Dexamethasone for Pc caused CFS, any ideas on SEs?

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quincy17
Veteran Member


Date Joined Feb 2013
Total Posts : 1280
   Posted 6/17/2013 10:21 AM (GMT -7)   
Am now Rxed to dexamethasone, SEs? I am on the PC board but I thought you would have more info on this corticosteroid. Took my first 5 mg tablet on Sat am, first time I've felt spunky in 8 months, otherwise, bedridden 80% of the time. Im worried about the long list of SEs though, what's your take?
Age 52 at time of Dx, PSA 511, Gleason 9, tumor inoperable, and HT advised for maintenance.
Current age 58, PSA 4.5 and still on HT . . . Lupron 30mg every 4 months with accompanying blood work including fresh PSA, 50 mg Casodex daily. CP drugs are #30 90 Mgs Cymbalta 1/d #240 Oxycodone IR 1-2 every 4 hours, #120 Fentora 600mcg 4/d #90 Adderall IR
CP syndromes: OA, Fatigue, muscoskeletal pain et

Post Edited (quincy17) : 6/17/2013 11:30:47 AM (GMT-6)


Minnesota
Regular Member


Date Joined Jan 2012
Total Posts : 136
   Posted 10/14/2013 7:50 AM (GMT -7)   
Quincy-This is very interesting to read.  I have had CFS for almost 3 years now, and have tried a lot of supplements and meds to give me the best quality of life possible w/in the boundries of safety.  I have had success with an ADD medication called Vyvanse, and also with saline IV's.  Those bring me to about 75-80% of my pre illness levels of functioning. My doctor just brought up dexamethasone as one to try on a limited basis in place of the vyvanse to see what happens.  You mentioned that you felt spunky after taking this.  Were you wired up?  Hyper in any way?  I read that 1mg is the average dose, but you are taking 5mg.  I agree, the SE's are something to consider when taking anything steroid related, but increasing qualify of life is so valuable.  Perhaps one could take this intermittantly to avoid too many SE's?

quincy17
Veteran Member


Date Joined Feb 2013
Total Posts : 1280
   Posted 10/15/2013 9:56 AM (GMT -7)   
Hi Minnesota, unfortunately the dexametasone only worked for a couple of days and then it was back to CFS. I went and had a long series of tests which showed up double pneumonia and a thyroid disorder. The thyroid pills have helped a lot . . . Q
Age 52 at time of Dx, PSA 511, Gleason 9, tumor inoperable, and HT advised for maintenance. Two mets in
Current age 58, PSA 5.1 and still on HT . . . Lupron 30mg every 4 months with accompanying blood work including fresh PSA. change to Provenge starting 9/23/13.
CP syndromes: OA, Fatigue, muscoskeletal pain

Post Edited (quincy17) : 10/15/2013 10:59:33 AM (GMT-6)


Minnesota
Regular Member


Date Joined Jan 2012
Total Posts : 136
   Posted 10/28/2013 3:41 PM (GMT -7)   
I am currently taking 1.5 mg of Dex weekly along with 20 mg of Vyvanse.  I have gained back a part of my life on this treatment plan that I have missed for almost 3 years.  Not sure if I can continue this indefinitly, but it has really made a difference in my functioning.

quincy17
Veteran Member


Date Joined Feb 2013
Total Posts : 1280
   Posted 11/10/2013 2:46 PM (GMT -7)   
Unfortunately the dexamethasone caused me some uncomfortable side effects so I back off of it. It turned out that after further tests, CAT and bone scan, I had double pneumonia and a thyroid deficiency. Those were the cause of mt fatigue. Good luck. . . Q
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