chronic fatigue/leaky gut

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New Member

Date Joined Dec 2013
Total Posts : 13
   Posted 12/2/2013 7:42 PM (GMT -6)   
Hello, i am a 28 year old male that has been sick for around 6 years. I have severe food, chemical, and medication sensativities. I am sensative to artificial sweeteners, fluoride and chlorine in tap water, dairy, caffiene, and sugar. If i drink or consume caffiene i start getting a shortness of breath immediately along with a feeling like i need to catch my air. Then i will get terrible panic attacks. If i drink tap water with fluoride i start getting muscle twitches all over my face and body and become extremely fatigued. The flouride will also make me have nightmares and a feeling like im sufficating in my dreams along with me kicking my legs in order to get out of the dream. Flouridated tap water also gives me electric shock syndrome if i consume even a few sips of tap water. I know this sounds impossible but its true. I used to have severe pain for almost a year straight,joints hurt, burning pain throughout the whole body. It was so bad i couldnt even do my dishes. I felt strange surges of elecricity throughout my head while this was happening. I quit drinking fluoridated tap water and everything got better. It is so wierd. If i drink tap water it comes back fast. I get severe panic attacks if i consume sucrolose or aspartame also. I am at the point where i am afraid to eat because im afraid of the reaction. Most days i am so tired and depressed until i get caffiene or sugar in my system but then i get sick from the reaction from sugar and caffiene. If i consume just sugar like a sprite i start getting dizzy and shaky for about an hour. I have a constant tension headach everyday for a year now and the only thing that helps the headachs is sugar but i no longer can use that. I dont know how much more of these sensativities i can take. I cant work because i never feel well. Im not on any medications anymore because all of them made me sick. I get side effects from all meds. At this point my body is be
oming allergic to everything. I do have a condition call gilberts syndrom. This means my liver count is always elevated and my skin always has a tint of yellow. Iv had this condition since i was about 13. Could this be related. My stomach always hurts and i used to be on prilosec for about 14 years but i have been off them now for about 3 years. I dont get heartburn anymore which is a good thing. My sensativities seemed to be worse after quitting the prilosec. I tell myself everyday im going to stay away from sugar and caffiene until the headaches come and then the cycle starts. Drink coke or mountain dew then getting panic attacks etc. I quit dairy because my throat starts to get scratchy andclose up after i drink milk. My gerd heartburn went away after i quit dairy. I cant be around cigarrettes, paint smell, mold, electronic smells, or laundry rooms without having reactions. I get so chocked up and become dissoriented if im around them to the point i lost my house because of this. The doctors tell me there is nothing physically wrong with me and tell me its my anxiety but i can assure you it goes way beyond anxiety. Iv developed a mild case of ocd because of this. Doctors think im a hypocondriact. If anyone can relate to anything i just wrote please write back. I wouldnt wish whatever this is on my worst enemy. Thanks.

Just Call Me Nike
Regular Member

Date Joined Jun 2013
Total Posts : 22
   Posted 12/7/2013 7:22 PM (GMT -6)   
This sounds like a really difficult thing to deal with.

I would really suggest hanging out in the Healing Well chat. Everybody there has something different and unique to contribute, and it's a good place to talk things out when you aren't feeling well.

Also, don't stop searching for the right doctor. I'm still on the hunt myself. These things are never easy, but the good news is you don't have to go through this alone.
Dx Fibro ~ Lyrica & Tramadol ~ Bad at Seeking Help

New Member

Date Joined Dec 2013
Total Posts : 13
   Posted 12/8/2013 1:58 AM (GMT -6)   
Thanks nike, i never knew there was a chat so i will check it out. Thanks.

Veteran Member

Date Joined Jul 2011
Total Posts : 1486
   Posted 12/17/2013 1:58 PM (GMT -6)   
Hi disturbed33,

I'm normally on the lyme forum but diagnosed with chronic fatigue too - a lot of overlap with all of these chronic conditions and who knows what's actually causing what...

Have you ever looked into MTHFR gene mutations? It's something a lot of people in the chronic lyme or chronic anything communities are diagnosed with a basically means that because your body can't perform a certain function to process a certain kind of B vitamin, your whole detoxification process gets messed up and you get a huge buildup of toxicity...

