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push-crash cycle

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Chronic Fatigue Syndrome
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Posted 8/16/2013 5:54 AM (GMT -8)
More or less just venting, so frustrated:

I thought I had a better handle on this push-crash thing, but yesterday I felt good and pushed too hard apparently b/c I feel like I have been hit by a truck today. Can't stop shaking, headache, stomach ache, etc. I did a lot yesterday but felt like I was resting between activities, and never felt that bad while I was doing stuff. Wish I could get a better idea of what I can and cant do. cry   I've always had health issues since I was 8 or so, but I've always been able to push through so this is really tough!

Thanks for "listening"

Jamie

Posted 8/17/2013 6:22 AM (GMT -8)
Out of curiosity, what testing have you had done and anything positive/negative?

Might be able to offer some suggestions.....
Posted 8/18/2013 5:30 PM (GMT -8)
I have had so many tests done...ugh! I can't remember them all but I know my thyroid, adrenals, and lyme tests all came back fine. My blood counts and electrolytes were fine. Kidney/liver panels fine.
I did test positive for HHV-6 (chronic), and I am currently being treated for that though the treatment seems to be making me feel worse. Diagnosed with chronic fatigue syndrome due to the HHV-6.

Jamie
Posted 8/18/2013 9:45 PM (GMT -8)
Hi Jamie, it takes awhile to figure out the right pacing for each of us. I can't work until I am tired at all, I know the little I can do at one time & hold myself to that. With that said, we can not always tell when we will be ill, sometimes it is just because our illness says so. I have days when I have done nothing to bring it on but there it is. Try to remember that & don't spend all of your time trying to figure out what you did or didn't do. If you are a Trekkie like me you will understand when I say "resistance is futile", you may not have had any affect on it.

You, like me, have had many tests, I had got to the point of just being done with it when I finally got my dx. I am thinking of having a few more tests done because I am not sure if I ever had them done before. I feel with all of the tests I had I probably have had them but I am with a new Dr & don't have all of my old records.

This illness is not one we can "push" through, at least, not in the way we used to do it. We have to live through it & keep a good attitude & enjoy our lives as best we can. I don't want to be sad & depressed for the rest of my life. Hang in there & just keep plugging along, you will figure it out. Take it one day at a time. Hugs, Denise
Posted 9/21/2013 9:14 AM (GMT -8)
Hi Jewelrylady.
I remember being where you are with my post polio syndrome (13 yrs ago). It was aweful so my heart goes out to you. I crashed so often, cried so often and sometimes wanted to give up.
I decided to focus ONLY on getting better and started to ignore the symptoms in that I refused to allow them to be in my thoughts.
I sent for Tony Robbins CD's called "Personal Power". OMG...they changed my life and I know they have changed many others who 'get in their own heads' too much. How does it change you? You learn how to fall totally in love with yourself, symptoms and all!! THEN....you begin to focus on you and what your, special, unique body needs to heal. You ignore what others say and only listen to YOUR body and YOUR symptoms....they will tell you exactly what to do, Doctors, as hard as they try, cannot do that.
I learned to be super kind to me and rest before I needed to.
Tony was just the beginning but you have to start somewhere. It will take a few years but the results will blow you away. I no longer have those days and know how to eleviate symptoms as they show up.
Do I overdo it sometimes? yes, but it's ok because in a couple of days......all will be well.
Please think about going that route....seriously, it is the ONLY thing that works and you don't want to be on dangerous medications forever. They will hurt you in the worse way, believe me.
Hugs and best wishes to you....
Sue
Posted 9/21/2013 10:36 AM (GMT -8)
Hi I registered today this site and I have Cfs. Is there anyone try licorice.
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