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NinaC.
New Member


Date Joined Nov 2013
Total Posts : 2
   Posted 11/1/2013 10:27 AM (GMT -6)   
Hi, found this discussion board today. Not sure if I am posting in the right place but thought I would say hi. My doctor thinks I have CFS. I'm alone and it's been a real struggle ever since I started getting ill a few years ago. It would be great to talk to other sufferers and support each other. :-)

alsky
Regular Member


Date Joined Oct 2013
Total Posts : 42
   Posted 11/1/2013 2:33 PM (GMT -6)   
greetings !

How long did it take for you to get diagnosed and any supplements/meds that are helping ?

NinaC.
New Member


Date Joined Nov 2013
Total Posts : 2
   Posted 11/1/2013 2:57 PM (GMT -6)   
hi alsky :) it took me 4 years..Don't feel like my supplements are helping me but perhaps without them I would be feeling worse. Would be glad to hear about other people's treatments. I've been taking about 20 pills of supplements each day and eating a healthy diet. Doing B12 injections and vitamin infusions on a regular basis. I hope that there is a method that will work for me. If i can afford it soon I would like to try out s h i a t s u* and qi gong. The hardest thing is staying active. My energy levels are too low and if I'm not careful and move around 'too much' then I end up being bedridden for the next days : (

* had to spell it like that bc it got censored

ladybugdreams
Veteran Member


Date Joined Jun 2008
Total Posts : 730
   Posted 11/2/2013 2:46 AM (GMT -6)   
Hi Nina & welcome. I am sorry for the reasons you have to post here. I have had CFS for about 9 years & I have tried all kinds of suppliments but nothing has ever really helped me except CoQ10 & dark chocolate. I have given up all of the others because I can not afford them on disability & I had noticed no improvement on them. I tried B12 sublingual & saw no difference in how I felt but I have heard that some people do see some help from it & injections are the best to get. I think I get enough B vitamins in my diet & multivitamin. I always feel that any improvement is good because even if it only helps 5 or 10%, that is that much help. For me, pacing is how I take care of myself. I don't push myself anymore because I have learned my lesson the hard way, being tired & sick is not fun. lol I hope you find your answers for you, we are all so different. Hugs, Denise
Fibromyalgia-dx'd: 2006, ME/CFS-dx'd: 2006, Holt-Oram Syndrome dx'd 1975, reduced lung capacity dx'd 2009, nasal allergies, food allergies, depression (lifetime problem) IBS, neuropathy in hips

I have 4 children & 7 grandchildren.

As apples of gold in silver carvings is a word spoken at the right time for it. Prov. 25:11
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