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Minnesota
Regular Member


Date Joined Jan 2012
Total Posts : 136
   Posted 9/7/2013 1:51 PM (GMT -7)   
I am curious to hear if anyone has tried this as a treatment option.  I read the article that Dr. Bell had written a few years ago about his success in treating patients with this.  I brought this to the attention of my doctor, and he agreed since there really was little risk involved.  I started this 2 weeks ago, 500 ml each session.  I have had 4 of these so far, and I am seeing some noticeable improvement.  I feel less foggy upstairs, and seem to have a bit more energy/stamina now.  I started noticing this after the second treatment, and I have to admit it feels good to gain back some of what I have lost.  Based on these results, I plan to continue.  Given that this is not any type of medication, could I simply have this done at home?  Just takes time to do this (takes an hour at the docs office plus travel to and from) and at home would be more convenient.  But.....If I have to have the nurse to this so be it.  I have to say this is one of the few treatments that seems to be making a difference.  

johnnyboy07
New Member


Date Joined Sep 2013
Total Posts : 19
   Posted 9/7/2013 4:10 PM (GMT -7)   
Glad its working for you. How pricey is it?

ladybugdreams
Veteran Member


Date Joined Jun 2008
Total Posts : 726
   Posted 9/7/2013 4:16 PM (GMT -7)   
Minnesota, I am so happy you have found something that is working for you. We all love when that happens. I have never personally tried this so I have no imput for you. Just wanted to let you know it is always nice to get some relief & share it with others. I hope this continues to help you, keep us posted, please, it may be something I will talk to my Dr about if you have success with it. Hugs, Denise
Fibromyalgia-dx'd: 2006, ME/CFS-dx'd: 2006, Holt-Oram Syndrome dx'd 1975, reduced lung capacity dx'd 2009, nasal allergies, food allergies, depression (lifetime problem) IBS, neuropathy in hips

I have 4 children & 7 grandchildren.

As apples of gold in silver carvings is a word spoken at the right time for it. Prov. 25:11

Minnesota
Regular Member


Date Joined Jan 2012
Total Posts : 136
   Posted 9/8/2013 3:07 AM (GMT -7)   
I really appreciate the good thoughts!  As we all know, even just a small improvement means a lot.  The cost of each infusion at the doctor I see is $60.  My insurance covers 1/3 of this since he is out of network, so out of pocket is 40.  I would like to continue this 2x a month and see what that does for me.  As I mentioned earlier, ever since treatment #2 I have been able to manage my days versus just surviving.  I can tell when I get out of bed that I am not as fogged in, and then at night I am not crushed by fatigue as early.  Read about Dr. Bell if you have a chance, he explains his reasoning behind using this as a frontline treatment.  I hate to add another cost to my situation (supplements and vitamins as we know are spendy) but this treatment may allow me to discontinue something else.  I will be happy to report back in a week and let you know how things are going.  This treatment is very safe from what I have read and been told.

johnnyboy07
New Member


Date Joined Sep 2013
Total Posts : 19
   Posted 9/9/2013 11:46 PM (GMT -7)   
I'm def gonna try it if I can find a doctor in socal that will do it !

Minnesota
Regular Member


Date Joined Jan 2012
Total Posts : 136
   Posted 10/28/2013 3:44 PM (GMT -7)   
I am still having these IV's every other week, along with 1.5 mg of dexamethason weekly.  This is the best I have felt since I contracted this.  Doc thinks that the anti inflammatory effects of the dex are doing something positive, and the IV giving me more blood flow to the brain.  I feel like I have gained some of my life back which is huge.

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9657
   Posted 10/28/2013 7:12 PM (GMT -7)   
Hope y'all don't mind me posting on here, I have had a few saline IV's for sjogren's treatments and they did help. However, insurance did not cover the costs so I had to stop them. It's was once a month for me and it did help. It also was done at my doctor's office so a $50.00 co pay for each one got to be too much for me...Just a little info, ask your doctor if your insurance will cover this treatment as that can help. Other than trying to find a vein it was easy, however, due to me having Sjogrens it took over 2 hours for my treatments...but, give it a try if you think it'll help...it's just salt water...
Many well wishes...
**********************************************
* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
********>^..^<********>^..^<*******

moder
New Member


Date Joined Nov 2013
Total Posts : 13
   Posted 11/21/2013 1:10 PM (GMT -7)   
Intravenous saline infusions for no other reason than fatigue sounds very suspicious to me. It's useless and dangerous. This is why insurance does not cover it. Dexamethazon works as a diuretic.

What happens is this: you get intravenous saline, and to prevent complications of hypervolemia (increased blood volume), the doctor gives you dexamethasone to push the water out of your body.

You would very likely achieve the same effect by regularly drinkg water and eating regular salted foods.

