idiopathic peripheral neuropathy

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New Member

Date Joined Nov 2013
Total Posts : 4
   Posted 11/15/2013 12:51 PM (GMT -6)   
My husband (age 31) has been diagnosed with idiopathic peripheral neuropathy. He has all the common signs everyone has previously listed - numbness/tingling/extreme pain in feet and hands.

Quick question - Is there any chance this could be a result of the surgery from a ruptured appendix back in 2009 (4 years ago)? His pain started within 6 mo-1 yr after he was hospitalized for 3 weeks from a ruptured appendix.

Thanks for any wisdom.

Lurking Guest
New Member

Date Joined Nov 2007
Total Posts : 6
   Posted 12/10/2013 12:00 AM (GMT -6)   
Hi. im not sure if the neuropathy was caused from surgery or not but i had neuropathy following chemotherapy for 15 years. it caused numbness in my feet, couldnt feel anything when i walked outside barefoot except occasionally pain if i walked on something really hot. my drs told me there was no treatment, so being young, i guess a little niave and trusting i believed them.....until about 15 years later (last year) i decided there had to be something to help this. i researched a bunch and found a european study using methylcobalamin ( an active form of B12 and befotiamine- a fat soluble form of B1) to treat diabetic neuropathy. So i tried it. their product contained 300mg benfotiamine plus methylcobalamin but i honestly dont recall the dosage. i was too cheap to buy their expensive i figured id try Vitacosts brand as i have had good results with their products.
I only used 150mg befotiamine because the study said some people get diarrhea on higher doses and my tummy can be quite touchy at times.
I also started on 3000 micrograms (3milligrams) of methylcobalamin. I took that dosage for about a week then went up to 5000, then 10000, then 20000 up to 40000 micrograms daily in divided doses. i increased doses because the first dose initially was helping- but not like youd think. my feet started to hurt significantly more within the first week or so. they became even more painfull to stand and walk on and cold temperature increased the pain as well.
But once the increase in pain resolved, it just kept getting better, with reduced pain and tingling and numbness. i upped my b12 dose because everytime i did, i felt improvement except 40000 did not give any improvement after a week so i went back down to 20000 and stayed there for over a year.
This summer was the first summer since i had chemo that i could feel grass under
nder my feet. i can feel i have toes touching together when i wiggle them
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