Open main menu ☰
HealingWell
Search Close Search
Health Conditions
Allergies Alzheimer's Disease Anxiety & Panic Disorders Arthritis Breast Cancer Chronic Illness Crohn's Disease Depression Diabetes
Fibromyalgia GERD & Acid Reflux Irritable Bowel Syndrome Lupus Lyme Disease Migraine Headache Multiple Sclerosis Prostate Cancer Ulcerative Colitis

View Conditions A to Z »
Support Forums
Anxiety & Panic Disorders Bipolar Disorder Breast Cancer Chronic Pain Crohn's Disease Depression Diabetes Fibromyalgia GERD & Acid Reflux
Hepatitis Irritable Bowel Syndrome Lupus Lyme Disease Multiple Sclerosis Ostomies Prostate Cancer Rheumatoid Arthritis Ulcerative Colitis

View Forums A to Z »
Log In
Join Us
Close main menu ×
  • Home
  • Health Conditions
    • All Conditions
    • Allergies
    • Alzheimer's Disease
    • Anxiety & Panic Disorders
    • Arthritis
    • Breast Cancer
    • Chronic Illness
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Migraine Headache
    • Multiple Sclerosis
    • Prostate Cancer
    • Ulcerative Colitis
  • Support Forums
    • All Forums
    • Anxiety & Panic Disorders
    • Bipolar Disorder
    • Breast Cancer
    • Chronic Pain
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Hepatitis
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Multiple Sclerosis
    • Ostomies
    • Prostate Cancer
    • Rheumatoid Arthritis
    • Ulcerative Colitis
  • Log In
  • Join Us
Join Us
☰
Forum Home| Forum Rules| Moderators| Active Topics| Help| Log In

IS CFS/ ME lyme?

Support Forums
>
Chronic Fatigue Syndrome
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
profile picture
jackdg
Regular Member
Joined : May 2015
Posts : 44
Posted 5/6/2015 4:52 AM (GMT -8)
My dr who is a world authority on CFS/ME has tested all his CFS patients for LYme .HE has begun doing this systematically since 2012 with the BOrrelia ltt elispot from Germany.Over 95%of his patients are postive on this test me included.
So I have been "rebranded" as having lyme disease
This summer a publication will come out about 4 markers with whom you could identifie Lyme patients
Those 4markers are PGE2(increased) IL8 (increased)sCD14 (increased)CD57(decreased)
I wonder if this will make a difference
My question on the CFS forum
Do people with cfs think it might be possible they all have lyme disease?


Ihope this be something up for discussion
profile picture
jujub
Elite Member
Joined : Mar 2003
Posts : 10424
Posted 5/6/2015 7:04 AM (GMT -8)
I don't know about that, but I've certainly seen a lot of people with Lyme who are convinced every disease known to mankind is really Lyme or is caused by Lyme.
profile picture
ladybugdreams
Veteran Member
Joined : Jun 2008
Posts : 733
Posted 5/6/2015 6:16 PM (GMT -8)
No I do not think CFS & Lyme are the same illness. I have CFS & have never thought that I have Lyme disease. I have read the progression of Lyme to really check it out & it is not even close to how mine progressed. Nor after 10 years does it look like Lyme now. You may have Lyme, I hope you do because it is treatable but I wish there was no chronic illness at all. Take care, hugs, Denise
profile picture
achievinggrace
Veteran Member
Joined : Nov 2009
Posts : 3266
Posted 5/20/2015 4:40 AM (GMT -8)
There is a movement in the medical community to rename Lyme Disease MSIDS, Multi-Source Immune Deficiency Syndrome. While it is only a name this may go a long way to expanding the understanding of many conditions, including Chronic Fatigue, Fibromyalgia and Multiple Sclerosis and a host of other auto-immune diseases.

