Hi Jamie, it takes awhile to figure out the right pacing for each of us. I can't work until I am tired at all, I know the little I can do at one time & hold myself to that. With that said, we can not always tell when we will be ill, sometimes it is just because our illness says so. I have days when I have done nothing to bring it on but there it is. Try to remember that & don't spend all of your time trying to figure out what you did or didn't do. If you are a Trekkie like me you will understand when I say "resistance is futile", you may not have had any affect on it.
You, like me, have had many tests, I had got to the point of just being done with it when I finally got my dx. I am thinking of having a few more tests done because I am not sure if I ever had them done before. I feel with all of the tests I had I probably have had them but I am with a new Dr & don't have all of my old records.
This illness is not one we can "push" through, at least, not in the way we used to do it. We have to live through it & keep a good attitude & enjoy our lives as best we can. I don't want to be sad & depressed for the rest of my life. Hang in there & just keep plugging along, you will figure it out. Take it one day at a time. Hugs, Denise
Fibromyalgia-dx'd: 2006, ME/CFS-dx'd: 2006, Holt-Oram Syndrome dx'd 1975, reduced lung capacity dx'd 2009, nasal allergies, food allergies, depression (lifetime problem) IBS, neuropathy in hips
I have 4 children & 7 grandchildren.
As apples of gold in silver carvings is a word spoken at the right time for it. Prov. 25:11