Well guy's, things are on the up!

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Terrahawk
Regular Member


Date Joined Nov 2010
Total Posts : 104
   Posted 5/12/2015 4:33 PM (GMT -7)   
After suffering with CFS for 25 years suddenly things are on the up yeah . What's killing you and me is yes you guessed it "Food" and "drink". My Doctor said to me (a couple of months ago) after being in bed most of the last year, he had a patient who had been diagnosed with similar problems like us, was sent to a dietician who told her to cut out "Salicylate" foods (Nearly everything that exists to eat). Now she feels much better. I have looked into this and it's mind boggling as I can't eat Gluten as well.

I am literally down to:

Gluten free bread
Turkey ham
Sweet potatoes
Old potatoes
Parsnips
Brussels sprouts
Swede
Iceburg Lettuce
Lamb
Chicken
Beef
Rice
Rice milk
Bottled Evian water

Nowt else!
This ain't easy on a paupers income...

That's it folks.
Just me and my pills and vitamin supplements.
Felling better but not cured.

Have to see the Dietician on the 19th of June.
Let's see what that brings.

Post Edited (Runckle) : 5/12/2015 5:42:14 PM (GMT-6)


jkn913
Regular Member


Date Joined Nov 2013
Total Posts : 167
   Posted 5/12/2015 8:14 PM (GMT -7)   
I had a really bad year about 2 years ago, couldn't hardly get out of bed. I finally figured out a lot of what was causing it was foods, one of the biggest culprits for me was chocolate. I felt much better when I watched what I ate.

Recently I have been working on my diet again, trying to see if cleaning it up further will help more. Once you clean it up, you notice right away if you eat something that doesn't agree with you. I have not cut out all the salicylates, but I did cut out all grain and am down to mostly raw fruits and veggies with some fish or chicken thrown in. I also started back on the Noni juice.

I have had pretty good success so far and am hoping for further improvement.

Another thing that happens, along with getting rid of the foods you are sensitive to, is that restricting your diet also helps your body to become more alkaline. Most of us are in a really acidic state and an acidic environment causes inflammation.

Good luck to you, hope you continue to improve.....

Terrahawk
Regular Member


Date Joined Nov 2010
Total Posts : 104
   Posted 5/14/2015 12:20 PM (GMT -7)   
I can see where your going with this jkn913. I started like that a year ago and like I say the foods that I am down to are the foods containing little or no Salicylates. You will find eventually that fruit is very difficult to deal with. I only eat pears now and again. I use a full Vitamin supplement to keep me going. Lots of people though are now saying I'm looking a lot better since I last saw them. And, I didn't even ask them to comment...
DX: Fibromyalgia, Depression, Memory problems, Psoriasis, Hiatus Hernia, Oesophagitis, Anger problems, Osteoarthritis, IBS!

jkn913
Regular Member


Date Joined Nov 2013
Total Posts : 167
   Posted 5/15/2015 5:24 AM (GMT -7)   
A lot of people are sensitive to salicyalates, it can cause headaches, ADHD problems and tantrum in children, to mention a few of the effects. I am really glad you are feeling so much better.

Everyone is different and what effects us can be different, but I do believe diet is the key. Some people swear that a cutting out gluten, sugars, etc. won't help them, but I believe they either didn't get restrictive enough or didn't try it long enough. Sometimes you need to keep going, like you are and keep cutting things out until you feel better, then slowly - one item a week - add things back in until you pinpoint exactly what you can and cannot tolerate.

Sure it isn't fun being on such a restrictive diet, but it is a heck of a lot better than being this kind of sick.

Glad you are taking the vitamins, it would be easy on your diet to become vitamin deficient.

Dancing Dawn
Regular Member


Date Joined Feb 2015
Total Posts : 87
   Posted 5/15/2015 10:56 AM (GMT -7)   
Thank you for your post Terra Hawk,
This is very helpful for me to hear. I was feeling really lousy
this past Jan-Feb and was tested for Sibo which I have. On my own,
I decided to take grains out of my diet. I also decided to cook fruits and
veggies or steam them to help my digestion. Also, I'm taking some
supplements for Candida via my doctor.
Luckily, all of this has been working. I still have fatigue but
it's not as strong. My head is clearer and I'm able to do more things.
Like yourself, I've struggled with some of these pieces for some
20 years. I have read a lot of 'diet' books and gone to talks. Also, have
tried different things. During these last few months, I've had the
best results.
Thanks for listing your specific diet here. I'm so glad it's
giving you some energy and you're starting to feel better.
turn turn turn turn yeah
What are some salicyalates? cantaloupe? berries? are you also
dealing with these?

