Posted 3/14/2015 6:05 PM (GMT -7)
Marina, hi, it is nice to meet you, I wish it was under better circumstances. CFS is a mysterious & complicated disease. Recently the Institute of Medicine renamed it Systemic Exertion Intolerance Disease (SEID) because it is more then chronic fatigue. Our main symptoms post exertional malaise, pain, inflammation, fatigue, brain fog & much more. With all you have I really hope you don't have CFS/ME. This disease is dx'd by excluding everything else that could cause these symptoms, they are working on finding a better way to diagnose but we have to wait.
My daughter has lupus, it is one of her illnesses, it causes her much fatigue. Also, I know Hypothyroid & FM can cause a lot of fatigue. If you have these under control & still feel there is something left undiagnosed then go back to your doctor & talk about CFS/ME. I just knew there was something more & went back to my Rheumatologist & was then dx'd with CFS/ME. I spend lots of time in bed but I am now able to be up more often & I pace myself with what little energy I have. Your life isn't over, just different. You may be in the mourning process, we have to grieve our old lives & what we have left behind & start a new kind of life. Has anyone dx'd you with depression? Do you feel depressed? This is also a causes a lot of fatigue.
Take care of yourself, I hope you are able to get out of bed soon. I spend my days resting on the couch but I do like to spend the time with my family & I love my coffee, lol. Keep us posted on how you are doing, many gentle hugs, Denise