Posted 1/30/2015 3:37 AM (GMT -6)
TerrieEllis, it sounds so horrible about your teeth, gums & jaw bone. I have never heard of this before but I hope you find your answers for it soon. Have you ever been tested for Sjogren's Syndrome? That is an auto immune disease that makes your eyes & mouth dry because your white blood cells destroy your moisture producing glands. Just a thought.
I really don't do too much for my CFS. I pace myself always & get as much sleep as I can. For sleep I take Trazadone to help me stay asleep & Tizanadine to help me go to sleep. I think coming to terms with this illness has helped quite a bit, once I decided that I was really sick, I let go of the stress of needing to be able to do things. People thought I should be able to pull it together & push through it, I thought the same thing but realizing that was not possible helped me let go of the stress of the should of's, could of's & would of's. I don't do anything that I don't have the energy for, I make limited future plans, usually only dr's appointments. I spend my time doing things I find enjoyable, if I am not crashing, for example I am making my granddaughter a crocheted afghan. I used to make jewelry but I became such a perfectionist with it, I was stressed out all of the time so I have had to quit that for now. At least until I can get back to the joy of it. One of the biggest things I did for myself was to get rid of the work clock I had in my head & let myself sleep until I woke up, no matter how long & whatever time I got up was okay. Hard one to do, I had everyones' idea of "go to bed at a decent time & get up at a decent time" drilled into me. Now, I can sleep anywhere from 12 hours to 24 hours, if I get up at 3:00a.m., that okay. My daughter & her two kids & I live together & they know how I am & we all deal with it. I love to visit with my family while I am up.
Not being able to work was a hard time for me but I am now on SS disability so I can stay home without worry. I tried to keep working but I just couldn't do it.
Take care & keep us posted on how you are doing. Hugs, Denise