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Scouticus
New Member


Date Joined Nov 2014
Total Posts : 1
   Posted 11/30/2014 8:20 PM (GMT -7)   
Hello there, would just love some perspective.

I have CFS and POTS, due to a viral infection I had in 2009. Over the past 5 years, I have seen a cardiologist (who I get 12 month checks with for mitral valve regurg), an electrophysiologist (sorry if spelling is off, bad brain fog today), an endocrinologist, and a couple of naturopaths (who helped more than anyone).

I had a checkup with my cardiologist last week, because my GP pushed me to after I had a fainting episode (which was 100% related to POTS, it was a very hot day and I hadn't eaten or drunken any fluid). I had my checkup, he did an echo, which he said was totally fine, but then he asked me to jump on the treadmill...which I dread with a passion. I knew immediately my heart rate would sky rocket, as it does when I have to do unpleasant exercise (pleasant exercise is a nice walk!). Anyway, at stage 1 of the treadmill, my heart rate was around 140bpm...and I felt OK. Then, at stage 2, my heart jumped to 190bpm, and I felt short of breath. I didn't have any chest pain / squeezing...just shortness of breath which subsided when getting off. He stopped the stress test there...after what must have been barely 3 or 4 mins. He said my heart function is good, but that he didn't understand why it went so fast (he doesn't really seem to take into consideration my POTS). I have been a bit de-conditioned lately, as I have a problem with the sinus in my nose and my nose is always blocked, making breathing through my nose very hard & unpleasant.

My heart recovery rate was good, dropping back down to normal rate (which for me is anywhere between 70bpm and 95bpm resting) in a couple of minutes. My file with him says "Inappropriate Sinus Tachycardia & Mild Mitral Prolapse" which he has said is totally benign because my heart is very healthy, but he turned to me and said "why don't we just get a Cardiac Angio CT to make sure you don't have any genetic abnormalities with the arteries"...and I felt a little thrown. I felt worried by this and asked if everything was definitely fine from what he just saw and he seemed really calm and said yes, that my heart function was strong and no signs of ischemia etc, that that definitely wasn't the issue.

I'm just really unsure as to whether there's any point of getting the CT scan? I mean, getting all that dye injected into me and then hacking the radiation of the CT scanner...for what? I mean, I know that my condition is because of POTS. I would have died by now *touch wood* if I had a heart abnormality with my arteries...I have had that many rapid heart rate episodes etc over the last 5 years, have had so many heart scans, ECGs, echoes, stress tests etc...it would have taken me out by now, surely. Also, the fact that my heart recovered so fast after exercise, I'm confident that that is a sign that my actual heart health is fine...it just goes fast and whacko sometimes because of my POTS and Dysauto issues.

My main daily symptoms are fatigue, legs feeling heavy, brain fog, chest pressure / tightness, sore muscles, awareness of my heart, sometimes hard heart beat, shortness of breath when over exerting, low blood pressure, dizziness, depression, PACS & PVCs....anxiety, resltessness, lethargy, etc.

I am booked in to get the scan at the end of the week, and my gut is saying it's a waste of time & money, and that I already know the answer. Interestingly, I felt like I had no need to see my cardiologist, but went anyway because I had the time (which is stupid) and didn't expect him to make me do a treadmill test again. He loves that freaking treadmill! Haha. Am I being stubborn? Or just knowing my own body?

jkn913
Regular Member


Date Joined Nov 2013
Total Posts : 167
   Posted 12/5/2014 9:55 PM (GMT -7)   
I am not sure what POTS is, and sorry no one responded to your post.

Did you get the test? How are you feeling?

BDL
Regular Member


Date Joined Dec 2014
Total Posts : 250
   Posted 12/28/2014 2:38 PM (GMT -7)   
Have you considered Lyme disease?
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