Minnesota
Regular Member


Date Joined Jan 2012
Total Posts : 136
   Posted 11/22/2013 12:14 PM (GMT -7)   
Tried those options before this treatment regimen to no avail.  I have dialed back the Dex to 1mg but still getting the saline IV 2x month.  So far 3 doctors have told me that there is no reason to not continue if it is helping, and allowing me to gain some quality of life back.  After dealing with this for 3 years I can't tell you how refreshing it is to think a bit more clearly, and have some energy to do active things to some extent.  My mood has also been better with this treatment since each day isn't as much of a grind.  With that in mind I plan to continue.  I have border line POTS, so my guess is that the saline is helping from that standpoint.

ladybugdreams
Veteran Member


Date Joined Jun 2008
Total Posts : 726
   Posted 11/22/2013 6:46 PM (GMT -7)   
Minnesota, I think if this is working for you then you must continue. I am so happy for you that you found something that is working for you. This is something we have all been looking for, anything to make us feel better. I have found this with dark chocolate, CoQ10 and protein. Each of these helps in a little way here and there and I find that I have become less foggy and seem to have more energy on good days. I'm not saying I have a lot of energy, but I do feel better. I have certainly been feeling more like posting lately, LOL! Hugs, Denise
Fibromyalgia-dx'd: 2006, ME/CFS-dx'd: 2006, Holt-Oram Syndrome dx'd 1975, reduced lung capacity dx'd 2009, nasal allergies, food allergies, depression (lifetime problem) IBS, neuropathy in hips

I have 4 children & 7 grandchildren.

As apples of gold in silver carvings is a word spoken at the right time for it. Prov. 25:11

onlyyoucanbeyouerthanyou
New Member


Date Joined Dec 2014
Total Posts : 1
   Posted 12/4/2014 1:02 PM (GMT -7)   
moder said...
Intravenous saline infusions for no other reason than fatigue sounds very suspicious to me. It's useless and dangerous. This is why insurance does not cover it. Dexamethazon works as a diuretic.

What happens is this: you get intravenous saline, and to prevent complications of hypervolemia (increased blood volume), the doctor gives you dexamethasone to push the water out of your body.

You would very likely achieve the same effect by regularly drinkg water and eating regular salted foods.


This is coming from someone who is speculating benefits and dangers of treatment.

Reality is the reason insurance usually doesn't cover something is strictly demand and profit. Give me a break about it being dangerous , look at all the medications covered that are dangerous.

It's saline....I stumbled upon this thread after questioning why after years of awful clusters of symptoms, has a simple saline iv from an ER visit seemed to facilitate relief from these awful symptoms. Mind you I'm talking about 5+ visits in one years time. The one constant treatment was saline IV and in retrospect the only thing I can say for 100% has given relief to painful skin lesions, heart and breathing problems , central nervous system, intracranial pressure,and fluid retention.

I have diagnosed thyroiditis for over 7 years now with the last 3 years being a ridiculous roller coaster ride of illness with symptoms of unknown origin all being speculated by doctors without a clue ready to prescribe handfuls of meds with no relief of symptoms.

Being so tired of feeling like a guinea pig I am very cautious about adding meds. I have started plaquinel recently due to an exacerbation of the auto immune thyroiditis with some positive effect. It's not as simple as drinking water and ingesting table salt. I believe it's more along the lines of a "flushing" of the blood and I guess more homeostasis and maybe providing the system with sodium it is being depleted of at a molecular level that doesn't quiet give the body through oral ingestion what it is being depleted of due to chronic illness.

The main thing I have noticed with the various clusters of symptoms is listening to my body and removing toxins as well as replenishing trace minerals, cell salts and acid/alkaline balance for the individual.

Salts and sugars have been one of the strangest things throughout to realize that my body is not processing as it had been and has been creating more symptoms or worsening of others. I use Pink Himilayain SP? Salt, only reason being it has more naturally found trace minerals instead of over supplementing with individual vitamins or minerals. I also use Dr. Braggs amino acid soy sauce alternative, Apple cider vinegar supplement, activated charcoal and/or bentonite clay, Hyland's bioplasma, Liquid chlorophyll and baby aspirin. I have recently switched to stevia instead of regular sugar. These are a few things that have been positive in relief of some symptoms.

Docs usually think you are over obsessing if you take numerous supplements. I have found much needed support throughout the years going to a naturopathic doctor in addition to specialists. She taught me to look at the body in systems with basic needs that usually work well together. It's pretty much paying attention to detail with your body being the one your attempting to communicate with through what you put in it. I also added fresh garlic to salad and balsamic vinegar in addition to whatever dressing and spicier foods, Indian dishes, hot sauce, salsa.

Funny thing is I NEVER ate spicy foods before and I suffered with heart burn and gastrointestinal problems for years until I removed a lot of medications that were intended to be like band aids anyway not a cure. I began monitoring intense cravings alternating from salt to sweet as well as correlating symptoms prior to intense cravings, during and after cessation of the intense cravings.

I figured my body is having these intense cravings to get me to ingest what it needs or thinks it needs. I noticed having periods of anemia for years that being prescribed iron supplements wasn't really addressing the reason for the anemia. It was not tolerated at all last time I took it making me question wether the iron supplementation over the years was actually contributing to gastro problems and creating more symptoms because the anemia wasn't being addressed as to what the cause was instead of just blindly prescribing iron. I realized some of my symptoms could of potentially been attributed to iron toxicity. Go figure.

So not being a doctor or specialist of any kind, just an extremely frustrated wife, mother, daughter person that wanted some sort of semblance of my former life back.

I figured I will read about basic body function in relation to depletion or over abundance (imbalance) of vitamin, mineral, hormones, etc.... any relation to symptoms I have or had and any repetitive pattern of any kind. With any illness your body's basic needs become depleted and or stops producing/working as intended for whatever the origin of illness.

Oh, I also noticed that dry eye and mouth symptoms have subsided once my body seemed to have more of a balance of supplements I listed above.

Apologies for any rambling or confusion. turn
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