Hi everyone, I've been sick for two years and was just diagnosed last week. Finally! My "flares" are coming more often and lasting longer now. I feel like I have the worst flu ever as far as body aches and feeling run down, and the worst hangover ever as far as headaches and slight nausea. I also have frequent "zingers" inside the top of my head that tingle, and are slightly painful and sort of itchy all at the same time. This feeling is coming from the inside, and isn't topical/skin related. I also have frequent sore throats, ear pain, memory loss and night sweats.
I spent last week at Mayo and also found that my thyroid levels are off again (I have hypothyroidism) and my iron is too high (not due to supplements or diet). I also found that I have eczema, dermatitis, mild asthma, arthritis in my left hip, and that I have micro-arousals when I'm sleeping (not due to breathing problems). I'm having a sleep study done in a couple weeks, getting my thyroid med increased and getting on meds for asthma.
I'm going back to Mayo next week for a Chronic Fatigue clinic so I will learn more then. I feel more hopeful than I ever have, but I still keep wondering everyday if I will ever feel better again.
MY BIGGEST QUESTION IS...SHOULD I CONTINUE TO WORK WHEN I FEEL LIKE I'M DYING? I'M AFRAID TO GIVE IN TO HOW I FEEL AND WORK LESS OR NOT AT ALL. I JUST DON'T KNOW IF I'LL GET BETTER IF I DON'T ALLOW MYSELF TO REST LIKE I SHOULD.
Post Edited (mishell) : 8/1/2014 7:21:19 AM (GMT-6)