Have you had a sleep study done? I was exhausted....and it got worse...I had put on weight due to being less active cause of the fatigue...I developed Sleep Apnea....Once I got that treated, I was still exhausted, but not as bad as I was there for a while....Also, I seemed to take a turn for the worse...turns out the Diabetes was making me tired, high blood sugars. High blood sugars can make you quite drowsy.
Have you checked for Celiac disease? Also, even if you test negative for it, you can still have a sensitivity to gluten that can cause fatigue. Aspertame poisoning could make you real tired too. I hear many people diagnosed with fibro go off aspertame, and get better. What about
chronic lymes disease? Many mainstream docs dont even believe in it, but there is more and more evidence to support it as a real problem.
I kept doing research, and coming back to the doctors asking for different tests or different specialists....my docs were not very creative or assertive...finally, about
15 years of seeking a medical diagnosis, my sleep specialist sent me to Mayo Clinic in Rochester, MN. he medicated me to the hilt, and it wasnt working. Mayo has a fibro/CFS clinic that finally diagnosed me. They can rule out everything else. It took two trips. I was undiagnosed before because I dont have swollen lymphnodes for CFS, and they have recently changed the criteria for fibro...I am a-typical fibro, so hard to spot, even for the doctors who believe its real and were looking for it!
The med that saves me is Provigil, or modifinal. Its not an amphetamine. I can take a handful of those with no results, but Provigil helps me a lot. Now, if I push myself, and am too active, even that wont help me. When its working, it does not give me a buzz like amphetamines, but it does clear the brain fog and make me feel alert
and refreshed, like sleep never does! If you want to try modifinal, and ur docs wont give it to you, you can order it without a script
out of country. Its almost two grand for my script
here, in the US, but I get extra from out of country for under 70 cents a pill, which is expensive, but it's worth every penny and more. If you don't order more than a 3 month supply, it's not illegal. Its not technically legal, but not illegal. its a grey area. what i researched says no one gets in trouble for it, cause its not technically illegal for small orders. However, the shipment also can get hung up in customs, so I order from sites that guarantee delivery.
Nuvigil is a long acting Provigil, (armodifinal) which you can also order out of county with out a script
. If your doc is willing, perhaps you could get samples of either of these?
Also, some pain meds help make me alert
when Provigil fails me. Now, you cant take pain pills as a stimulant I dont think, its just nice a side effect for me! They all have differnt affects on each person though.
I am on the verge of getting a SADD lamp. If you have depression, you shoudl be able to get one covered. I hear they help with energy. I am anxioulsy awaiting mine to see if it helps.
If you have cfs or fibro, than one huge behavior modification is to NOT PUSH YOURSELF!!! You may experience post-exhertion malaise....which means when you are active, you pay for it. If you overdo it, you are down for days, sometimes weeks. If you take a little bit each day, you come out further ahead than if you do it all on the few days you feel decent. Slowing down allows you to accomplish more, cause you crash less, and have more days where you feel better. I would monitor how much you do, and if the worse days are after activity. Mental activity counts, as does stress. All of these will make you crash if you have post-exhertion malaise. Many docs dont even seem to know this term, though its all over the web with fibro/cfs patients.
I am scattered here tonight, I hope something I said helps!!!
It seems finding the right doc is pretty crucial here at this point. I hope you get some answers!!
Fibromyalgia, Chronic Multifactoral Fatigue, Diabetes, Cyclothymia, PTSD, Scoliosis
Post Edited (ptl4now) : 2/24/2015 1:38:35 AM (GMT-7)