Batou, welcome to Healing Well. It is nice to meet you but I wish it was under different circumstances. There is no specific physician who diagnoses CFS. I was dx'd by a Rheumy. Two different Rheumys dx'd me with Fibro but only one of them believed CFS existed & dx'd me with it too. You sound like you have Fibro but you are not getting heard by your doctors. I suggest going for another opinion if you can, not all dr's know about either Fibro or CFS. You might try explaining to the Rheumy you have why you didn't react to the testing, that you did feel the tender points & have him recheck. I was going to suggest you also post in the Fibro forum but I just checked & you are. You will get much help there. I have found that finding the right Dr is the key so keep looking & don't give up. I gave up before my dx's because I was just so tired of it all, after about 6 months I started up again & plowed through & got my dx's. Hang in there, hugs, Denise
Fibromyalgia-dx'd: 2006, ME/CFS-dx'd: 2006, Holt-Oram Syndrome dx'd 1975, reduced lung capacity dx'd 2009, nasal allergies, food allergies, depression (lifetime problem) IBS, neuropathy in hips
I have 4 children & 7 grandchildren.
As apples of gold in silver carvings is a word spoken at the right time for it. Prov. 25:11