Terrahawk
Regular Member


Date Joined Nov 2010
Total Posts : 104
   Posted 5/26/2015 5:17 PM (GMT -7)   
Dancing Dawn
Check dis out hun!

en.wikipedia.org/wiki/Salicylate_sensitivity
I am really going to the poo so nice nowadays. CFS not gone though but much, much better. Still have difficulty with the odd Choc bar...Can't help it really.

Slight update:

Gluten free bread
Cheese (Must be extremely matured and not creamy) (Cathedral City [Vintage] Watch this as sometimes they put an inferior quality cheese in the package which will make you ill if you have a Salicylate allergy.)
Turkey ham
Anchor Butter
Sweet potatoes
Old potatoes
Parsnips
Brussels sprouts (A few)
Swede
Turnip
Peas
Iceburg Lettuce
Pears (The only fruit I can eat)
Cod (Line caught, Slightly smoked)
John West Salmon
Frozen chips (Coated with "Dextrose" only)
Lamb
Chicken
Beef
Rice (Boiled or Pilau with no spices I mean no spices at all)
Breakfast with (naturespath.co.uk/product/crispy-rice) Nothing else tastes as nice as these do with (www.alpro.com/uk/products/drinks/rice)

Only drinks I can have is:
Bottled Evian water
Decaffeinated Coffee (Filtered) Not Instant... (Cheap if you can go to Costco) £15 for a Big, BIG tin.
Perfect Cuppa!

Menu
Sunday
Dinner - Toast Tea - Chicken Cooked Dinner

Monday
Dinner - Ham & Lettuce Sandwich Tea - Leftover Chicken Peas and Chips or Rice

Tuesday
Dinner - Cod Tea - Stew

Wednesday
Dinner - Ham & Lettuce Sandwich Tea - Lamb Dinner

Thursday
Dinner - Cheese & Lettuce Sandwich Tea - Leftover Stew

Friday
Dinner - Ham & Lettuce Sandwich Tea - Salmon Chips

Saturday
Dinner - Ham Sandwich Tea - Whatever

Watch out for the cravings.
Eat a single Cheese sandwich (with lettuce) that's what I do.

Good luck guys
DX: It's not Fibromyalgia it is a class within CFS, Depression, Memory problems, Psoriasis, Hiatus Hernia, Oesophagitis, Anger problems, Osteoarthritis, IBS!

CFS is a good term for what we've got. It is Chronic, It is a Fatigue and it is a Syndrome. Why call it anything else.
I do like "The dying disease" though! As it sure does feel like it when you are feeling really ill!

Post Edited (Terrahawk) : 5/31/2015 12:27:45 PM (GMT-6)


Terrahawk
Regular Member


Date Joined Nov 2010
Total Posts : 104
   Posted 5/31/2015 11:44 AM (GMT -7)   
Update:-

This is what Salicylate does to you when you are allergic to it!
Yesterday I thought I'd take a chance and had a Aberdeen Angus Cottage Pie in Costco.

BIG, mistake.


After
10mins (Burping quite badly)
15mins (Feeling lethargic)
30mins (Feeling tired)
1hr (Very tired watching TV)
1hr 30mins (Total exhaustion, had to go to bed)
2hr 30mins (Mrs wakes we up and I am totally unable to get up out of bed as Muscles are so knackered. Lot of belly pain)
3hr (Mrs gives me lots and lots of Reiki to get me back to normal. She said my Adrenals needed so much help! Belly in constant pain.)
5hr (Just about able to get out of bed. Still quite painful belly)

This morning when I got up, I was in a state where I felt like I had been through one of the worst Fibromyalgia pains for some time)

Now nearly 20:00 in the evening and I feel as though I have not got rid of any of my CFS pains at all. It's like I have to start all over again at getting myself into a more pain free situation and very little CFS. It'll take about 5 or 6 days to get back to something I can now call NORMAL!
Here we go again!
DX: It's Fibromyalgia but, it is in a class within CFS!
Depression, Memory problems, Psoriasis, Hiatus Hernia, Oesophagitis, Anger problems, Osteoarthritis, IBS!
CFS is a good term for what we've got.
It is Chronic, It is a Fatigue and it is a Syndrome. Why call it anything else.
I do like "The dying disease" though, as it sure does feel like it when you are feeling really ill.

Post Edited (Terrahawk) : 5/31/2015 3:10:45 PM (GMT-6)


jkn913
Regular Member


Date Joined Nov 2013
Total Posts : 167
   Posted 6/1/2015 9:02 PM (GMT -7)   
Sorry about your setback Terrahawk, I know how you feel. I have some "foods" that really knock me out too. It is hard to stay so strict on a diet, but I would rather eat only bananas every day than deal with the symptoms that come from eating something I shouldn't - which is becoming more populace than what doesn't cause upsets. Hang in there, you will recover.....

