Posted 6/15/2013 9:56 PM (GMT -6)
Wackers, for me my CFS is worse then my FM, it is what keeps me from working or really having much of a life, so it is my primary illness. I receive disability for both FM & CFS. I had to quit my job, that I loved, because I just couldn't do the job anymore. I was so tired & sick, I just wanted to sleep all of the time. I now take Tizanidine, a muscle relaxer & Trazadone, both for sleep. Since I sleep better I am a bit more alert during the day depending on if I am flaring or not.
My Dr is not very knowledgable about CFS either. I have had to learn all I can myself but like anything else you have to sift through the muck to find answers. There are a lot of people who think CFS & FM are close if not the same thing but they are not. CFS is now thought to possiblely be an autoimmune disease, the latest research is going in that direction. Also, there is quite a bit of interest in mitochondrial research. After reading about this I started taking Co Q10. Our mitochondria make a lot less of this then normal mitochondria. I do think I have notice a bit more energy from this.
I take magnesium malate it seems to help with energy, memory & cognative issues.
As far as holding down a job only you can answer that. If you can, that is great & just keep on with it. If I could I would, I loved to work. I don't think working can make CFS worse, it is what it is, mine has not gotten any worse or any better. Sorry to say that but I have gotten used to my life as it is. I try not to get too down because of it. So, keep working, spend your energy on your family, I do I live with my daughter & two garandchildren. Everything else do as you have the energy for. My daughter is also ill so we do things like cook once, eat twice or maybe three times. Empty the dishwasher as soon as it is done so it is ready for dishes. We make one big salad per week, ect. just to name a few.
I hope this helps some. Take care of yourself & come back often. Gentle husgs, Denise
Fibromyalgia-dx'd: 2006, ME/CFS-dx'd: 2006, Holt-Oram Syndrome dx'd 1975, reduced lung capacity dx'd 2009, nasal allergies, food allergies, depression (lifetime problem) IBS, neuropathy in hips
I have 4 children & 7 grandchildren.
As apples of gold in silver carvings is a word spoken at the right time for it. Prov. 25:11