Mono Again????

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Veteran Member

Date Joined May 2008
Total Posts : 705
   Posted 5/22/2013 1:24 PM (GMT -6)   
It is crazy, I had mono when I was 16, I remember not being able to get up off of the sofa, I would use the powder room (in the den all on the same floor) and that would make me so exhausted, I had to lay back down and sleep for several hours. All I remember doing is sleeping.

Then I got Lyme, had to have IV antibiotics for it, and I also have Fibro. So I am always tired anyway, then last year I ended up in the hospital feeling terrible and so tired, they told me I had mono. Then about a month ago I went to the doctor, he told me I had the flu, but guess what? The symptoms never really went away, and then all of the sudden my throat was killing me, I though I had strep throat, then another doctor from the same practice told me I had mono again. I then took my son, 2 days ago to the ER, he had a high temp, they did blood tests and sure enough, he has mono again (he had it in Sept when school started). I just don't think it ever seems to leave us. Right now as I type, I feel almost like I'm looped up on something, and I woke up at 12PM. I've been up for 2.5 hours, put a load of laundry in and guess what? I am already needing a nap. It's pretty frustrating. I am not working right now, but I'm filling out apps like crazy. My unemployment is done next week. It's sad because I have a few days here and there where I actually feel good, but then bam....the whole cycle starts again. Anyway, I don't know if I am venting or what, I know that others go thru this too.

Regular Member

Date Joined Jul 2012
Total Posts : 335
   Posted 5/28/2013 10:35 AM (GMT -6)   
I'm sorry you are feeling so bad and even more so that I'm the first person to reply to you from this forum. Not everybody has EBV/mono but there are a lot of us that do. I totally understand your frustration and am very grateful I didn't pass it on to my teenage son. So have these doctors done anything for you except antibiotics? You should try to get them to talk to each and come up with a treatment plan, if they can't it's time to start looking for another doctor(I'm still looking unfortunately). I hope your son is doing well and there are a couple of sites for EBV and that has a list of docs who specialize in CFS. Good Luck and Keep in Touch.
Craniotomy/Meningioma 12/02,Bi-P. 04,SMI 06, Glu./Wh./La. Int.,IBS 06, Mig. w/ps.-seiz. 07,Dev.Sep.Sur. 9/07, 2nd Men./Tu. Gam. Kn. Rad.12/08, Rad. Hyst. 09/09, w/Meno, Fibro. 09, Disab. 09, EBV/CFS? 11, Vom., D + C w/Vertigo 12, C-diff, spas. col., Chr. Fat. Mod. 13, Lots of Meds they ch. often + herbal meds + alternative when I can afford it.

New Member

Date Joined May 2013
Total Posts : 1
   Posted 5/29/2013 5:36 PM (GMT -6)   
Remember to change your toothbrush and stuff like that constantly too. Cause the bacteria lingering on it could very much keep coming back every time you use it. I hope you feel better soon. Sending prayers.
Fishie fishie fishie! -Darla

Veteran Member

Date Joined May 2008
Total Posts : 705
   Posted 5/30/2013 10:08 PM (GMT -6)   
Hello, no problem, I know sometimes people don't see posts for awhile. I go my blood tests done today, my doctor now thinks its parvo. Hopefully I will here something soon. I will be back soon.
I will be changing my toothbrush too.


Veteran Member

Date Joined Aug 2007
Total Posts : 2204
   Posted 6/7/2013 3:10 PM (GMT -6)   
I feel your pain. I had mono in college and had to drop out for a semester. I remember being pretty much housebound for about three months.

Last summer, I was feeling SO fatigued. We went on a short trip for the Fourth of July and I spent most of it sleeping in our hotel room. Finally went to the doctor and my EBV levels were through the rough. It was a relief to finally know what was causing the fatigue but has been very frustrating knowing there's no clear way to address it.

I try to rest as much as possible, keep my stress level low, and I'm on the autoimmune Paleo diet. These things seem to help, but there are still good days and bad days. I do feel thankful, though, that I've been able to continue to work and do SOME stuff socially with my family and friends.
Diagnosed with ulcerative colitis spring 1999. Have been in remission for years with only a few minor blips. Last two scopes showed no inflammation at all.

Maintenance dose sulfasalazine. Probiotics, vitamin D, fiber supplement and fish oil caps. George's aloe vera juice and l-glutamine for gut healing. Currently using autoimmune Paleo diet.
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