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Vit. D and Lisinopril question

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Chronic Fatigue Syndrome
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Posted 7/7/2013 12:16 AM (GMT -8)
I had some labwork done 2 weeks ago and my vitamin d was at 15. This is very low.  Anything under 30 is abnormally low so my doctor wants me to take 10,000 iu's of D3 for 10 days.  

Has anyone on here taken that much before?  I always hate to start anything new because I have so many bad reactions to medications.  Maybe a vitamin will be different though.

He also started me on Lisinopril but I had a reaction and had to stop.  I take 100 mg of Tenormin daily for high BP  and he added another BP med to it for kidney protection because my microalbumin level was 39 and it's supposed to be under 30. 

If anyone has any experience with either of these problems I'd really appreciate some advice.  Thanks.

Posted 7/7/2013 10:56 AM (GMT -8)
As for vitamin D both of my kids were found at one point to have levels similar to yours. They took doses similar to what your dr has prescribed with no problems. I spoke with one dr who felt that even much higher doses were okay and felt that ideally d levels should be much higher than the normals tracked by most labs. Low D levels seems to be a common theme with CFS, fibro, etc i can't say that we saw any real benefit symptomatically from increasing the levels with supplementation but it is certainly worth a try as everyone is different.
Posted 7/7/2013 2:25 PM (GMT -8)
memaw, my vit D was low too but my Dr put me on 3000 per day. Mine wasn't as low as yours, I still take 2000 per day & have for years now. My daughter was on 50,000 per week for quite a while & still has to take that off & on as her vit D levels go up & down. Low D gives us less energy, not something we need, hope you feel a bit better when you get the D levels up, how are you feeling otherwise? hugs, Denise
Posted 7/7/2013 3:02 PM (GMT -8)
Memaw, I wouldn't hesitate at the dosage your dr has prescribed. I understand your caution though. I forget exactly now but my kids levels were around 13 and 15 so very similar to you. I think initially they were on something like 50,000 twice a week. Hope you get some benefit. It's cheap relatively speaking so very much worth a try.
Posted 7/7/2013 6:29 PM (GMT -8)
Jewelry Lady, I'm trying not to be so worried about taking new meds. It's not working too well sometimes. lol

I'm going to try to take the dosage he recommended. I'm feeling pretty tired in general. Also lots of FM pain lately. It's been raining for days now.

I have to get my thyroid levels up too. This will help me not to be so exhausted I'm sure. He is starting me on thyroid next. Trying to put me on one new med at a time in case of reactions.

There is another CFS board that I'm on and one of the members goes by the name "Jewel Lady", I think. Also a "Bead Lady" on there. . Memaw
Posted 7/7/2013 6:35 PM (GMT -8)
Cherlynn, I think it's because it's in IU's instead of mgs. that makes the dosage sound so BIG.

10,000 anything sounds like a lot. It seems to work for people though. I was reading about it online. I know I need help with all these extra conditions that are popping up lately.

I just hope I feel a difference when I get these under control. I didn't feel too well before all these metabolism changes hit. The CFS and FM is enough to put you out of commision. Memaw
Posted 7/8/2013 10:12 PM (GMT -8)
memaw, I am the worst when it comes to taking new meds. I have psyched myself out several times & had to ask around to anyone who had taken it. I usually look the med up on the internet but that can go either way, sometimes it makes it worse but sometimes it helps. The last time I was really nervous even after I read up on the med on the internet, I talked with my pharmacist & he helped me with it, I felt much better.

When I first signed up on this forum I made jewelry & sold them at art fairs & sales. I really had fun with making it but the fairs & sales just zapped my energy so I finally gave up on it. I just couldn't sit at a fair for days & try to sell, I felt just terrible & actually hoped no one would come to my booth because I had no energy to help them. lol. Someday I may get back into making the jewelry just for family & friends.

Hope you have a good day tomorrow, take care, hugs, Denise
Posted 7/8/2013 11:47 PM (GMT -8)

Denise,  Making jewelry sounds like a lot of fun.  I know what you mean about not having the energy to sell it though.  I can't imagine trying to do that now.  I would like to make something crafty though.

