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CFS doctor in San Francisco Bay Area?

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Chronic Fatigue Syndrome
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Posted 2/23/2015 10:58 PM (GMT -7)
Hi!

I am new to this area of HealingWell, and I'm hoping it's acceptable etiquette to ask for assistance in finding a CFS doctor in the San Francisco Bay Area (or an hour or so drive outside of the bay are).

My rheumatologist says this is a a "bull crap" diagnosis, but in the past 8 months of pure hell, many, many specialists have suggested that perhpas I have developed post-viral CFS and I am desperately looking for a physician that specializes in CFS, since my rheumatologist is unable to help me.

I thank you in advance for your help.

Best regards,

Zebra 

Posted 2/23/2015 11:34 PM (GMT -7)
Hi Zebra & welcome. I am no where near the area you are looking so I can't help you there, sorry. I have to say that there is nothing worse then having someone, especially a doctor, tell you that what you have is of no consequence. I saw a Rhuemy who told me my Fibro was real but the CFS dx I had gotten from another Rhuemy wasn't real, the illness didn't exist. Needless to say, I never went back to him, I was just looking for a second opinion anyway. Absolutely, when you are calling for an appointment, ask up front if they see & treat ME/CFS patients. If a Rhuemy doesn't see CFS patients you don't want him anyway because he is way behind in keeping up with research because this illness is becoming more & more known, so move on. Keep looking for that dx because you need to have that sense of closure & you need to know what you have. Take care, hugs, Denise
Posted 2/24/2015 6:16 AM (GMT -7)
CFS can be a secondary dx from the chronic pain caused by RA. I personally feel it is just a label put on pain/largthary caused by other conditions.

I am not a doctor or clinician, this is just what I have observed. In know what does my opinion decrease the pain people experience.

Here are some links for you. I hope they help, please don't discount the possiblity that underlying issues can cause CFS.

www.ncf-net.org/

http://sanfrancisco.networkofcare.org/veterans/library/article.aspx?hwid=hw32907



Hope this helps
Peace
Trina
Posted 3/10/2015 7:44 PM (GMT -7)
I have had this for 30 yrs. I saw many doctors in private practice and they told me it was depression. After many years a friend took me to UCLA and I received my diagnosis. I think it's better to see a doctor working in a university hospital rather than a doctor in a private practice. Unless of course you can find a doc specializing in chronic fatigue in SF. The doc that did diagnose me was a rheumatologist and I continue to see him after 20 yrs.
good luck
Posted 3/25/2015 10:29 AM (GMT -7)
Hello Zebra2014,
My doctor treats chronic fatigue as do the others in his practice. I have had very positive
results. Their practice is in Santa Rosa. Search for www.gordonmedical.com
Check out the bio for E. Large. She's someone who may be just right for you. Good wishes
with this.
Posted 5/10/2015 9:04 AM (GMT -7)
I totally agree about seeing a UNIVERSITY specialist. Zebra, call up rheumies at UCSF -- it's actually the top UC medical school in the state. (I know this because I work admissions for another campus, wink nudge)

Otherwise, if you can drive to Sac, google the Fibromyalgia Treatment and Learning Center, Dr Michael Powell. He is excellent - and has fibro himself AND spends most of his time researching with other university medical schools the country. Great staff and PA too. :)
Posted 5/10/2015 9:05 AM (GMT -7)
Here is Dr Powells website: http://www.fmtlc.com
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