Posted 8/1/2013 8:21 AM (GMT -8)
I usually spend most of my time in the fibromyalgia forum, but I was diagnosed with CF as well and thought I would pop in and introduce myself.
My name is Yvette and everyday of the last 9+ years I have spent exhausted. Some days it is just tired. Other days, like today, I catch myself nodding off at my desk at work. It feels as if my body is falling and my head jerks up. It's awful. Some days I can barely function.
I am so scared that I may one day fall asleep when driving, especially with one of my children in the car. I am currently being treated by a doctor regarding sleep apnea (which I was also diagnosed with a few weeks ago). He has told me that I experience what is called "micro sleep". This is when you are technically awake, but little parts of your brain shut down for a few seconds to rest. This happens when I drive and that I what scares me.
I have one more sleep study and then I will get an APAP machine to help me sleep at night. I am hoping this will help with my constant exhaustion.