I am sorry you are having such a difficult time. I can't speak for any one else, but for me, the biggest success I have had has been through diet. If I really stick to it, I do pretty will. But if I cheat, even a little, I pay. My set backs can be a few hours or days, depending on what I have eaten.They can be mild, like leg cramps, or severe where I am laid out flat.
For me, I can eat meats, fish, vegetables (but I am staying away from tubers right now) and fruit. I do all some cheese, salad dressing, nuts, nut butters and stuff like that. I can tolerate corn, but try to stay away from most grains including rice. No junk foods, potato chips cause me to flare and no sugar.
If I do that, I do pretty well. I also take a probiotic, vit D and a CoQ10. My hormones are a mess and multi vitamins, noni juice and other supplements give me hot flashes (real bad) and I am up all night. I also have to be careful of my exertion level, stress level and sleep.
I am able to work and do the bare minimum of chores, but I am up off the couch and do have part of my life back. I do worry about getting sicker all the time but keep plugging forward. When I get lax on my diet, I go down hill fast. It is hard to be so strict with the foods, but it is better than being real sick.
As for the anxiety, yes I have that, especially with the hot flashes. My adrenals are toast.
Hope this helps you.