Systemic Exertion Intolerance Disease (SEID) as proposed by the Institute of Medicine.
When they came out with it last week I wasn't really a fan except that it did away with the "chronic fatigue" aspect of the name. I have always hated the name of this illness because no one seems to understand how chronically ill I am, I am not just tired. My body does not make energy like other peoples do, I can sleep for 8 hours & wake up feeling like I haven't rested at all, like there is nothing there to help me move. Systemic does show that this is a wide spread illness & effects our whole bodies, I know I have to deal with many things like lymph node swelling, inflammation through my muscles & joints, flu like symptoms, etc. The word disease does take it out of the realm of syndrome & gives it more credence.
I could live with the new name because I hated the old, but I would like them to find something else like the European name of CFS, Myalgic Encephlomyelitis, although it deals mostly with the inflammation of the brain, it sounds better.
Anyway, that's my take on it, I am interested in what you all think.
Fibromyalgia-dx'd: 2006, ME/CFS-dx'd: 2006, Holt-Oram Syndrome dx'd 1975, reduced lung capacity dx'd 2009, nasal allergies, food allergies, depression (lifetime problem) IBS, neuropathy in hips
I have 4 children & 7 grandchildren.
As apples of gold in silver carvings is a word spoken at the right time for it. Prov. 25:11