Looking for some advise :)

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Panic'in
Regular Member


Date Joined Apr 2014
Total Posts : 51
   Posted 4/10/2014 3:41 PM (GMT -7)   
Hey guys.

Well I've had CFS since 2009 when it was apparently activated by a virus and I got really quite bad with it. After a month or 2 I was coping with the dissorder and haven't been too bad. When I say this I mean I'd managed to live a relatively normal life but not work.

I decided to try work again, starting some 3 weeks ago and I did manage 2 week with feeling absolutely exhausted after work yet managing to make the next day. Last Friday I seemed to take a turn for the worst and have really gone downhill, essentially feeling like I did back in 2009 :-(.

I saw a doctor Monday who said its most likely viral but I am sceptical. In essence I've been. Very weak, easily made out of breath, badly dizzy/lightheaded, tight chested, tight stomach, cold hands and feet, shivering (even when warm but not as much when warm), sweaty when warm and I'm sure I wheeze when I breath in dispute the doctor saying my chest was clear :(.

I haven't been able to get back to the doctors in person as I feel so dizzy and generally rubbish but have spoken to doctors 2 times over the phone who just tell me to rest.

There's my backstory, does this sounds 'normal' in the realms of CFS and really what can I do to improve on my general CFS health. I've struggled through for a couple of years and am keen to fight back :).

cathy22
New Member


Date Joined Apr 2014
Total Posts : 2
   Posted 4/13/2014 12:07 PM (GMT -7)   
That is exactly how I am feeling and I feel so fed up! I was vitamin d deficient which apparently does not help so be sure to get your blood checked if you haven't already. I have had to stop working from a job I love and its so hard. I think mine all started after a bad birth with my second child and haven't recovered since. My plan is to keep my diet the best it can be, keep a steady sleep routine, try to get plenty of fresh air and try CBT which is recommended! I got told by one doctor it could be stress but I have stopped working altogether to be a full time mum (which I know is still stressful) but there are millions of mothers who cope without feeling like this.
Hope you start to feel better soon!

MzVal
New Member


Date Joined Apr 2014
Total Posts : 3
   Posted 4/16/2014 9:46 AM (GMT -7)   
There is often hypothyroid involvement in CFS. Feeling too cold can be a symptom. it might be worth checking out. Also food allergies/sensitivities and chemical sensitivities are common among CFS sufferers. Allergies can cause wheezing without chest congestion and stomach issues so you might look into that. (I am sensitive to wheat.) CFS has a whole host of related complaints. Orthostatic intolerance, also common in CFS, might explain your dizziness. I have been dealing with this illness since the 1980's and I have realized that a lot of my symptoms are all a part of the syndrome. The good news is that they can go as suddenly as they come. The more I worry about my symptoms, the worse they get. I know I am not dying, I'm just dealing. I have had a great experience taking Low-Dose Naltrexone (LDN) for my CFS symptoms. You might look into it for yourself. It took my pain and mental fog away and I had much more energy. It helped for years until just recently. For some reason my symptoms have come back full blown. Fortunately, I have never had to stop working (although sometimes I wish I could!) But check out LDN. It really has helped a lot of people. Good luck, dear!

Panic'in
Regular Member


Date Joined Apr 2014
Total Posts : 51
   Posted 4/16/2014 12:11 PM (GMT -7)   
Thanks so much for the advise. I'll be sure to look into LDN, the website for it certainly makes it seem like a good thing for those of us with CFS. :)

Trevor koch
Regular Member


Date Joined Aug 2013
Total Posts : 29
   Posted 4/17/2014 4:41 AM (GMT -7)   
hELLO, I been fatigued for years but could always get by, but the last 4months have been shocking . I,ve stopped playing all sport and only ust hanging on at work. Main problems fatigue.memory loss{people I,ve known for years I won,t have foggest what their name is},can't remember simple words in sentences when chatting,also go to the loo 10 times each night.I've got lots of other things going on as well. I,ve had every test in the book Slight low vit D thats it.
The saddest thing it,s not me that I worried about. My daughter is an a+ student with a photgraphic memory she has a voice to die for. She was a very high level singer at state level.That is all until 5 months ago. Now she stays in bed all day. The only school knowledge she retains was before she got sick. She has lost 15 kg in the past 5 months. She is 15 years old.The slightest thing makes her stressed. She no longer attends school and can;t go out in public with out being paranoid. If any body has any ideas it would be greatly appreciated.
She had all the tests her vit d was slightly low as well. Her ANF teswt was + but not high

Chotti
Veteran Member


Date Joined Oct 2013
Total Posts : 500
   Posted 4/17/2014 8:55 PM (GMT -7)   
Hello and welcome to this forum.


I hope the Easter Holidays will bring happiness and joy. Let the clouds open up to a day full of sunshine & laughter.
One day at a time.

Take all the sorrow & disappointment roll into a attitude which can be inspiration to many who give time and determination a chance to heal.

See pic of my sidekick Miss Gracie...
My collie who brings me such great luv, laughter and so much attention. She is always by my side. If I fall she helps me up. If I need the news paper & mail she gets it. If I need emotional support just ask her to roll over....LOL PLZ SEE HER PIC below :

https://flic.kr/p/gkkHS1

smilewinkgrin
"As long as there is breath there is hope, LIFE is a GIFT. "

Post Edited (Chotti) : 4/18/2014 8:06:24 PM (GMT-6)


Trevor koch
Regular Member


Date Joined Aug 2013
Total Posts : 29
   Posted 10/18/2014 9:22 PM (GMT -7)   
my daughter and I are both being checked for POTS syndrome the symptoms seem very similar to yours If your heart beat is racing when you stand up you need to get it looked at . This thing makes you lie down all the time but you you never feel rested.

eat2bwell
Veteran Member


Date Joined Sep 2014
Total Posts : 534
   Posted 10/20/2014 6:07 AM (GMT -7)   
It is important to understand all disease is caused by too many toxins in the body. These toxins can be viruses, bacteria, heavy metals, pesticides, herbicides, chemicals which are put in our food, GMO food, ..........etc. The bodies way of dealing with these toxins is to detoxify itself. In order for the body to detoxify it needs vitamins and minerals. The bodies gets vitamins and minerals from the foods we eat. The key to all healing all disease is the diet we choose. If you want to detoxify the body really fast start a program of juicing raw fruits and vegetables which will get a large amount of vitamins and minerals in the body fast. Stop drinking soda, eating fast food or process foods or doing anything which puts toxins in the body. For sure get your vitamin D level check. Most people are deficient in this vitamin because it is the sunshine vitamin and very important for good health. Give it a try for a month and most likely you will feel better.
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