Having dealt with this for at least 30 years, but only have diagnoised for 23, it still amazes me at how many people have never even heard of CFS. It also amazes me at how many doctors deny that it exists, that it's all in your head, you are just being lazy and using that as an excuse for not doing something you don't want to, etc. People just don't understand that there are day's that you are doing good to even make it from the bed or chair to the bathroom.
I am not real excited about
the new name, but I am hoping that maybe it will get people to realize that this is real, that our bodies are really dealing with something physical, not just our imagination or a play for syympathy.
Post Edited (tepot) : 4/5/2015 2:08:27 AM (GMT-6)