Terrahawk
Regular Member


Date Joined Nov 2010
Total Posts : 104
   Posted 6/10/2015 7:26 AM (GMT -7)   
jkn913 said...
Sorry about your setback Terrahawk, I know how you feel. I have some "foods" that really knock me out too. It is hard to stay so strict on a diet, but I would rather eat only bananas every day than deal with the symptoms that come from eating something I shouldn't - which is becoming more populace than what doesn't cause upsets. Hang in there, you will recover.....


Thanks for your sympathetic ear "jkn913". It's hard trying to stick to this diet but it is working. BTW, some things quoted as safe foods are sometimes not and depends on who eats them. I found in Costco, truly plain crisps with salt. I was told by the Salicylate site that it would be safe. It was not for me. I bloated and had a very painful stomach for 2 days. I can't find much else I can eat so it looks like this is my final quote of what I can eat!



Gluten free bread (Genius White)
Cheese (Must be extremely matured and not creamy) (Cathedral City [Vintage])
Turkey ham
Anchor Butter
Sweet potatoes
Old potatoes
Parsnips
Brussels sprouts (Some)
Swede
Turnip
Peas
Iceberg Lettuce
Pears
Cod (Line caught, Slightly smoked)
John West Salmon
Frozen chips (Coated with "Dextrose" only)
Lamb
Chicken
Beef
Rice Milk (Alpro)
Rice (Boiled or Pilau with no spices
I mean no spices at all)
Breakfast with:
Nothing else tastes as nice as these do with:
(naturespath.co.uk/product/crispy-rice)
(www.alpro.com/uk/products/drinks/rice)
DX: It's Fibromyalgia but, it is in a class within CFS!
Depression, Memory problems, Psoriasis, Hiatus Hernia, Oesophagitis, Anger problems, Osteoarthritis, IBS!
CFS is a good term for what we've got.
It is Chronic, It is a Fatigue and it is a Syndrome. Why call it anything else.
I do like "The dying disease" though, as it sure does feel like it when you are feeling really ill.

MsLouise
Regular Member


Date Joined May 2015
Total Posts : 55
   Posted 6/10/2015 2:46 PM (GMT -7)   
For those of you that are eliminating or reducing salicylates from your diet, I wonder are you eliminating them from the products you use too? I never did this for diet reasons, but when I was on the Guaifenesin protocol for Fibromyalgia, you have to eliminate using any products that contain salicylates (they interfered with the guai). The amount of salicylates in beauty products, etc, is far more concentrated than what you find in foods. So I would think if you are eliminating them in your diet but not the products you use, you are still getting a large amount in your body? I don't know how this affects those of you who are concerned only about the diet aspect, as I said I did it for different reasons, but I was wondering if any of you looked into this? If anyone is interested I can post some links about salicylate free products.

Louise
~Louise

My Blog:
http://beautifullybrokenbodies.blogspot.com/

Fibromyalgia, Chronic Fatigue Syndrome, Interstitial Cystitis, Chronic Pelvic Ahesions, Ovarian Cysts, torn & herniated discs, Arthritis (lower back), Pelvic Floor Dysfunction, Hypoglycenia, Chronic Pain, previous Endometriosis

Terrahawk
Regular Member


Date Joined Nov 2010
Total Posts : 104
   Posted 6/11/2015 1:27 AM (GMT -7)   
Hi Louise, I totally forgot about that!. Yes I have cut out all salicylates both internal & external. I just spoke to my Dr and said more and more patients were feeling better by not using salicylates. Simple to say that the Global food industry is to blame. I have only this to say on the subject now. Use Organic stay Organic and always get it fresh. Everything else is basically going to make you feel bad!
Thanks for your contribution Louise.
DX: It's Fibromyalgia but, it is in a class within CFS!
Depression, Memory problems, Psoriasis, Hiatus Hernia, Oesophagitis, Anger problems, Osteoarthritis, IBS!
CFS is a good term for what we've got.
It is Chronic, It is a Fatigue and it is a Syndrome. Why call it anything else.
I do like "The dying disease" though, as it sure does feel like it when you are feeling really ill.

Terrahawk
Regular Member


Date Joined Nov 2010
Total Posts : 104
   Posted 6/19/2015 12:47 AM (GMT -7)   
Just one last thing guys I thought this might be important!
The more Salicylate I eat the more I am Photo-sensitive. Also my eye sight is improving.
Feeling good but, not great!
DX: Depression (Under control with Sertraline), Overheating, Memory problems, Psoriasis, Hiatus Hernia, Oesophagitis, Anger problems, Osteoarthritis, IBS!
CFS is a good term for what we've got.
It is Chronic, It is a Fatigue and it is a Syndrome. CFS, why call it anything else.
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