Actual Treatment to put CFS/Fibro in Remission!!!

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Randy_H
Regular Member


Date Joined Jan 2014
Total Posts : 39
   Posted 1/5/2014 12:14 AM (GMT -7)   
I had a hard time CFS symptoms for about three years and gained abut 30 pounds because exercise of any kind wiped me out for days. The crushing fatigue was strange because I felt it even lying down, as if there was no escape. And while CFS is a diagnosis of exclusion, I ran the course and was finally diagnosed as such.

I know there are many of your, perhaps most, who have had it far worse and for far longer. Nevertheless I ask you to please investigate what I'm about to say. I found a Los Angles MD attached to UCLA who claims he can put this disease into remission. Not cure it, just eliminate the symptoms. His name is Paul St. Amand. He uses the Guaifinision protocol. Why that is not mentioned here is surprising because I've been 90% symptom free now for 10 years, as well as people I've sent to him.

There was a scientific trial done on his protocol and unfortunately it did not show scientific significance. So the medical community just walled away. As scientists you can't blame them. However, I'm telling those of you who will look into this that this guy is on to something.

St. Amand is quite convinced that CFS and Fibro are the same disease. That's why it's called the Fibro treatment center. Same disease though. If you have one the have the other.

http://www.fibromyalgiatreatment.com/

When I try and talk to people who have tried everything and suffered for a long time they have usually given up and essentially ignore me. I understand. This is for those who are still looking for hope. What do you have to loose?

Post Edited (Randy_H) : 4/14/2014 5:43:44 PM (GMT-6)


johnnyboy
Regular Member


Date Joined Mar 2006
Total Posts : 51
   Posted 1/8/2014 11:48 PM (GMT -7)   
never heard of this. Will look into it.

Shy Guy
New Member


Date Joined Jan 2014
Total Posts : 4
   Posted 1/15/2014 7:09 AM (GMT -7)   
I have never heard of it. That is very cool it works on you
I would like to know more about it and will gladly look into it
I get so tired of being so tired : )

Randy_H
Regular Member


Date Joined Jan 2014
Total Posts : 39
   Posted 1/15/2014 10:32 AM (GMT -7)   
Hey Shy,

Here is how to get the info:

http://www.amazon.com/What-Your-Doctor-about-Fibromyalgia/dp/B001Q3M66G

Take a look at how many 5 stars this book has. Not normal.

There were times I dreaded washing my car because I knew I'd pay for it later. I was very fortunate that someone who had been to St Almond sent me to him. If you can find a doc on his site that can "map" you, all the better. Other than feeling better
that's the only real way to know if you are reversing the disease.

Sadly, people who have struggled with CFS / Fibro for a long time will not listen. They have already gotten their hopes up and tried everything. And they have been told there is nothing they can do but try and "manage" their disease. I can see how this would sound like a magic cure for cancer our of Mexico.

But it's the real deal. Look at all the support groups on-line for the guaifenesin protocol. I've got my life back. If people think I'm a pest about this it's because
I'd feel bad if I didn't at least try and help.

Be Well,

Randy

Shy Guy
New Member


Date Joined Jan 2014
Total Posts : 4
   Posted 1/15/2014 12:05 PM (GMT -7)   
I'm Listening I hate this! I'm not a quitter and I'm not lazy, quite the opposite actually and that's the part that's ripping my heart out. I still have goals and the want to do things, just no power to move sometimes.

I'm very lucky I do eat well (for the most part I always have) and I'm only very little over weight 5'9" 190 lbs. and big boned stocky build to start with. So I'm not even close to just giving in to this beast. I just don't want to do anything to horribly risky. I guess that's why I just suffer when I see a med isn't really doing anything. It sux to hurt like this and I try to never say anything but people can tell I have slowed way down and they ask me what's wrong and I try to avoid the whole thing.
I fear some of mine is from recent west nile infection also, but the time has passed and I should be back up and going full throttle when I have no throttle. It's like that may have made this worse... Im praying not.

thanks so much for info

johnnyboy
Regular Member


Date Joined Mar 2006
Total Posts : 51
   Posted 1/19/2014 8:31 PM (GMT -7)   
LDN/IV therapy/supplementation have all helped CFS/ME patients. Look them up and hopefully they work for you too.

Randy_H
Regular Member


Date Joined Jan 2014
Total Posts : 39
   Posted 1/27/2014 1:44 PM (GMT -7)   
Johnnboy,

What I am talking about in this thread is not just something that can "help" with CFS symptoms but actually reverse the disease to where you can become symptom free. You still need to follow the protocol the rest of your life. Some people just find it too difficult because of the restrictions necessary for it to work. Not me.

