Does anyone with CFS have these symptoms?

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Regular Member

Date Joined Sep 2015
Total Posts : 102
   Posted 11/30/2015 7:12 AM (GMT -6)   
I'm wondering if anyone with CFS has these symptoms? I was diagnosed with fibromyalgia, but I've recently been wondering if my fibro diagnosis is correct, as I have new symptoms and some symptoms have gotten worse. I am going to talk to my doctor, but I think she is going to say it's just fibro and/or anxiety. These are the symptoms I've had over the past year and a half:

Constipation. Diagnosed with severe IBS-C.
Abdominal pain
Headaches. Had chronic daily headaches for 3 months, which then went away. They returned a few weeks ago.
Blurred vision. Went away after headaches went away, but came back about one month ago.
Waking up out of sleep with heart racing and lightheadedness.
Heart palpitations.
Very poor, light, unrefreshing sleep for the past 2 months. Most nights I don't feel like I fall asleep at all.
Fatigue. Tired most of the time.
Back pain. Mostly mid and upper back.
Neck pain, usually on the front of my neck.
Chest pain. I've been diagnosed with costochondritis a few times, so I believe this is what it is usually.
Pain in my ribs and breastbone.
Cough (worse at night) and throat clearing. Probably from GERD (I was diagnosed in 2009).
Mild asthma (from GERD and probably allergies).
Bloodshot/red eyes. This has only been a problem for the past couple months (probably from lack of sleep).
Twitching. I had an eyelid twitch for one month and then random twitches all over my body.
Pain in my extremities (both arms and legs). Usually worse at night and they're dull, achy pains. Sometimes though, they feel like gnawing pains. They come and go; I can't tell if it's muscular, skeletal, or my joints.
Sciatica-type pain and numbness in right leg/hip a few times.
Heat intolerance.
Sore throat (could be from allergies or GERD).
Petechiae (tiny purple or red dots on skin). Usually develop after I get my blood pressure taken or lean against something).
Feeling out of it. I don't know how else to describe it.
Brain "fog".
Some anxiety, but only at night. Usually when trying to fall asleep and often is about falling asleep.

I also have eosinophilic esophagitis and moderate scoliosis.

Tests I've had done:

MRI of head (Results: Minimal punctate FLAIR/T2 hyperintensities are present in the subcortical & deep white matter of the cerebral hemispheres. Otherwise normal. Doctor said I had/have migraines).
CT of abdomen and pelvis. Normal.
Colonoscopy. Normal, except redundancy of my sigmoid colon.
Endoscopy. Positive for eosinophilic esophagitis.
Abdominal X-Ray. Normal.
Chest X-Rays. Normal.
Echocardiogram. Normal.
30 Day Cardiac Event Monitor. Normal, but did have one brief episode of SVT and numerous PACs noted throughout recording.
Allergy testing. Tested positive for some allergens.
Blood tests have all been normal, EXCEPT: low vitamin D level, slightly low potassium level, ferritin is on the lower side.
CRP and ESR both normal.
I have NOT had an ANA test or any tests for autoimmune diseases. Also, I have NOT had a Lyme titer test.

Some of my symptoms have improved, while others have worsened. Some have just developed a couple months ago. The pain in my extremities, sciatica-type pain, and severely poor sleep are most concerning to me and have been going on for 2 months (and headaches returned). I really don't know if this is just fibro and would appreciate any input. Thanks in advance!

*Cross posted in the Anxiety, Fibromyalgia, Lupus, Lyme Disease, and Multiple Sclerosis forums.

Regular Member

Date Joined Nov 2013
Total Posts : 167
   Posted 12/2/2015 8:10 PM (GMT -6)   
slee17, sorry you are going through this.....

I can identify with you. When I crashed a couple years ago my symptoms became more numerous and more intense. I had many of the symptoms you describe below. I too felt as if I was getting worse, and I was. It has taken me a while but I have been able to turn it around, not completely, but I am way better than I was. Let me know if you are interested in what I have done.

Below are a couple pages that have the symptoms of ME/CFS. I think you will find yours on the list.

New Member

Date Joined Dec 2015
Total Posts : 1
   Posted 12/3/2015 11:47 PM (GMT -6)   
Hello, I have experienced fibro, constant back pain that got worse couldn't move,walk,often couldnt get dressed. Had to wear soft clothing my skin was in constant pain.All my body at one point.
It wasn't easy to cope with daily. I discovered yoga light form gentle
healing stretches that target specific areas of the body. I have been quite disabled for a few years but now am much much better. Also decreased sugar, pasta, bread along with junk food. My digestion has improved. Drinking lots of water every hour while decreasing meds thanks to daily yoga. You must try be discipline even if you are tired have pain do all slowly. Don't keep same ideas in your mind it's not easy I know but doing something different even alone will be helpful. Try to imagine your body feeling better you will have less anxiety don't expect pain expect healing to come.

Regular Member

Date Joined Oct 2011
Total Posts : 54
   Posted 12/23/2015 12:02 AM (GMT -6)   
U have many of the same symptoms as I have with my cfs but the big thing about cfs that makes it a little different is that any exertion whether emotional or physical will make you feel ill and tired. It can start as a just once in awhile to just one time of doing any exertion will do it. As for your symptoms, I see on here we all have so many the same and many changing ones all the time .especially the fibro n cfs people.

fibro, chronic fatigue, rls, ibs, depression, insomnia, and celiac.
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