I think this will be my plan..see the neuro in August, have a 3 hour appoint, just to rule out anything nastier going on...if he thinks its fibro only I will ask for a referral to Rheumy, if he thinks its CFS, I will go to a specialist clinic...there is 1 about an hour away from me. Its private so will have to pay, but will borrow money off parents.
In meantime, will continue with what I am doing...doc has put me back on remeron to help with sleep, I will keep taking all my supplements etc and im doing CBT and GET...I have some days where I feel quite fine, on those days I was able to walk round a theme park from 9:30 -6:30 - boy did I ache and I pushed through the fatigue...next day I even went to work
Before this started I didnt have any visible virus...it literally hit me overnight with a pain in my back.
Its encouraging to me that you have said some go back to work - there is hope and everyone is so different. I should stop worrying about the future and take each day as it comes. I have only had it just over 6 months, so its still early to try and help myself..how long have you had it and how did you get it?
Thanks for all your support