I'm closing in on 54. I've had fatigue issues since about
I had brain tumour removed at 19. But retained epilepsy. I've had virtually no assistance since then but struggled on by resting wherever and whenever I could. I was told that I was 'cured'. I think it was my strong willpower and youth that kept me going. However I collapsed end of 2012 and had just run out of steam.
Since then, I've had all kinds of tests etc done. I changed my doctor from a poor almost cruel man to a kind, caring and very professional doctor. She went about
trying to find the cause. Eventually after an appt today, she diagnosed CFS.
What a relief.
After spending the last two years trying to convince myself it was all in my mind, and pushing and pushing...only to fall quite poorly each time. Now, I can concentrate on the correct approach.
This is one hell of an illness.
I only hope they come up with a blood test to find this asap.
Finally...I can pace myself. Not feel guilty about
not having the strength to have a shower! and so on... All the weird symptoms have a reason now and not 'possible cancer of some kind'.
Relief tinged with sadness...as now I know the battle I will have each day.
Then there will be the benefits system next...oh joy.
(I haven't claimed a penny in benefits so far...worked all life and now live off pension and the dwindling lump sum they gave me)
I wish everyone of you the best.
That's my story...sorry, just had to get this off my chest after doctors appt today.