Should I be seeing a specialist?

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Regular Member

Date Joined Oct 2013
Total Posts : 22
   Posted 1/31/2014 4:18 PM (GMT -6)   
Just a question.
Is there a particular type of specialist that works with CFS?
Background:  I'm a 47yr old active duty Soldier.  I have had chronic pain and fatigue since Aug 2013 following a lower back injury to 3 discs.  I have had traction, chropractic adjustment, referalls to Ortho, Nuro, and Physical Therapy with no relief.  My MRIs show that I should have no pain, but I definately do.  My labs show a moderately positive ANA, thyroid functions were normal.  I do have a CPAP machine and deal with some PTSD that could contribute, but those seem under control through medication/therapy.  My Primary Care Doctor stated that "he doesn't believe in CFS", and the Rhumo specialist just rubbed his hand on my back and proclamed that I didn't have Fibro since I didn't scream ( I guess he missed the part about me being in the Army the last 26 years - we don't scream often ).
So should I see a particular type of specialist?  Is there any particlar test that they should preform.  Just trying to make it through a desk job day is killing me right now, I couldn't imagine doing the jobs that I did just a year ago.

Veteran Member

Date Joined Jun 2008
Total Posts : 731
   Posted 2/2/2014 5:35 AM (GMT -6)   
Batou, welcome to Healing Well. It is nice to meet you but I wish it was under different circumstances. There is no specific physician who diagnoses CFS. I was dx'd by a Rheumy. Two different Rheumys dx'd me with Fibro but only one of them believed CFS existed & dx'd me with it too. You sound like you have Fibro but you are not getting heard by your doctors. I suggest going for another opinion if you can, not all dr's know about either Fibro or CFS. You might try explaining to the Rheumy you have why you didn't react to the testing, that you did feel the tender points & have him recheck. I was going to suggest you also post in the Fibro forum but I just checked & you are. You will get much help there. I have found that finding the right Dr is the key so keep looking & don't give up. I gave up before my dx's because I was just so tired of it all, after about 6 months I started up again & plowed through & got my dx's. Hang in there, hugs, Denise
Fibromyalgia-dx'd: 2006, ME/CFS-dx'd: 2006, Holt-Oram Syndrome dx'd 1975, reduced lung capacity dx'd 2009, nasal allergies, food allergies, depression (lifetime problem) IBS, neuropathy in hips

I have 4 children & 7 grandchildren.

As apples of gold in silver carvings is a word spoken at the right time for it. Prov. 25:11

Regular Member

Date Joined Jan 2014
Total Posts : 39
   Posted 2/19/2014 1:13 PM (GMT -6)   

Denise is right. Plus...

Does your fatigue get a lot worse after strenuous exercise? Does it take a lot longer to recover than it should? Does your pain move around from place? Upper back pain is often present but it's not always in the same place. Sometimes on the left, sometimes the right of the spine.

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