not coping with chronic fatigue

what has helped you most?
0
Diet change - 0.0%
1
exercise - 20.0%
1
rest - 20.0%
3
medication - 60.0%

 
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hugoteddi
New Member


Date Joined Feb 2015
Total Posts : 2
   Posted 2/26/2015 3:10 AM (GMT -7)   
hi everyone,
I'm 17 and have had chronic fatigue for over a year now. I had to give up all my sport and can't do half the things I used to do. This has led to depression and anxiety. I was also a very academic student and really enjoyed school. I now hate school and find it so difficult. I like to achieve good marks but this is no longer possible. I'm to tired to study the amounts I used to and this is making me stressed. I just don't know what to do. I have seen so many doctors, natropaths ext but nothing has helped.
any advice?
thankyou

jkn913
Regular Member


Date Joined Nov 2013
Total Posts : 167
   Posted 2/26/2015 6:27 AM (GMT -7)   
It definitely is a different life style. I do all the above except medication. I am able to control it IF I pay attention to what you mentioned and also my stressors. There are some foods that exasperate my symptoms, and some that help moderate them. Listen to your body. If I drink fresh juices, usually I juice apple, carrot and cucumber in the mornings, eat fresh, raw veggies - like a good salad for lunch (sometimes with chicken or tuna on it) and maybe steamed veggies and whatever for dinner, I do pretty well. But I also cut out junk food and sugar - those are killers. Also gluten and dairy can be harmful to many.

Next, I limit my physical exercise. This has been really hard, but if you have post exercise malaise you have to. If you exert yourself you will end up in bed anywhere from 24 hours to 2 weeks after and it could take weeks to pull out of it.

Supplements help me too. Vit D, multi vit., probiotics and omega 3

Finally, reduce your stress. If there are things that make you stressed, like school work, cut it back. I know that our society says you need to stay on this invisible time line - graduate at this point, go to collage, graduate college by this time, etc., but this is not so.

I have lots of kids and each one has done their education different. There are many options these days. My favorite one is the duel credits available today. I don't know what state (or even if you live in the States) you live in, but where we are if you don't have your diploma or GED you can take early college from the University at a fraction of the cost than if you did have them. For instance, you can take a duel credit course for $65 per credit verses paying $265 if you graduated from high school. Many of these courses are available on-line allowing you to save on travel, or in the high school. Take one class a semester. So what if it takes you 2 more years to graduate from high school, you will be earning your college credits at the same time so you will still be on track - if you are concerned about that. Relax and give yourself permission to change the rules and do things differently.

As for the depression and anxiety, I believe that the change we have to make in lifestyle can increase it, but I also believe that it is a symptom all on its own and no matter how well we are doing they will be there. The anxiety is the worst for me, I am constantly fighting it. I wake up several times a night with little panic attacks, drives me nuts. Recognize that they are symptoms and not who you really are.

I am sorry you are having to deal with this at such a young age. I have read statistics showing that if you do get this at a young age, you have a chance of pulling out of if in 5 years or so if you can keep your symptoms low. Hope this happens to you.......

BnotAfraid
Forum Moderator


Date Joined Apr 2012
Total Posts : 7174
   Posted 2/26/2015 8:54 AM (GMT -7)   
Diet is important, to replace dairy, almond or coconut milk is good. Almond breeze is my favorite.

I also have a juicer, you can use a good blender. You can talk to the family about the juicer and joining you in the healthier life style.

Ask your parents to take you to see a nutrisienst that know about CFS, or possibly making an appointment at John Hopkins in MD for consultation and complete diagnosis of your condition. This has helped a lot of members.

I wish you peace and comfort
Trina
Moderator - Depression
Be still and know there is Peace.

