Posted 11/30/2015 5:12 AM (GMT -7)
I'm wondering if anyone with CFS has these symptoms? I was diagnosed with fibromyalgia, but I've recently been wondering if my fibro diagnosis is correct, as I have new symptoms and some symptoms have gotten worse. I am going to talk to my doctor, but I think she is going to say it's just fibro and/or anxiety. These are the symptoms I've had over the past year and a half:
Constipation. Diagnosed with severe IBS-C.
Headaches. Had chronic daily headaches for 3 months, which then went away. They returned a few weeks ago.
Blurred vision. Went away after headaches went away, but came back about one month ago.
Waking up out of sleep with heart racing and lightheadedness.
Very poor, light, unrefreshing sleep for the past 2 months. Most nights I don't feel like I fall asleep at all.
Fatigue. Tired most of the time.
Back pain. Mostly mid and upper back.
Neck pain, usually on the front of my neck.
Chest pain. I've been diagnosed with costochondritis a few times, so I believe this is what it is usually.
Pain in my ribs and breastbone.
Cough (worse at night) and throat clearing. Probably from GERD (I was diagnosed in 2009).
Mild asthma (from GERD and probably allergies).
Bloodshot/red eyes. This has only been a problem for the past couple months (probably from lack of sleep).
Twitching. I had an eyelid twitch for one month and then random twitches all over my body.
Pain in my extremities (both arms and legs). Usually worse at night and they're dull, achy pains. Sometimes though, they feel like gnawing pains. They come and go; I can't tell if it's muscular, skeletal, or my joints.
Sciatica-type pain and numbness in right leg/hip a few times.
Sore throat (could be from allergies or GERD).
Petechiae (tiny purple or red dots on skin). Usually develop after I get my blood pressure taken or lean against something).
Feeling out of it. I don't know how else to describe it.
Some anxiety, but only at night. Usually when trying to fall asleep and often is about falling asleep.
I also have eosinophilic esophagitis and moderate scoliosis.
Tests I've had done:
MRI of head (Results: Minimal punctate FLAIR/T2 hyperintensities are present in the subcortical & deep white matter of the cerebral hemispheres. Otherwise normal. Doctor said I had/have migraines).
CT of abdomen and pelvis. Normal.
Colonoscopy. Normal, except redundancy of my sigmoid colon.
Endoscopy. Positive for eosinophilic esophagitis.
Abdominal X-Ray. Normal.
Chest X-Rays. Normal.
30 Day Cardiac Event Monitor. Normal, but did have one brief episode of SVT and numerous PACs noted throughout recording.
Allergy testing. Tested positive for some allergens.
Blood tests have all been normal, EXCEPT: low vitamin D level, slightly low potassium level, ferritin is on the lower side.
CRP and ESR both normal.
I have NOT had an ANA test or any tests for autoimmune diseases. Also, I have NOT had a Lyme titer test.
Some of my symptoms have improved, while others have worsened. Some have just developed a couple months ago. The pain in my extremities, sciatica-type pain, and severely poor sleep are most concerning to me and have been going on for 2 months (and headaches returned). I really don't know if this is just fibro and would appreciate any input. Thanks in advance!
*Cross posted in the Anxiety, Fibromyalgia, Lupus, Lyme Disease, and Multiple Sclerosis forums.