Tylersdad, I'm so sorry for everything you're going through, but the sad thing is this is how you get a diagnosis of CFS. It takes a long time to get a diagnosis because everything else has to be excluded first. There was a time before I was diagnosed that I took a break from doctors because I was just tired of it, tired of all the tests and all the things I had to go through and everything came back normal. I was diagnosed with fibromyalgia first then about
six months later I was diagnosed with CFS. Does your doctor or your rheumatologists believe in CFS? I mean a lot of doctors don't even think it exists so you need to make sure that your doctors are on board.
Wow, your oxygen levels are very low and this could definitely be caused by Chronic Fatigue Syndrome. Today my blood pressure was very low, and I could tell my oxygen level was low, I was very lightheaded. Is your Dr. going to do anything about
your low oxygen level?
Your all over body aches are definitely a symptom of Chronic Fatigue Syndrome. But as Sherrine said your symptoms could be caused by fibromyalgia. It is not unheard of to have both, I do. Even though you are getting tired of the tests and doctors visits, you have to continue until you get a diagnosis. Once you get the diagnosis you can stop. Although there is not much that can be done if you do have CFS, at least you will know it is not something life-threatening. And that gives you a sense of peace at least.
You said your father passed, I am so sorry for you. The stress you must be under must be making your illness a lot worse. Stress is very bad for our illness, and you will be in my prayers and in my thoughts. My husband died about
four years ago, and it threw me into a very long depression and my CFS really flared. I hope you are doing okay.
Many gentle hugs, Denise
Fibromyalgia-dx'd: 2006, ME/CFS-dx'd: 2006, Holt-Oram Syndrome dx'd 1975, reduced lung capacity dx'd 2009, nasal allergies, food allergies, depression (lifetime problem) IBS, neuropathy in hips
I have 4 children & 7 grandchildren. As apples of gold in silver carvings is a word spoken at the right time for it. Prov. 25:11
Post Edited (jewelrylady) : 11/19/2013 11:54:03 PM (GMT-7)