WHY? WHY? WHY? Doctor thinks I am crazy

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jp1224
New Member


Date Joined Mar 2014
Total Posts : 7
   Posted 3/31/2014 1:10 PM (GMT -7)   
My doctor will not diagnose me with CFS even though I have every symptom and it had affected me emotionally, physically and mentally. I know I have suffered with this for years and the more I try to explain this to my doctor the more he thinks its lack of exercise. I think deep down he thinks it is laziness but that would be unprofessional for him to say.
Every since I was little I loved sleep. I could never get enough of it. 12-14 hours a day were not enough for me. It would cause my school work to suffer. I would be so sleepy in school that they thought I was a day dreamer so I was subscribed Ritalin. This helped my focus some. When I got home from school I would crash on the couch and sleep for hours afterwards not having much time to do my school work. I would wake up in the mornings feeling tired and weak. Like I had not slept in years but I actually slept well. After I graduated from school and went on to college I was still suffering from this. No matter how much sleep I go it was not enough. Always feeling weak, flu like. I started missing class because sleep was more important to me at the time. I finally dropped out and started working two jobs. Trying to stay so busy to convince myself that I was not lazy. I really wanted to work and succeed but there were some days when I would wake up and my body said it was not going anywhere. I would have to call into work because I could barely stand I was so tired.
Now I am a Stay at home mom of two kids and I still have this issue. No matter how much or how little of sleep I get it is not enough to function on a normal life. I have tried and tried to exercise which I enjoy doing when I have the time and I feel good while doing it. But after an hour I get really sleepy again and I get bad headaches. After months and months of working out and this still continues I know I have a problem. My memory is horrible, I can not properly function, I am tired and sleepy all the time, I feel weak like I am coming down with something, muscle tiredness, etc... It is affecting my relationships with people, has affected my work ethic, my schooling in the past, my ability to commit to anything. I am really concern that all these years I have suffered from CFS and now that I discovered this is what I may have my doctor seems to overlook this and thinks I am crazy for bringing it up.

Randy_H
Regular Member


Date Joined Jan 2014
Total Posts : 39
   Posted 3/31/2014 4:44 PM (GMT -7)   
Being "sleepy" Vs feeling "fatigued" or physically exhausted are two different things. I have been so physically exhausted after exercise that I really didn't want to stand up. But strangely, lying down did nothing to relieve the deep level exhaustion I was feeling. However, I was not sleepy trying to keep myself awake. I see these are two different things, the physical exhaustion being more typical of CFS.

On the other hand many MD's don't really believe in CFS. It is a diagnosis of exclusion with no good test. And the symptoms vary from person to person. Ask you MD how many people he has diagnosed with CFS. That's a good question to ask. If it's Zero, move on.

Dtav
Regular Member


Date Joined Mar 2014
Total Posts : 59
   Posted 4/4/2014 9:38 AM (GMT -7)   
You definitely need to make sure your doctor not only believes in CFS but is knowledgeable about it. I was very lucky that my doctor diagnosed me with CFS shortly after I was diagnosed with Lyme Disease. I've been managing with it for 17 years and he keeps up to date with all supplements etc. I thought my daughter might have had it as her fatigue was off the charts with her Lyme Disease but she ended up testing positive for narcolepsy. That's something else to be tested for when dealing with fatigue. Good luck to you both.

cathy22
New Member


Date Joined Apr 2014
Total Posts : 2
   Posted 4/13/2014 11:58 AM (GMT -7)   
This does sound quite similar to how I have been feeling and would be grateful for your opinions :)
Since having my second child in june 12 (had lost a lot of blood - big baby!), I have been feeling very dizzy (at first docs thought it was labrinthitis - sorry for spellings!) but it became constant along with fatique and jelly like legs. I feel sleepy all the time and feel heavy and dizzy in my head even just walking around at home. Have to have daytime sleeps with children and go to bed really early every evening. No longer go out to socialise because I feel tired and faint and off sick from work. Recent blood test showed im vitamin D deficient. My mum has MS but neurologist seems sure I do not have it luckily. He suggested perhaps chronic fatigue. My immune system is terrible and I am recovering from tonsillitis and antibiotics.
 So worried that it will get worse till I cant look after my children and haven't been given a scan or anything. Any ideas as to how to feel better?!! Thank you!!
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