Posted 7/8/2013 8:42 PM (GMT -6)
I've had CFS/FM for 35 years, since the age of 38. The only consistent abnormal reading on my bloodwork, in most of that time, was a high white cell count. It was always between 14 and 16, indicating infection. My BP started to rise when I was in my mid forties.
I wanted something to show up on my tests, but always, most were negative. Now in the last two years I've developed diabetes 2, low thyroid, high cholesterol, and high levels of microalbumin. and serious gum and tooth problems.
Now, the doctors want to treat these conditions, and this is something that needs to be done, but sometimes it seems as though they think when I get these conditions under control, I'll feel good.
This is NOT what's going to happen though. I'll feel better than I do right now but I'll still be very, very sick from the CFS/FM, just like I've been for years. They still don't get it.
There are no CFS doctors in my area and it's been a lonely battle trying to convince medical people how sick I feel and how much pain I'm in. They keep looking for other explanations.
This is a lonely confusing disease at times. Memaw