Instead of doctors relying on one test and looking for one cause and one treatment, a whole new way to approach these debilitating health conditions could be developed. I am very hopeful.
profile picture
Dancing Dawn
Regular Member
Joined : Feb 2015
Posts : 87
Posted 6/7/2015 8:39 PM (GMT -8)
Hello Jack DG,
Thank you for this post. I was wondering if your doctor is in the U.S? Also, many
doctors use Igenex and the Western Blot to test for Lyme. I was wondering why
your doctor used these other tests, though I'm sure there are a lot available.
I have been treated for both CFS and Lyme. It is my understanding that they are
different diseases.
For me, it gets tricky because I can't tell how the symptoms differ at times. You
can for instance have brain fog with both. You can have fatigue and achy joints. And I'm told
that many Lyme tests even are not always accurate and that doctors have to treat by symptoms.
For me, I've wondered if I had chronic fatigue first and then got Lyme or the other
way around. At this point, overall I don't feel it much matters.
Good wishes to you in your treatments. I feel overall you're better off being
diagnosed with this so it can be treated. It sounds like you have an excellent doctor and
that's key. IMO.
I'm with Denise on this. I too wished there was no chronic illness at all.
profile picture
sweetpeaisme
Regular Member
Joined : Feb 2015
Posts : 498
Posted 6/14/2015 8:04 PM (GMT -8)
It isn't CFS, Lyme, M.S. or even Lupus or Parkinson's---Its MULTIPLE systemic infectious disease syndrome aka M.S.I.D.'s

I've been studying/researching these chronic illnesses since 2007 due to my own 'mystery illness' that seems to have begun when I was flying back to the U.S. from SE Asia the summer of '07' when I ended up with a viral respiratory infection. However, as far back as 2004 I'd been diagnosed w/allergies,vertigo, depression, severe PMS caused migraines, and G.E.R.D.

May 2010=My 1st Igenix Lyme test revealed indeterminates/food intol test revealed MANY sensitivities therefore went gluten free, dairy free, nitrites free, msg free etc etc etc
I was treated for thyroid disorder, migraines, and G.E.R.D

June 2012 discovered by endoscope, that I DID NOT HAVE G.E.R.D.& was diagnosed w/a severe magnesium deficiency due to being on prilosec/nexium/pepcid since 1998!!! Also, a sever D deficiency...I had my gall bladder removed July 2012 and STILL had stomach pain, nausea, squeezing around middle w/shortness of breath sensation. Gall bladder removal and diet change didn't resolve stomach illness that is Episodal. For TWO YEARS my MD insisted that it's just my food intolerance, hormone imbalance, and D deficiency that caused all my symptoms that were getting worse year after year

June 2014-I started seeing an ND who believed that I was really ill and not just a psyche patient.
She ran another Lyme test which revealed 1positive **band & the rest indeterminate however she also ordered a viral & other bacterium panel which revealed positive HIGH for reactivation of the very powerfully destructive virus that's the true culprit of AIDS-however I'm HIV negative!!! My killer t-cells aka CD57 low also. Negative for Bart. But positive for Mycoplasma!

Treatment began w/U.V.B.I to drive down viral load
Herbal ABX and many supplements such as curcumin, Nac, & HM chelate for heavy metals detox which revealed HIGH toxicity.
I did 2 courses of I.V heavy metal chelation but my body doesn't detox well so had to stop.
It's been one year since U.V.B.I. & the HHV 6 is active again-Uhg!!!

The chronic illness state is one that multiplies over time. For me, it started w/my immune system being weakened by metal toxicity; so much so that when I was exposed to serious infections over time I collected them up. I stored up enough inflections that caused a childhood illness known as rosiola=HHV-6 to reactive which has resulted in an AIDS like illness.
✚ New Topic ✚ Reply


More On Chronic Illness

Get Moving With Chronic Illness

Get Moving With Chronic Illness

Helping Others With Chronic Illness

Helping Others With Chronic Illness


HealingWell

About Us  |   Advertise  |   Subscribe  |   Privacy & Disclaimer
Connect With Us
Facebook Twitter Instagram Pinterest LinkedIn
© 1997-2023 HealingWell.com LLC All Rights Reserved. Our website is for informational purposes only. HealingWell.com LLC does not provide medical advice, diagnosis, or treatment.