. Honestly I wouldn't be that bothered by it except for the problems I'm having at school. Because I'm skipping so much school I've fallen way behind, and if this is just a mental thing where I'm just lazy (really I am lazy but THAT lazy?) then this is seriously screwing up my future for no reason, and hurting my mum.

Arrrh, Sorry about the blurting all this out. I just don't know how to get it out. Help please, does this sound like I really have CFS? I'm desperate. Once I KNOW I'll feel better but this doubt is killing me, and I'm hating myself for it.

Hi Demaria, you are very welcome here, asking questions is how we help each other and sometimes our doctors find answers. You said year 12 of school, in the UK(?) does that mean you're in college or still in regular school? I am just trying to figure out your age because if you're only 17 or even 19 you're still in puberty, physically, mentally(they have figured out recently that our brain's don't stop growing until our bodies do, DUH)or emotionally and while the symptoms do fit CFS they also fit the extreme parts of puberty. I hope you've seen more than one doctor and had a whole bunch of tests to get to your diagnosis, I know your medical system is totally different than ours, but a family doctor or a pediatrician isn't qualified to treat CFS and it didn't sound to like you were getting any treatment and yes you probably already got the "there is no treatment for CFS" speech but a specialist can treat the symptoms if they admit it exists. I'm not saying you don't have CFS the age and puberty are normal issues that should be factored into your treatment plan and I would ask to see a neurologist for a second opinion and treatment. I hope this was helpful and not confusing, Keep in Touch, you're not the only young person to get this illness and you will find a lot of support here even from older ladies like me

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Craniotomy/Meningioma 12/02,Bi-P. 04,SMI 06, Glu./Wh./La. Int.,IBS 06, Mig. w/ps.-seiz. 07,Dev.Sep.Sur. 9/07, 2nd Men./Tu. Gam. Kn. Rad.12/08, Rad. Hyst. 09/09, w/Meno, Fibro. 09, Disab. 09, EBV/CFS? 11, Vom., D + C w/Vertigo 12, C-diff, spas. col., Chr. Fat. Mod. 13, Lots of Meds they ch. often + herbal meds + alternative when I can afford it.

I am alot older than you, but you sound just like me and I have CFS. I sometimes can do lots of things but I end up paying for it by getting achy or sick or whatever u call this. Its now all in your head...you sound like u have CFS.