i usually post on the lupus forum because i think i have lupus but...someone posted about mono the other day and boy can i relate to mono! i too have ebv. i am 38 years old and contracted the virus when i was 16 (1984). i was told that i might have problems with it in the future but they didn't know what exactly at the time (i guess still don't today). i still test positive (it is often active in my body), i am tired all the time, have liver pain when extremely tired, have had numerous bladder and sinus infections over the years and various other symptoms all of which i figured were related to ebv. i also had vitamin injections (b 12) for a while but they didn't seem to help and they hurt so bad (back in the mid 90's.)! i can get into great detail but i won't tonite, am tired but wanted to give you this link:
i lived in lake tahoe when i became sick with ebv, i am one of those 600! i was also given anti-depressants back in the mid 90' for my fatigue and aches and pains, which i now regret ever getting started taking them (i haven't in years but...) the docs don't want to admit that they don't know what to do about our ailments so they tell us we are depressed and put us on anti d's that don't help. well, wonder why they don't help (sarcasm)?! we are not depressed! being depressed is not causing our pain, if we are "depressed" it is because we feel so bad. feeling bad is frickin depressing, it is not a psych thing! it actually took me until the other day to figure that one out! i could never figure out why the anti d's didn't make me feel happy thus giving me more energy. i read the posts and so many are on ad's and are saying that they don't help and they are trying another one and so on. i feel bad for them. they just haven't figured out that they are not clinically depressed, that is why they don't work. it is the diseases, the sheer physical exhaustion and mental anguish of having to deal with it all. please don't get me wrong, some people truly are depressed and for those the meds work, but far too many people are on these meds that don't need them, they just need to feel better physically.
i hope you are finding some peace.
by the way, this is the first time i have looked at this forum. pretty slow, but i guess everyone is too tired to post (i mean that sincerely).