Posted 11/14/2013 11:19 AM (GMT -8)
Did your symptoms start gradually, or have a sudden onset? I am coming up on my 3 yr illaversary in 3 weeks, when a bout with the flu sent me into my state. CFS has been my dx mainly because nothing else has been found through the many, many tests I have had. The MRI is important, as would be a spinal tap to see if your CFS is abnormal. Anyway, I have had 3 mri's throughout this time span, most recently when I switched to a new doc 3 months ago. He had me standing upright versus laying down, and noticed some narrowing in my neck from the vertibrae there. I had a whiplash concussion back in 2000 and he thinks that the trauma, along with normal degeneration, may have a role to play in my brain fog/fatigue feeling all the time. For the past 5 weeks I have been on a treatment regimen of saline IV every other week (increase blood volume), 20 mg Vyvanse (mental clarity) and 200 mg celebrex (inflamation reducer). Since starting that, I have felt the best I have since my onset in early December 2010. Not cured mind you, but improvement that allows me to gain back some value in life....like exercising a bit, and having more of a social life due to not being so heavily fatigued 24/7. Just my experience after having many blood/fluid tests performed that all came back normal.