Yep yep, I feel like my blood is bad, i often feel like i would rather die than live another year like this,.... but not really, i have little ones that need me, as i need them. if not for them i wouldn't care.
I felt that way with the blood thing when I first got sick. Not so much anymore. Its 6 years later now, for me. Everyone has to find their way through this, nightmare. I had every test in the book. MRI's, CT scans, colonoscopy, the other one that goes down your throat. I've had every moronic thing said to me. I was made to feel horrible by, Doctors. If something didn't show up on any test they did, then it was me, whining, basically. They cause you to doubt yourself. You know you're not, lazy, far from it. Just a month ago you were fine. Going about
life. In the beginning, besides being, sick and my muscles hurt anytime I tried to do anything, I couldn't sleep. I went weeks actually months on, 15 minutes here and 15 minutes there. No one would even treat my symptoms. I was, 58 at the time. I told my daughter, " everything taste like, swamp and smells like swamp. " you have a feeling going on in you, you can't explain. Like you're trying to die. At points you wished you did. My throat hurt, my glands were swollen, at times my saliva glands were as big as, lemons. That had been going on for quite awhile. Everything was dismissed as a general virus. finally my daughter told me there was a clinic that she had gone to, down the main street. She said she saw the, PA, there and she really liked her. So, I went. I told her what had been going on and all the test that were done and nothing. But, just from my symptoms, swollen glands, smell, taste, sick, weak, she ran a few blood tests. After a few days I didn't hear anything, so, I figured it was nothing in those too. On the, 5th or 6th day after the blood work, they called. It was mono, and she said, your, B12 and D are extremely low, and even if you didn't have, mono you would feel that kind of tired. So, she told me there was nothing they could do for the, mono but treat the symptoms. and she gave me the, supplements B12 and D3. She gave me something for pain..and stuff to numb my throat. I still couldn't sleep. After 6 months I was still sick..so she called the, CDC, they said after 6 months with mono, they call it, Chronic fatigue. So, you may wake up one day and it gone, or, it never will go away. Then about
a year or so later, I told her I can't take it anymore..I couldn't go anywhere or do anything, i was just too tired. The sick, part wasn't quite as bad. So, she put me on, amphetimine. Low doses of it worked pretty good. Then she changed it to another kind that seems to work better without side effects.. So, with pain meds (the pain has been spreading to all over) amphetimine, and sleep meds. I'm able to get up (wait a couple of hours for the pain to subside and the stiffness to clear up) but, I can get a day going, do things, go places go fishing with my grandsons, etc. Before, I kept my house clean, I knew if I could get up, get my shower, and keep my house clean..I would make it. when I could no longer do that...then it was time to leave. I just went a couple of months ago to a, CDC doctor that sent me to a Rheumatologist, that said, " with the history of mono, chronic fatigue and the all over pain..I had all the symptoms of, fibromyalgia. There is no test to prove it...they go by symptoms. I even had a doctor tell me, " I don't believe you have mono " so he did the blood work. a week later. He said, " yup, you've got mono. But in all my years of practice, I've never seen a someone at your age, with mono " So, to him it didn't matter that i Had already had that test done a half a dozen times. or that anyone can get mono...its just not common for someone my age...We pay for those opinions, folks. So, anyway, since I'm stable on the meds...and able to have energy for anything. I put me and my husband on a, no dairy, no wheat, no sugar, eating regimen...everything is organic. We take cell detox capsules. B12, D3, magnesium in a few forms. at least 20 minutes of direct sunlight, we juice somewhat, we are growing our own vege garden, we eat meat, but it has to be organic to...no chemicals. Our shampoo, body soap, toothpaste, everything, is toxin free, I use essential oils, no deodorant, and no, we don't have, BO. I use hydrogen peroxide to rinse my mouth in the morning after brushing. We with EBV tend to get thrush. So, I keep that gone. Everywhere we can remove any toxins or any non organic foods we do. The cell detox capsules are helping to clear our bodies of built up toxins.. No soda, no milk, we get our water from a natural spring. We go fill up once a week...for drinking water. But if not for getting my symptoms under control so I could function I wouldn't be able to try and heal myself. Doctors that are willing to let people suffer is doing more harm. As I feel better step by step, I reduce my meds...and its working. But, 6 years was way too long. I had to have relief of symptoms. I'm not going to be a, martyr ...treat my symptoms so I can work on the healing. I've set my goal for next year at this time. I may not be, 100% but it sure will be better than what it had been for all those years.