Not sure what is happening to my mother and Doctors have no clue

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DragonSushi
New Member


Date Joined Jan 2015
Total Posts : 2
   Posted 1/21/2015 8:04 PM (GMT -7)   
My mom is 52 and has since a year ago felt this immense sense of fatigue. It's to the point where she almost cries out of tiredness, and there has been numerous times where you gets blurry vision to the point of passing out and she has to sit down. She has fallen twice without remembering, just waking up on the sidewalk at the instance of falling. She describes this sensation in her head, kind of like an electric shock that makes everything go black for her.
I did not think too seriously of it, because my mom has always been a hard-worker and she has low blood pressure so I just assumed her age has caught up with her.
But a couple of months ago I gave her a piece of chocolate and she told me she would save it for whenever she felt fatigue.
The next day me and her go for a walk and as soon as we come in the house she lies on the sofa and asks me for that chocolate. I went to give it to her. A minute later my aunt calls on the phone and I went to hand the phone to my mom and she can't really talk, she is holding one palm on her hand, closed eyes and is struggling with saying 'not now' not now' not now'.. I end the call and ask my mom what is wrong. Her face is frozen and all I see is tears coming down her face, and I freak out. I call 911. My mom was frozen for about 30 seconds. We took her to the hospital and she literally looked like a zombie. No life in her eyes. I kept on asking her how she was and all she said was, in a very zombie-like, robot-tone 'I'm fine.. let's go home.. I'm fine'.
The Doctor came to see what was wrong with her and told my mom to grab the Doctor's hand and squeeze them as tightly as she could. My mom grabbed the hands very loosely. And the Doctor told her to squeeze them and my mom tried but couldn't. And the doctor said 'C'mon don't be ridiculous' and my mom started crying cause she just couldn't.

Now here's the thing, my mom never cries. She will rather suffer in pain on her own than to admit to anyone she is in pain and needs help. This is why seeing her cry and so robot-like was the worst day of my life and I am yet traumatised.

The Doctor asked what happened and my mom told them that she felt this immense tiredness before this happened and then as she was laying on the sofa she felt this kind of electric shock to the brain and everything became black.

They took her blood for analysis and did a CT scan and everything turned out completely fine. My mom has been doing a bit better since, but she has been constantly tired. I don't know what is happening, it is so scary and I feel like I'm losing my mind over it, because I do not live with my mom, as I'm in Uni, so I can't be there to help her everyday.

I'm just scared and no Doctors have the answers.. I have googled and come across this is the most similar to what my mom is experiencing that I can come to.

Any help of what this could be would make me so so happy!

Thanks everyone.

BnotAfraid
Forum Moderator


Date Joined Apr 2012
Total Posts : 7179
   Posted 1/22/2015 6:57 AM (GMT -7)   
welcome,

Your Mom should have a full physcial done, bloods and all by her primary doc.

It could be minnie strokes, they don't always should up on the CTS and MRI's although she is young yet for them.

If she is on any daily medication, take ALL the medication to the druggist where you have it filled, ask them to look carefully for interactive sideeffects.

All that being said and done, yes she could have CFS. I suggest her diet be looked at and a whole food, artifical food dye free diet be started.

Peace and strenght.

Trina
Moderator - Depression
Be still and know there is Peace.

Kabir says: "Student tell me, what is God? He is the breath inside the breath". from the poem Breath.
DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;

DragonSushi
New Member


Date Joined Jan 2015
Total Posts : 2
   Posted 1/22/2015 5:53 PM (GMT -7)   
Thank you for the answer.

My mom is not on any meds currently and she has had all her bloods taken twice now and it came back fine except for that she is a bit anemic, but has been that since years.

When my mom was hospitalised the doctors never said anything about mini strokes, even though she explained all her symptoms. To be honest, doctors are really crap over here, they would not even know what CFS is, so it's hard to go about.

Also, could it be possible that my mom was suffering from a migraine attack? It runs in her family, but I'm not sure if the symptoms are similar.

BnotAfraid
Forum Moderator


Date Joined Apr 2012
Total Posts : 7179
   Posted 1/23/2015 10:05 AM (GMT -7)   
Could be a type of migraine, there are so many. I suffer from 3 diff types myself. The doc dx is 'complex migraines'.

If you can, try to find a diagnostic specialist. They are hard to find, mostly in large cities and major hospitals. Teaching hospitals at that.

here is a link www.relieve-migraine-headache.com/diet-headache-migraine.html for a headache diet.

I would like to point out that any food dyes especially red and yellow can cause a lot of symptoms for people, doctors do not agree on the whole, but I am one person of proof.

I hope your mother feels better soon. Please let us know if you find any help.

Peace
Trina
Moderator - Depression
Be still and know there is Peace.

Kabir says: "Student tell me, what is God? He is the breath inside the breath". from the poem Breath.
DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;

ladybugdreams
Veteran Member


Date Joined Jun 2008
Total Posts : 726
   Posted 1/27/2015 11:28 PM (GMT -7)   
Hi & welcome. While I can commiserate with your Mom on the fatigue,I don't know about the brain zaps. When I first got sick I was so fatigued that I literally could not get off the couch, I had never felt such tiredness & I couldn't move. I would lay there & try to get up to go use the restroom & couldn't get up. I would feel like I was going to pass out because, like your Mom, I have low blood pressure. (kind of par for the course with CFS).

There are too many things that this could be to say, at this point, that yes it is CFS. Like Trina said mini strokes sound feasible & the food dyes can really cause a lot of problems. No matter who you go see ask them if they believe that CFS exists, quite a few Dr's still don't think this is real, that it is all in our heads. Man I wish that were true, I would be up & off of this couch so fast & out doing the things I used to love.

Keep us updated anything you find out. Where do you live? Hopefully you can find a good Dr. Hugs, Denise
Fibromyalgia-dx'd: 2006, ME/CFS-dx'd: 2006, Holt-Oram Syndrome dx'd 1975, reduced lung capacity dx'd 2009, nasal allergies, food allergies, depression (lifetime problem) IBS, neuropathy in hips

I have 4 children & 7 grandchildren.

As apples of gold in silver carvings is a word spoken at the right time for it. Prov. 25:11
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