You'll generally find me bumping around in the Lyme forum, but I came across this article and wanted to share it here as I think it's great news and wonderfully empowering!
"Chronic Fatigue Syndrome: Wrong Name, Real Illness" by Miriam E. Tucker
The actual article can be found on Medscape, here: www.medscape.com/viewarticle/837577
But you do have to have an account, and although you can create one for free, I know that many don't like to do this - so you can see a discussion of the article here:forums.phoenixrising.me/index.php?threads/medscape-cfs-wrong-name-real-illness.34837/
But here are some excerpts from the article:
".... In early 2015, the Institute of Medicine, commissioned by HHS, will release recommendations for new clinical diagnostic criteria and possibly will propose a name change as well. For clinicians, the first step is to recognize that the condition is real.
"I think the most important thing for physicians to know is that while we don't have a diagnostic test or a proven treatment, there is now abundant evidence that in these patients there is an underlying biological process. Their symptoms are linked to problems of their biology and not imagined," said Harvard Health Publications editor-in-chief Anthony L. Komaroff, MD, to Medscape Medical News. Dr Komaroff is also professor of medicine at Harvard Medical School and senior physician at Brigham and Women's Hospital (Boston). He has been studying the condition since the 1980s."
"The condition is tragically real for Ronald W. Davis, PhD, professor of biochemistry and genetics at Stanford University and director of the Stanford Genome Technology Center, whose work with genetic linkage mapping enabled the Human Genome Project. His 31-year-old son developed ME/CFS 3 years ago and is now completely bedridden and unable to speak.
"I don't think people understand how horrible this disease is. They don't look that sick. Even my son, who is incredibly debilitated, doesn't look sick," Dr Davis told Medscape Medical News.
In his new position as ME/CFS scientific advisory board director of the OMF-
open Medicine Foundation, Dr Davis has recruited Nobel laureates James D. Watson, PhD, and Mario R. Capecchi, PhD, and other esteemed scientists as advisors to create what he envisions as a collaborative ME/CFS research effort akin to the Human Genome Project.
"I think it will yield if we get sufficient funding, quite frankly. It may be a tough nut to crack...I'm looking at this long-term. I don't like the long-term because my son is ill, but I'm realizing this won't be temporary," Dr Davis told Medscape Medical News."
"Numerous physical abnormalities have been identified in ME/CFS patients, with stronger biological signals seen in studies measuring response to exercise that differentiate patients from controls and far exceed the effects of mere deconditioning, experts say.
Such evidence includes significantly reduced oxygen consumption and workload for ME/CFS patients after treadmill tests, and altered gene expression compared with controls following moderate exercise.
Other biological evidence includes a recent finding of bilateral white matter atrophy in ME/CFS patients compared with controls, several studies documenting significant decreases in natural killer cell cytotoxic activity, and increased levels of multiple proinflammatory cytokines."
There is a lot more information in this article, so as I said, creating an account with Medscape is free (or I wouldn't have one! LOL!), so I encourage you to do so, so that you can read this article! I'm sure more will follow!
As a Lyme patient, I deal with many of the same symptoms as a CFS patient does and I know that it's hard at times, but hang in there!!!