Posted 2/24/2015 2:39 AM (GMT -7)
Hi there, sorry you have this, but glad you have a diagnosis.
What has helped me the most is Provigil. I live, eat and breathe this medicine. It's very expensive. I am super grateful for insurance!! The chemical name is modifinal, and it has a longer acting version. Nuvigil (armidifinal). Provigil is a stimulant, but different than the amphetamines. The amphetamines make you feel high, like you snorted coke. Provigil just makes you feel refreshed and alert, clears the brain fog. Actually, taking both Provigil AND an amphetamine are very helpful. Provigil gives you mind power while the other (adderol, ritalin, dexadrin) give you physical energy. I did best when on both of these, but I very quickly developed a tolerance to amphetamines, and have to take half a months worth (at max dose!) to feel the slightest bit of help, so I stopped filling that script!!
I haven't tried an herbals or supplements yet. When I get paid next month, I am going to try NADH, and see if that helps.
Also, if you have not checked ur vitamin D, you might want to. My D was down to 7. It's up above 20 now, and rising, but i dont' feel any better yet!!
I hear a sun lamp helps increase energy. Not the ones you can buy over the counter, but ones you get with a script from a doc. I have one on the way, and I will find out if it helps with energy as reported!!
Good luck finding things that help!!!
Fibromyalgia, Chronic Multifactoral Fatigue, Diabetes, Cyclothymia, PTSD, Scoliosis