I was diagnosed with CFS about 25 years ago. I got mono and then never got well again. Over the years my symptoms slowly improved so I was able to work - without being able to do much more than that, like have a social life. However, the last few years I have crashed again and am really struggling.
I am very tired all the time, have no stamina (if I try to do anything physical I get exhausted and feeling sick), I have various minor aches all the time. I struggle with insomnia. My stomach is very sensitive to certain foods now. My toes tingle all the time and when I am more tired they also ache. I struggle with anxiety, depression and complete hopelessness. If it wasn't for my husband I would just give up.
The doctor I saw recently was a Rheumatologist who specializes in Fibromyalgia. After taking a number of blood tests to rule out other causes, she told me that I did not need to return to her.
I know there is no cure for this disease, but I just need a doctor who will listen to me and at least try something to help with some of the symptoms. I think the hardest part for me is not being believed.
Sorry for all the depressing stuff. I hope someone can help me.