CFS or more fibromyalgia??

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New Member

Date Joined Feb 2016
Total Posts : 1
   Posted 2/29/2016 2:09 AM (GMT -6)   
I'd like to start off by saying I am a minor and I am aware cfs is often not diagnosed in teenagers because fatigue is common in this stage of life.

Last year I was finally diagnosed with fibromyalgia after a few years of worsening pain and fatigue. I had gotten used to it (or as used to chronic pain and fatigue as you can get) and my doctors think I may have gone to school through having mononucleosis without knowing it.

Currently, my fatigue is at its worst. The cane I use when I need I find I am using most often when I am too tired to walk, as opposed to being in too much pain. I sleep whenever I have no obligation to be out of the house and tend to stay in bed through entire weekends and school vacations. My fibro fog is just terrible and making getting anything productive done such a struggle. I'm starting to find the fatigue to be worse than the pain.

I know my mother is worried about me and I've tried to communicate that I'm in bed so often not for lack of wanting to get up, but because I'm just so exhausted all the time.

I guess I'd like some advice as to if this is just fibro fatigue getting worse, or if it seems I could also have cfs?
Fibromyalgia, Temporomandibular Joint Disorder, Depression and Anxiety, Post Traumatic Stress Disorder

Veteran Member

Date Joined Aug 2014
Total Posts : 1526
   Posted 3/8/2016 2:17 AM (GMT -6)   
Sun diety,
Welcome to the forum.I am in same situation as you,I have been dx Fibro but feel I have CFS.
I stay in bed because of pain and nobody gets it,it's a lonely battle.

Depression can cause the same.Take few steps at a time.
Write your symptoms and take to your doctor next visit so they know to do more lab test to confirm .
The symptoms can overlap.There are days I missed in life as I slept whole time and it makes me mad and sad at myself.
You can talk here and we can relate and support you in this journey.
Good luck.

New Member

Date Joined Apr 2016
Total Posts : 1
   Posted 4/28/2016 11:33 AM (GMT -6)   
First of all I entirely feel your pain. I am 22 and was diagnosed with Fibromyalgia when I was 19. I know you'd written you have diagnosed depression/stress disorders but if you genuinely believe this is not a result of that I would keep searching for answers!!
I am in the same boat, I just graduated college last year but for the past 10 months my fatigue has been debilitating. I sleep constantly, Ive slept upwards of 20 hours in a day before. I can barely make it through the work day without feeling like Im going to fall asleep or pass out.
I have diagnosed generalized anxiety so many doctors who I've spoken to assume that the issues I am having are due to depression or lack of motivation. I am HAPPY the only thing making me depressed is the fact that the doctors don't care enough to look into whats wrong!! I was recently diagnosed with CFS (which I honestly believe is a cop out on my doctors part) and had EBV found in my blood which is leading me to more rheumatology and immunology specialists.
All I can say is, if you feel like something is wrong if you feel this fatigue is not right, not a result of medication or other issues then you should do all you can to figure it out!! You are young and its not fair that you're stuck in bed all the time.
You aren't alone though never forget that!

Veteran Member

Date Joined Mar 2015
Total Posts : 1316
   Posted 4/28/2016 9:33 PM (GMT -6)   
Have you been tested for
Heavy metals
Dental issues?

New Member

Date Joined May 2016
Total Posts : 10
   Posted 6/27/2016 1:32 PM (GMT -6)   
Ubiquinone CoQ10 has been shown to help with energy drain.
If you are looking at heavy metals tox issues - try selenoprecise selenium - it has been shown to be effective in helping the bod rid itself of mercury amongst other things.
Both are natural supthe plements without side effects - as with all things, don't buy the cheap product at the grocery store - make sure you get a pharmaceutical-grade product that can guarantee ingredients. This way you don't waste your money or get an unexpected filler ingredient from unsafe products.
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