Did not get reply on 1st post-Revised /Any info appreciated/ Big mistake

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New Member

Date Joined Jul 2012
Total Posts : 7
   Posted 7/8/2014 7:26 AM (GMT -6)   
Chronic face pain since sinus surgery 15 years ago. Diagnosed with Sleep Apnea 7 years ago.  CPAP has not helped.  I have also had specialized bite block with no real help either.  I did not want to get lost in the maze of too much info. on the internet, so I have tried not to absorb myself too much or I would really be lost on the internet.  Big mistake!!! MAYBE I DID NOT want to believe what I was reading. Presently I now have about 4-5 good days and 2-3 days when I barely feel alive. Based on symptoms, I believe I have CFS.  Blood tests 5 years ago revealed nothing identifiable and now waiting for the latest test results.  Most days are ok if you don't factor the pain.  Two days are spent in bed, no interest in food, water, tv.  All I do is basically sleep.  I wish I knew if this was failed SLEEP APNEA or CFS.  I do have some neuro deficits and have mild tremors most of the time/daily.  I have read that the standard form of treatment but I would like to know what others think and recommend.  Thank you and many blessings!  

Regular Member

Date Joined Apr 2014
Total Posts : 236
   Posted 7/9/2014 1:32 PM (GMT -6)   
Hello kadakada, I was diagnosed with cfs and later a friend told me about Lyme disease and how many illnesses Lyme mimics.Like 300 and cfs is one of them. I was tired, achy, had TMJ, hives on my back and more. I went to a LD doctor and was clinically diagnosed with Lyme and bartenolla. It would be something to look into. You could look at the Lyme forum here and see the symptoms on the new to Lyme thread. Ask the nice people there what they think. They are very knowledgeable.
Good luck =]chloe
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