Is this EBV? Help

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New Member

Date Joined Sep 2015
Total Posts : 1
   Posted 9/15/2015 12:51 AM (GMT -6)   
Never posted in a forum before, but have very quickly exhausted all my options with doctors, specialists, blood tests. Some have insultingly said its all in my head, prescribed anti-depressants etc. I'm 28 this year.

Its been almost five months now since the storm in my body started, although I had numerous health issues I struggled with for 5-7 years prior to this - spontaneously bleeding gums, excessive yawning, diarrhea, fatigue, muscle soreness, insomnia etc.

Then in May this year I started developing new symptoms such as joint pain, TMJ, a weakness in my arms that doesnt go away, severe fatigue, mood swings, numbness in extremities, hand tremors, cold extremities, muscles spams, dizziness, sensitivity to light and sound, balance problems, eyes unable to focus on objects and a sense of my brain being "wrapped" by something. My quality of life has gone down the toilet and there are days I struggle to feel like I'm alive.

In the last couple of months there have been ups and downs but the worst was in June when my body totally broke down and I felt like I was knocking on death's door. I would have chosen that if given the choice.

My blood tests show:
Positive ANA 1:80 (atypical speckle)
Fluctuating blood counts (low lymphocytes, high neutrophils, high eosinophils)
Slightly elevated ESR
High EBV EA + EBNA 1IgA Tumour Marker
WBC+Crystals+Epithelial cells+ketones+micro-org in Urinanalysis
Anti-EBV Vca-IgA 1:320
EBV-Vca-IgG IF Positive

My question is: Is this a reactivation of the EBV? The infectious disease specialist I have seen here in Singapore has waved me off, given me nothing, and I have been in pain since then.

My family history includes: hyperthyroidism + liver cancer (old age at 50+) + hepatitis B

My next question: I am currently on Vitamin D + Magnesium + Vitamin K + Curcumin + Probiotics + Quercetin + Bromelian + Selenium + Alpha Lipoic Acid + Acetyl L Carnitine Arginate + Anti-viral blend of Essential Oils. Has helped maybe 20%. Planning to add EPA/DHA + Liver Optimizer by Jarrows + Adrenal Optimizer by Jarrows + Colostrum + Melatonin. Any other good ideas? Contraindications?

There's Always Hope
Regular Member

Date Joined Sep 2015
Total Posts : 29
   Posted 10/3/2015 12:10 AM (GMT -6)   
Hi crappydays, Sorry you're not feeling well and that you're not getting the answers or help that you need.

Sounds like you might have more than one thing going on. Some of what you are saying reminds me of what I've gone through primarily this year (see the thyroid forum), where I haven't felt well more than a few days at a time, or I've been really sick for 2-3 weeks, a break of a few days or so, and then it cycles again. But really, I was sick all last year too, and this started in 2012, where I was trying to find answers. For me, a huge part has been the misdiagnosis of my thyroid issue, and then the subsequent mis treatment of this issue. It also looks like I might have lyme disease, a false negative, with some middle positives. I have a few other health issues going on along with these, and they are all pretty much connected in one way or another.

I'm not a doctor, but I don't think thats just EBV. And would not assume it's an infectious disease. I have super high EBV antibodies, am positive for EBV, but I don't have a positive ANA. Positive ANA speckled atypical pattern could be associated with SLE, sjogren syndrome, scleroderma, polymyositis, rheumatoid arthritis, and mixed connective tissue disease. Bleeding gums could mean poor dental hygiene......or something more serious like leukemia, autoimmune disorders, autoimmune hepatitis, etc.

You mention family history of hyperthyroid. So, I'd guess you've had a full hyperthyroid panel conducted to rule out thyroid being part of your problem? This could be contributing to your symptoms, but positive ANA is concerning and means something. I'd also guess that with a family history of liver cancer, you've ruled this out?

Have you researched what your test results could mean? Also, what other diagnostic blood tests you might need? Sounds like you need to find a new doctor who is on your side and who will fight for you. Do you have alternative doctors like naturopaths or integrative medicine doctors?

I would not recommend just taking random supplements. You can really mess up your body this way and create imbalance with nutrients and absorption, which can lead to disbiosis, which can lead to leaky gut, which can lead to infection, which can lead to auto immune disorders. You need to know what vitamins and minerals balance each other and what ratio is required. A good multi vitamin, D3, probiotics, Omega 3, is a good place to start. Be careful about disrupting your mag/selenium balance, without proper ratio with zinc. Probably a good idea to find a qualified doctor, get diagnosis, before taking too many supplements.

Hope you get answers and feel better soon!
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