Thank you both for your advice, and sorry it took me so long to respond. I have now been officially diagnosed with CFS and tested positive for a chronic virus (HHV-6). Apparently it is something all kids get around 3 or 4 years old and then goes dormant, but can flare if something happens to your immune system.
This whole thing seems to have started a couple of years ago when I got really sick right before Christmas- I ended up in the ER with a very high fever and extreme weakness/fatigue. They never did find what was wrong but treated me with IV antibiotics and lots of meds to bring the fever down. I felt like I never got 100% better, and then in the last year I feel like I have been getting steadily worse.
The doctor has started me on monolaurin and viraclear in addition to the adrenal supports and daily vitamins. If that yields no results we will try Valtrex. Unfortunately I am not tolerating the monolaurin well, I am supposed to work up to five capsules and after just one my stomach hurts really bad. UGH! I also have given up most caffeine- which I have to (begrudgingly) admit has helped with my focus/concentration (seems backwards!)
The saddest part of the visit was when the doc confirmed that I will likely NEVER feel 100% again, but I am trying to focus on the positive that it can get at least somewhat better and hopefully not worse. I feel like I am about 50% of where I used to be energy wise (I used to have SO much energy too)- I am hoping to get a little more back with all these supplements/meds.
Thank you again for your support and advice. I really appreciate it. I feel like no one around me gets it--they seem to think I should be all better after a nap.