Is this fibromyalgia or cfs?

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eulalia
New Member


Date Joined Jun 2014
Total Posts : 13
   Posted 6/27/2014 12:30 PM (GMT -7)   
I have been experiencing some symptoms which seem to be getting worse. Have not been well for about 3 years now. My gp isn't very good and I feel like I am a bother as I'm there so often. They put it down to stress from losing my mum and so did I until recently as I've had 4 kind of blackouts fainting seizure type spells twice while I've been out and twice at home the last one was the worse. I get it if I stand or walk about it comes on suddenly and it goes black and I feel myself going afterwards I go into a cold sweat shake and have headache. This leaves me weak for a few days also. I am constantly tired with no energy to even do simple things and the tiredness and weakness is the worse for me as well as the blackout feelings. I feel as I'm about to die and am now scared to go out as soon as I have to stand still in a queue in a shop I feel it coming on and I have to keep moving around to prevent it happening. My head feels full of fog also and headache constantly I even feel dizzy if im sitting down at times. I have trouble getting to sleep and staying asleep and never feel rested in the morning. I have chronic pain in my neck shoulders and sometimes stabbing pains in front of neck and in other places in the body. I have lower back pains daily I have arthritis in my knee also. I have sleep apnea and Tmj which causes my face to hurt and I have to sleep with a mouth guard I've had made. I have carpel tunnel and get pins and needles daily and drop things alot. I have ringing in my ears and deafness. I suffer chronic migraines and silent migraines it alternates I get visual aura and can't see properly for up to four hours sometimes. My periods are off the hook so heavy clotting and pains even before they start. My memory is getting worse and people notice it around me i can't remember things I've done in the morning by the evening. Bright lights hurt my eyes and make my head hurt and fainting feelings worse. Am not sure what I should do and would like to know of anyone who has similar symptoms. Do I go to my gp with a list of symptoms written down do I ask for an mri or brain scan, at my wits end can't live like this any longer but don't really know how to get my gp to take notice and not blame it on stress.

Randy_H
Regular Member


Date Joined Jan 2014
Total Posts : 39
   Posted 7/9/2014 11:14 AM (GMT -7)   
First and foremost, find an MD that actually believes in Fibro/CFS. You'll get nowhere otherwise.

I believe, as do many others, that Fibro and CFS are simply two manifestations of the same disease. And, I am sorry to say that if that is what's going on with you, you will not find satisfactory relief from the standard medical profession. That include your new doc who at least believes in it.

Here is the good news: I and many others have been essentially cured (though really just in remission) through a protocol developed by a UCLA endocrinologist Paul St. Almond who has this disease and nearly killed himself before finding a solution. Please read the positive reviews on this book: http://www.amazon.com/What-Your-Doctor-about-Fibromyalgia/dp/B001Q3M66G

If after reading the reviews I'd be surprised if you don't buy the book. St Almond gave my life back to me.

Bettsann
Regular Member


Date Joined Feb 2014
Total Posts : 278
   Posted 8/8/2014 5:06 PM (GMT -7)   
:-) Hello!
I just wanted to reply to give you a cyber hug and hopefully a little feeling of support. I agree with the other post...you need to go to another dr. You deserve better attention. I also think you could benefit from some GOOD anti=anxiety drugs and some therapy... you deserve both...a good listening ear.
I want to wish you all the good luck in the world. Love to you, too.
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