I don't know if my hands would let me do anything that requires a steady hand. I have developed tremors, especially in my left hand. 

I took a larger dose of the D3 and I am having a lot of ringing in my ears. I have tinnitus anyway and when I take some medications, the ringing increases.  I didn't expect it to do this with a vitamin, but it is.  It starts to hurt after a few hours too.

I'm going to have to reduce the dosage.  I know my doctor won't believe that I have side effects with a vitamin.  I just don't understand why this happens.  I really want to take the things he prescribes. I know how much I need them.    Memaw

Posted 7/10/2013 9:37 PM (GMT -8)
Memaw, I have tintinitus too. I have had it for many years due to my allergies that caused nerve damage. Some meds can make my ears ring louder, even things I eat cause an increase. I have grown so used to this ringing that I only notice it if something changes the tone or pitch of it. It would drive me crazy if I chose to dwell on it. If you notice an increase then you could be getting too much D, so I would cut it down too but be sure to talk with your Dr. about it to keep him posted. Maybe, like me , you should take a smaller dose each day instead of one large dose per week. We all are so different & nothing works the same for all of us.

Hope you are having a good day, hugs, Denise
Posted 7/11/2013 1:09 AM (GMT -8)
Denise, I am used to my regular tinnitus too but this is much lounder and painful. It hurts in both my ears, like an earache. When I don't take the med. it goes away.

This is the third or fourth medication that's done this to me recently. I am supposed to be taking 10,000 IU's of Vit. D every day but am only able to take 1,000. When I increase it to 2,500 it hurts much worse.

I hate to tell my doctor about this. I just had to tell him I couldn't take the Lisinopril for the same reason. He probably won't understand. Most doctors don't understand the things that people with CFS go through. Over the years I've developed many reactions to chemicals of all kinds.

So many things make me break out in rashes, have extremely painful tinnitus and/or make my nasal cavities swell to the point I feel like I can hardly breathe It does get worse as time goes on. Memaw
Posted 7/17/2013 8:11 AM (GMT -8)
Have you considered what Kind of pills your taking? All Vitamins are Not the same and I know for me when I have a reaction to one its usually because of the "fillers" or what the pills coating is made of. Just a suggestion, I never thought about too much of a Vit. supp. causing my tinnitus, I just got it a couple of months ago. You should be able to talk to your Pharmacy about getting "all natural" or "no fillers" for your Prescriptions, you can say No Tablets too, their the worst offenders and if they give you a hard time, get a new Pharmacy. yeah
Posted 7/18/2013 11:55 PM (GMT -8)
memaw, I just wanted to see how your are doing. Have you talked to your doctor about the D3? If you have I hope you were heard & understood. My doctor doesn't deal well with my CFS, I think he doesn't know how to take care of it more then doesn't believe it exists. Have you had good days? I hope so. gentle hugs, Denise
Posted 7/20/2013 8:30 PM (GMT -8)
Hi Denise, I haven't been back to the doctor yet, I go next Friday. I'm still taking small amounts of the D3 but it still makes me feel bad. I'm going to try another brand, one of the fast melt kind. Thanks for your replies. Memaw
Posted 7/23/2013 2:47 PM (GMT -8)
My naturopath prescribed me with high quality natural bio identical D3. My doses are very high, but can be split up.

There are people who take much higher doses than yours, as there's quite a few forums and websites that outline taking vitamin D for the immune system and daily functioning.

The levels need to be at the far end of the lab reference ranges, so try and get the levels right up there. Retest to check them.
Posted 7/23/2013 5:13 PM (GMT -8)
Kayla,   Thanks for the information.  Did he write a presctiption or did you buy it over the counter?  He wants me to take 10,000 IU's for ten days and then retest.  I go in Friday.  My level was 15.  I think it should be at least 30, or better.    Memaw
Posted 7/23/2013 5:18 PM (GMT -8)
No prescription. Just imported from another country. I think my retest is after 2 months once I have used enough of the high dose

My levels are 37 and need to be over 75 for me.
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