Occupational Therapy Student ( Have questions about CFS)

Welcome, bgilbert. While there is no moderator on this forum, you might have some responses from members if you post your questions. You might be able to get some answers, so please just ask.

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Lanie

diabetes moderator
diabetes type 2 controlled by diet and exercise and
metformin
very low carb way of eating

I have been diagnosed w/CFS since the early 90's. I started looking for answers Iin '85. I would b willing to assist.

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57 y/o christian woman struggling with food not digesting & extreeme nausea. All over body neuropathy, diabetes, chronic fatigue, fibromyalgia, narcolepsy, sleep apnea, rhuematoid & osteo arthritis, bursitis, sciatic pain, sacarylliac nerve pain, 3 bulging disc, migraines, severe insomnia, bi-polar, gerd, cirrhosis, chronic sinus problems, itchy skin, edema, tinninitis & dizziness. Sick since 85

1. My symptoms are extreme fatigue, muscle weakness, flulike symptoms, swollen lymph nodes, achy all over feeling, dizziness, light headed, foggy brain & cognitive problems, memory problems.

2. My day is spent sleeping until I wake up. Then I am either in bed or on the couch for the rest of the day. On a good day I am sitting on the couch watching TV or on my computer. I may have enough energy to do light housework, as long as I pace myself. This may consist of unloading & reloading the dishwasher or vacuuming a room or doing a load of laundry. about once or twice a month, I leave the house & go to the store & pay bills. On bad days I usually just lay on the couch & watch TV, I would say this is how I feel 50% of the time. A really good day I can visit with a friend, this has been very seldom but I look forward to them.

3. I used to be a very active person & I loved to work. I loved my job but had to quit when I couldn't do it anymore. Took me quite awhile to come to terms with that but I finally did. I am now on Social Security Disability. I had many gardens in my yard & one summer realized I had to let that go too. I had people come & dig plants & take them home, probably about 350 plants. I made jewelry & sold them at craft fairs, not anymore, gave it up. Loved to camp, hike & fish but just don't have the energy to try them now. I really haven't made many adaptions in how I live, I just had to give up what I had no energy for. My daughter & my two grandchildren moved in with me after my husband died 4 years ago so I don't have to deal with the loneliness some have to deal with.

4. I have not really tried any types of therapy. Mostly just exercise, not good unless I only do low impact. Walking is the best exercise I have found but only on good days otherwise I crash. I have tried some different supplements but none of them really help. Mostly, life is just trial & error, everyone out there has a cure but none have worked for me.

I hope this helps, I will add on if I think of anything else. I have the stomach flu right now so I don't know how clear I have been or how much help. Hugs, Denise

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Fibromyalgia-dx'd: 2006, ME/CFS-dx'd: 2006, Holt-Oram Syndrome dx'd 1975, reduced lung capacity dx'd 2009, nasal allergies, food allergies, depression (lifetime problem) IBS, neuropathy in hips

I have 4 children & 7 grandchildren.

As apples of gold in silver carvings is a word spoken at the right time for it. Prov. 25:11