Just a suggestion of something to look into. I have a lot of the same symptoms as you do and I know how you feel - it's awful. Especially the whole fear of eating and getting reactions thing. I hope you find some answers soon...

New Member

Date Joined Dec 2013
Total Posts : 13
   Posted 12/18/2013 7:04 PM (GMT -6)   
Thanks for your response. The only thing i have ever been diagnosed with is gilberts syndrome. I dont know if you know what this is but i always have elevated bilirubin and i appear jaundice. The medical field says theare no side effects from gilberts syndrome and it doesnt alter the way you feel. Basicallymy liver cant detox properly. I think this may be contributing to how iv been feeling for years, but the medical field wont ever acknowledge this. I appear yellow as a banana at 28 years old. If this isnt whats causing me to feel ill, than im at a loss for words. I dont know where to go from this point. Im through with doctors telling me im a hypocondriact and that its in my head. I dont want anymore garbage man made medicine in my body. Its just more toxic waste my body cant get rid of. I truly feel i wont make it to 30 years old i feel so rotten.

New Member

Date Joined Jan 2015
Total Posts : 1
   Posted 1/28/2015 10:25 PM (GMT -6)   
disturbed33, I'm sorry to hear about your health problems. Hopefully you've improved since posting here.

I found this thread because I was researching my (slightly) yellow hands. Your condition sounds much worse than me. If you haven't found relief from your problems, look into the build-up of 'unconjugated' bilirubin in the body. It's a knock-on effect of the strain put on your liver as a result of a 'leaky gut' (something which I have, and which can cause all of the symptoms you've described).

Either way, I highly recommend you start eating the "SCD" diet which gives your digestive system as easy a time as possible, removing all the things which exacerbate a poorly functioning digestive tract. SCD helped minimise all the symptoms I was having, but that is just 'management'.. I'm still in the process of healing/fixing the gut itself. Hopefully this helps you. Good luck!

Regular Member

Date Joined Nov 2013
Total Posts : 167
   Posted 1/29/2015 8:53 AM (GMT -6)   
disturbed33, I truly sympathize with your situation.

As for the headaches. Caffeine and sugar are both very addictive. Many people get headaches when their body starts to withdraw from these two items. For some people withdrawing from caffeine can be as physically devastating as withdrawing from heroin.

If you want to get off these two item, you are going to feel uncomfortable at the least for several days, and very sick for a couple of weeks at the most. One time I went cold turkey off caffeine and I thought I was going to die I was so sick - in bed feeling like I had the worst flu, sweating profusely. Now I taper off very slowly so as to minimize the side effects.

If you know for sure they are making you sick, and they are both toxic so I am sure they are, it is best to push through the pain and rid your body of these things.

As for the rest of your list, all those items are toxins and chemicals. It doesn't sound like real, whole foods cause a problem. When our bodies are compromised, like yours is, it is very important to be very careful of what we put into them.

Good luck

Veteran Member

Date Joined Sep 2014
Total Posts : 534
   Posted 1/29/2015 9:42 AM (GMT -6)   
You need to repair your digestive tract. I do this with probiotics from homemade Sauerkraut and Kombucha tea. You can also buy probiotics but I prefer the natural stuff. You know what makes you feel bad and you have to stay away from it. Sugar is a problem for many people and when you stop it you will have withdrawal symptoms. You need to start eating as many fruits and vegetables that you can handle. If you have problems with digestion consider juicing. It is important to get the vitamins and minerals our bodies need to detoxify the bad. Consider exercise which increases the blood flow helping with detoxification. Make sure you get proper sleep which give the body time to heal. Prayer and meditation will take the stress out of your life. Two things you should get checked are you vitamin D and iodine levels. These are two things most people are deficient in and they are necessary for good health. Hope you can find relief for your symptoms. I know how it feels to be sick.

New Member

Date Joined Nov 2015
Total Posts : 1
   Posted 11/19/2015 8:47 PM (GMT -6)   

I know this post was from a few years back so I was wondering if you found any answers for your problems?? I am also 28 years old and having all those exact problems.

New Member

Date Joined Dec 2015
Total Posts : 1
   Posted 12/8/2015 1:45 PM (GMT -6)   
Hi, I've managed to get much better. Here is the blog I wrote that explains how.

Best of luck,
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