Hi Zebra & welcome. I am no where near the area you are looking so I can't help you there, sorry. I have to say that there is nothing worse then having someone, especially a doctor, tell you that what you have is of no consequence. I saw a Rhuemy who told me my Fibro was real but the CFS dx I had gotten from another Rhuemy wasn't real, the illness didn't exist. Needless to say, I never went back to him, I was just looking for a second opinion anyway. Absolutely, when you are calling for an appointment, ask up front if they see & treat ME/CFS patients. If a Rhuemy doesn't see CFS patients you don't want him anyway because he is way behind in keeping up with research because this illness is becoming more & more known, so move on. Keep looking for that dx because you need to have that sense of closure & you need to know what you have. Take care, hugs, Denise
Fibromyalgia-dx'd: 2006, ME/CFS-dx'd: 2006, Holt-Oram Syndrome dx'd 1975, reduced lung capacity dx'd 2009, nasal allergies, food allergies, depression (lifetime problem) IBS, neuropathy in hips
I have 4 children & 7 grandchildren.
As apples of gold in silver carvings is a word spoken at the right time for it. Prov. 25:11