Kabir says: "Student tell me, what is God? He is the breath inside the breath". from the poem Breath.
DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;

Marina27
New Member


Date Joined Mar 2015
Total Posts : 12
   Posted 3/10/2015 6:20 PM (GMT -7)   
Medications and eliminating stress/drama from my life have been the most effective things that I have done. I've had a diagnosis for 20 yrs but felt it start 30 yrs ago after the birth of my only child. I've tried a lot of things. Thousands of dollars on naturopaths and supplements. When I eat less sugar/carbs I feel much better. No specific diet (juicing, gluten-free, organic,) have helped me. Just being real honest. The meds that have worked for me are anti-depressants, pain meds, sleep meds, and neurontin. Don't ever take narcotic pain meds until you have exhausted all other possibilities. I felt I was introduced to them too early on. Good luck

Minnesota
Regular Member


Date Joined Jan 2012
Total Posts : 136
   Posted 3/16/2015 6:09 PM (GMT -7)   
Have you considered any of the ADD medications in small doses? I rotate between Adderall and vyvanse, and this has allowed me to continue working and to exercise a bit. Just to have some of the fatigue lessen for part of the day is a bit of a relief. I also get a saline I V once a month ($100 each time) and I get 3-4 days of no brain fog which again is great. I can then do some social activities which makes me feel connected to life again. Having a good doctor who will listen, and work with you when you explain things like fatigue and brain fog which you can't see or test. I used to do triathlons so cutting that out was so hard for me....it was my identity to some extent. Now I have to be happy with a 2 mile run which at least lets me feel somewhat alive again.

alphabet soup
New Member


Date Joined Mar 2015
Total Posts : 3
   Posted 3/29/2015 3:37 PM (GMT -7)   
Hey there HugoT. I am so sorry to hear that at your age you are stuck with the curse. It is a curse, but, if you can find someone who understands what you are going through and can share with them, it will take away a lot of the secret that you may be trying to hide from. It is a bear that when you have been active in sports for your young years, and then can't seem to get out of bed, let alone think or do any kind of mind work, like school work. I understand that it is really difficult to say, "no man, I have to (make an excuse as to why) I can't today. I don't know if you have told many people about what you are experiencing, but, you do have people on here that are and have been having these issues for years and YOU just have to find out what works for YOU. Whether that be chemicals as in pills, which is the first thing most drs you see will have another pill for you, or you go on a healthy diet, what is that??? or you see an alternative dr, the first thing you have to do is accept it. ( It sucks) but it is what it is.
Find something that makes you happy that you can do and spend as much time doing that as possible. Share your story, so you can be free of it in the sense that "no one will understand" and what I have just found out is to breathe. I have found that this is something that I had not been doing. I am hoping that by breathing will help me from seeing stars when I get up from my chaise chair. Just trying to help. Peace to you.

DianneJay
New Member


Date Joined Mar 2015
Total Posts : 6
   Posted 3/30/2015 3:18 PM (GMT -7)   
My daughter has some health issues. But one of her hardest things was being diagnosed with Juvenile Fibromyalgia at 17. One of the first things you need to do is find a GOOD health care provider. We were very fortunate. Her doctor's wife has FM, so he had done a lot of research. There are some meds that help. She takes Cymbalta. She alternates between 30 and 60 mg, depending on whether she's flaring. That also helps with the depression and anxiety pieces. One thing he was adamant about was that she get more magnesium, and keep HYDRATED. Magnesium deficiency is huge in FM. She also sees a chiropractor for really bad flares. Unfortunately, FM and CFS are life-long gigs. You have to keep advocating for yourself, and learning everything you can. Good luck.

muskan
New Member


Date Joined Apr 2015
Total Posts : 1
   Posted 4/7/2015 4:16 AM (GMT -7)   
Hi I have ulcerative colitis which I was diagnosed when I was 18 I'm 40 Now. For the past three months I have been flaring. My doc put me on apriso last Tuesday my bleeding looks like it stopped but now it turned to diarrhea just wondering does this mean it's healing since I don't see any blood
muskan

mbills2223
Regular Member


Date Joined Apr 2015
Total Posts : 42
   Posted 4/7/2015 7:58 AM (GMT -7)   
Hi muskan, you may have better luck with that question here:


www.healingwell.com/community/default.aspx?f=38
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