But honestly folks, if you actually have this disease it is not from a virus, not a bug, though sickness can trigger the onset. There is no biological test for it. That's why it took so long for the CDC to even recognize it. And it isn't going to go away and it usually gets progressively worse. That's the bad news. But there is good news.

Am I the lone voice on this site that is in remission form Paul St. Amand's Guaifinision Protocol? PLEASE do yourself a huge favor and read the ***217*** Five Star reviews. That's an amazing 83% of reviews.

http://www.amazon.com/What-Your-Doctor-about-Fibromyalgia/dp/B001Q3M66G

Randy_H
Regular Member


Date Joined Jan 2014
Total Posts : 39
   Posted 3/4/2014 9:58 PM (GMT -7)   
Hey Shy Guy,

Haven't heard from you. I hope you *have* looked into this. Getting the book is a good first step. The problem for many will be finding someone to help them who is knowledgeable in the guaifenesin protocol. Had the study some years ago vindicated this approach *all* of you would have heard of it. Sad to say, it did not. That didn't prove that it didn't work. What it didn't prove is that it does.

I know that sounds like semantics but one study that was poorly deigned doesn't prove that this doesn't work. It works on a lot of people. Do some research.

So, how are you doing Mr. Guy?

aysen
New Member


Date Joined Sep 2013
Total Posts : 6
   Posted 3/6/2014 12:51 AM (GMT -7)   
Hi Randy, Guaifenesin is an expectorant for airvay infections. Did you get it syrup form?

DXYMOM
New Member


Date Joined Mar 2014
Total Posts : 2
   Posted 3/6/2014 8:21 AM (GMT -7)   
Hi all - I suffer from Fibro (maybe CFS too since I believe both of these illnesses could be the same or at the very least, totally related) and have tried a number of things over the years. Firstly, I had this for the past 15 years but didn't know it until I was officially diagnosed in 2005. There were several life occurrences that kicked it up a notch to the point now, I'm very close to having to go on disability (multiple surgeries, viral meningitis, my mother passed, etc). The biggie was the meningitis which took me months to recover from and never fully did since the Fibro kicked up so badly. I was first put on Nurontan but it didn't work to well & had strange side effects; then was on Lyrica and gained about 20 lbs and it worked for about a year but the Fibro symptoms "broke thru" or I became immune to the meds or something. This is typical. Then I changed to Cymbalta and am on 90mg of it and it worked for 2 years. During this time, I used Tramadol for pain and on days when I was in bed and couldn't hardly walk (my pain effects my legs & feet the worst) I use Soma (muscle relaxer) and on occasion narcotic pain pills (Oxy or Hydrocodone). During this time, I also tried Mucinex (guaifenesin) which you can get a generic form at Costco pretty cheap. I did not see any difference after a whole bottle (over a month) of taking it daily. Maybe I didn't take enough? It's worth a try tho since it's cheap & I have read in several places about how it can help. I am now breaking thru all the meds and haven't been to work for 2 weeks now, prob will have to go on short term leave & am considering long term disability since my flareups happen about every 4 weeks now. I am at wits end for what to do. Has anyone tried medical pot? There is a company, MJNA, that sells it in pill form legally. I can't stand being "high" so I wonder if these pills give the same effect or if it helps. Thanks!

Randy_H
Regular Member


Date Joined Jan 2014
Total Posts : 39
   Posted 3/6/2014 1:23 PM (GMT -7)   
aysen: yes Guaifenesin is used as an expectorant but it also has the ability give the kidneys what it needs to reverse this disease over time. Unfortunately it's not as simple as just taking a certain amount of Guai per day. There are receptor sites in the kidney that can be blocked from Guai by certain plant based chemicals called salicylates.

Some people are even sensitive to salicylates:

http://en.wikipedia.org/wiki/Salicylate_sensitivity

So in order fro this protocol to work you need to eliminate most salicylates form you diet and things like mint toothpaste. It's all explained on Dr. St. Amand web site:

http://www.fibromyalgiatreatment.com/FAQ_salicylate.html

So how do you know if you are getting well doing this or if you are "blocking" the effect of Guaifenesin? Well, for one thing your symptoms will actually get worse, and then better, and then worse. They cycle. Not fun but part of the process. Also, if you happen to have someone trained in the protocol you can have them "map" you:

http://www.fibromyalgiatreatment.com/Photos/doctors.htm

So DXYMOM, if you didn't control for salicylates the Guai would have done you no good.

To those reading this, I know this may sound really "out there". But look at all the Doctors & Practitioners who believe in this! All that matters is that for many this gives them their lives back. There is no thread on this board that claims such a thing. We claim it because we have experienced it. Please, please get this guys book and study what I'm saying. You have so little to loose and so much to gain. There is real hope here. Don't ignore this, please.
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